Hi, it's hard to say as even your doctors are struggling to tell you what is going on. This may be why you've had no answers. I would like to give you one but am just not sure. Sounds quite debilitating especially since you can't even work with it. we all need income so that is definitely a problem but more so that you probably would like your life back and to not have it ruled by these symptoms. Things that come to mind for me are to ask if you've had a C125 test. This is a blood test and a marker for things like ovarian cancer. I sincerely doubt you have this but it is worth ruling out. Symptoms are such that it is often overlooked as something else until it is advanced. I always encourage women when they are having things such as you describe to ask about this. It's a seeding cancer so tumors are not noticeable often. They can be tiny within the ovaries, omentum, and other areas surrounding the ovaries (doesn't follow strictly what you would think). So, rule that out. And since they are mentioning endometriosis, this is a viable conclusion for why you have your symptoms and a full diagnosis along with treatment would seem reasonable. are you doubting endo? Treatment includes medications such as hormonal medications, along with other medications specific to this disorder. One actually inhibits growth. So, there are medicinal treatments. There is also surgery such as ablation or even a hysterectomy. While at 41, that's not great---- at all, it's better than not being able to work or be happy in your relationship or life due to endo. So, I would begin focusing on this and taking steps to make a treatment plan. Here's an article that may help
http://www.medhelp.org/womens-health/articles/4-Telltale-Signs-of-Endometriosis/150
or try this: http://www.mayoclinic.org/diseases-conditions/endometriosis/diagnosis-treatment/treatment/txc-20236449
let me know what you think or how this progresses. We also have an endometriosis forum here that you can find under communities above. (I like to look at the alphabetical list, hit on E and you'll find it). good luck