bladder pressure, frequent urination...ovarian symptoms?

I have had reoccurant uti like symptoms for a few months..all my cultures show no infection just white blood cells..I've seen a urologist who did a bladder ultrasound and cystoscopy both normal..I saw my gyn who did a pelvic ovaries were normal..he did not give me a ultrasound though..should I persue further testing since this could be a symptom of ovarian cancer? I am 30yr..also I did have a pelvic ultrasound 6 moths ago for something else and my ovaries were normal size.

[kmx414]

I too have had UTI symptons, but when I went to the doctor for a culture, there was no bacteria found. They did a test to rule out gonohrea (sp?) and clamydia (chlamydia), but that too came out negative. It seems that any time I have sex, I am getting these UTI-like symptoms. I'm not sure what else to do, I'm on CIPRO right now. Any ideas??

[carolalute]

I have the same symptoms as you and Renie.  Always have cultures that come back normal.  Been to a urologist and he has no idea.  One suggestion though.  When I have symptoms, I take Uristat, an over the counter medicine for the UTI symptoms.  They go away for a few weeks or a month.  But at least I am not taking the antibiotics all the time now.  That worried me becasue you do not want to get immune to the antibiotics.  So maybe try the Uristat instead of the Cipro next time.  I would LOVE to find the answer to this problem too.

[r. bolton]

my 16 yr old daug has same problem recurrent uti they need to culture your urine to know for sure if u have a true uti. They did a cystocopy said the texture of her bladder was rough looking but the raidoligist still didnt think she had interstecial cycstitias (sorry i don't think i spelled it right) Its called I.C. for short. She was admitted in the hospital and Dr Hibner @ St.Joesph's IN Arizona said he diagnosis I.C. in a different way than the radioligst do. He is a pelvic pain specialist and inserted sodium pottasium into the bladder and told my daug if it brings on the same type of pain pressure than thats how they diagnosos I.C. and said she had it.Her symptoms are a feeling like she has to urinate and even when she does she still feels like she has a full bladder. the pressure from not being able to relieave hurts. She is on pain med's to help until we can find a answer but if it is I.C. they say there is no cure. She gets injections at the pelvic pain office through her urietha . The medicen in the cocktail (they call it) is supposed to help by bringing down inflamiation. She also talked elmerion but its not working yet this has been going on for 10 months now I'm starting to think maybe there is something else going on Im going to rule out bladder cancer and have them do a abdominal laporoskyto also rule out endemetreosis . She also has been treated and diagnosed with severe migraines and is on topomax (topamax). She was nausa and vomiting for 6 months straight anywhere from 4-6 times a day straight. Shes been through so much  at such a young age any info would help . I hope this helps all of you as well.

[ksherman6]

For the last couple of days i have had this unbelievable pressure on my bladder i just knew it was a uti i finally went to the hospital this morning i told them i have all this pressure i feel like i have to go to the bathroom even though i just went and when i do go it is alot...they took a culture it came back normal they gave me a cat scan that was normal they drew blood everything was normal they made me think it was just all in my head. if everything is normal why do i have all these symtoms (symptoms)? It just started like i said 3 days ago out of the blue..as soon as i go to the bathroom i get relief for about 2 or 3 minutes then it starts to build up again i haven't been sleeping it wakes me up every half hour to an hour.they said i had no fever but yet i have the chills i get sick to my stomach..it is making me crazy it is real but they can't find anything wrong...any suggestions?

[KimberlyB]

Im so sorry to hear about your daughter's discomfort! Have you had her checked for endometriosis and/or fibroids? Also, the nausea, migraines, fatigue, etc, are indications of hormone imbalance and anemia. Are her periods heavy? If so, she may have fibroids and/or endometriosis. How is her diet? Is she eating or drinking anything that may be causing her bladder to inflame? Is her life very stressful? It all comes back to how she is dealing with stress in her life...in school, at home, during hobbies, etc...When a person does not have the proper tools to deal with stress in a healthy way, their body reacts by getting sick in some way...
How does she feel about sex and losing her virginity? There is evidence that having negative feelings and thoughts about sex can cause gynocological health problems...it's the body's way of coping with negative thoughts about a particular thing that makes us feel uncomfortable.
I look forward to hearing back from you...
Please keep in mind that every physical symptom we have corresponds to something emotional going on in our life...something we may not even be aware of!
Kimberly

[KimberlyB]

   Im so sorry to hear about your daughter's discomfort! Have you had her checked for endometriosis and/or fibroids? Also, the nausea, migraines, fatigue, etc, are indications of hormone imbalance and anemia. Are her periods heavy? If so, she may have fibroids and/or endometriosis. How is her diet? Is she eating or drinking anything that may be causing her bladder to inflame? Is her life very stressful? It all comes back to how she is dealing with stress in her life...in school, at home, during hobbies, etc...When a person does not have the proper tools to deal with stress in a healthy way, their body reacts by getting sick in some way...
How does she feel about sex and losing her virginity? There is evidence that having negative feelings and thoughts about sex can cause gynocological health problems...it's the body's way of coping with negative thoughts about a particular thing that makes us feel uncomfortable.
I look forward to hearing back from you...
Please keep in mind that every physical symptom we have corresponds to something emotional going on in our life...something we may not even be aware of!
Kimberly

[dnels]

I also have had an extreme pressure in my bladder with a normal urine analysis.  My doctor stated that there are several urinary tract irritants that may have caused it.  Caffeine, calcium, citruses, and alcohol.  Good luck ladies, I feel your pain.

[Angel-a]

Same here, but I do have a ovarain cyst, which I beileve is the root, but the urologist want to do more tests to rule IC and such out b/c she fels the same as me.  All of you who havent get a ultra sound of yur ovaries!

[Hayden88]

Just curious, if the ultrasound for an ovarian cyst comes back positive do you know if there is anything that they can do to stop the bladder pressure/frequent urination?  Have you talked with your GYN or urologist about what (if any) treatments exist for the cysts?  Thanks.

[leannemartin]

I have bloating, I look like I am pregnant, frequent urination, pressure in my abdomen, lower back pain, extreme fatigue and pain during intercourse. What could this be. My doctor kept giving me medication for urinary tract infection.

[SimplyStar]

Get an appointment with a GYN/Onocologist,  get a TVUS, a CA125, a good internal pelvic exam,  many of your symptoms are for OVCA yes, but they also are the signs of endo. fibroids,ovarian cysts and many other causes.

[leannemartin]

What are other causes. Should this be something I should be worried about. I just haven't felt like my self. I am also very irritable. I feel sorry for my family for me being this way but I just don't feel great. What is your opinion.

[myname1]

Has anyone ever consider interstitial cystitis?

[leannemartin]

No I have not considered interstitial cystitus. I don't even know what that is. I went to the doctor back in June. They took blood and did a urine test. Then they called me and said urinary tract infection. They prescribed me with anitbiotics. I felt better. Then I went back after a month and they said Urinary Tract infection again and again. This other doctor said I never had UTI but he doesn't know what is wrong. This is all I am going on. I am worried it is the worst. I have an appointment with my gynocologist.

[riorancholady]

[riorancholady]

I am really posting this to all of you that have had complaints concerning frequent unrination.  No infections are found.  I have had bladder pressure for at least a year. I have been to a GYN, Urologists, primary care physicians, you name it I have seen them.   I have had kidney stones removed, laproscopic surgery (nothing abnormal) and a cystopy (spelling).    I was actually hoping that the Lap would indicate that they had found something wrong so they could fix it. My GYN seems to think our next step is to remove the uterus, I just don't see how this can help.  I am past child bearing age so I do need it, I just don't want to go through another procedure with no results. I  am depressed, tired, and dealing with the pressure 24/7 is exhausting and I am beginning to think that the doctors believe I am faking it or that it is all in my head.  Have any of you gotten any answers to your symptoms.  I am now grasping at straws I want to be able to take something to my doctor and let him know that I am not the only one who has these symptoms.  I can't take motrin or aleve and the doctor's answer is to give me prescription pain medicine.  Any help would be so much appreciated.

[leannemartin]

I am sorry but I have no help for you. I have just started with these symptom probably June or before of this year. This is all new to me. I am almost 30 but I feel like I am 60. I went to the doctor because my lower back gets to hurting. They have me come and pee in a cup. Well I seen a different doctor he said was not urinary tract infection but he doesn't know what and said I never had urinary tract infection. Still no answers. But I got on the internet and was looking up stuff and seen I had symptoms of ovarian cancer. But I am worrying myself sick. I can't get to the OB/GYN until November. They are not concerned. But I have pain during intercourse, My stomach is swelled. I look like I am 6 months pregnant. I have not ever been this big other than when I am pregnant. I have pressure in my abdomen that comes and goes and the lower back pain that comes and goes. I am very tired and grouchy. I just don't feel like myself. I have three kids that I have to keep up with and It is just not working. I don't know what to do either. I feel like I am going crazy.

[riorancholady]

I feel like we are talking about the same thing.  If it makes you feel any better, I did have the laporscopic surgery and they ruled out ovarian cancer and the doctor told me that with ovarian cancer you don't usually have such pain.  I saw in a earlier post that someone mentioned interstitial cystitus, I looked it up on the internet and it does sound a lot like what I am experiencing.  Take a look and let me know what you think.  I know what you mean about worry, my biggest thing is I am starting to think that people think I am exaggerating or faking.  My husband is very understanding but I think he is growing tired of the whole thing.  I have been going through this for over a year now and it is starting to cause mental depression, I have even made statements like "I'm done" or "I really want to go  to sleep and never wake up".  I don't really think I would really go through with anything.  I go to work everyday and work 8-9 hours and come home and collapse from the exhaustion of dealing with the pain and pressure all day.  I hope you don't mind me going off like this but I think it helps to know someone understands what I am going through.  Good luck to you.

[Q73]

Could abdominal adhesions cause these bladder issue?

[chinchilla]

I have had bladder pressure for a few days now. I urinate frequently, but it's on and off. Sometimes I'm afraid to get off the toilet for hours, and other times it doesn't bother me for a day or two. Also, when I do urinate I feel a discomfort. Not a burning, but almost like a dull pain. Well, intense discomfort. And it doesn't go away; the awareness is there as a constant.

What could it be?

[bjkrt]

I have had the UTI like symptoms off and on for years with negative cultures.  It got so bad last year that I went to a pelvic pain specialist after years of going to ob/gyns or urgent care for antibiotics constantly.  I also had all the tests for IC and they were all negative.

During a ultrasound on my bladder, they found two (one on each side) 5 cm ovarian cysts.  During the surgery to remove these, they found stage 4 advanced endometriosis with severe adhesions.  The uterus had prolapsed and become attached to the intestines by scar tissue/adhesions. The cystoscopy done during surgery showed a slightly rough surface in the bladder but nothing remarkable.  I had no idea about the endo or the cysts.  Never had pain or discomfort or anything except the UTI symptoms.

I had surgery to remove the cysts, adhesions, a uterine suspension and , forget what its called, moving and encasing the ovaries.  

All of this to say, after the surgery the dr put me on Bactrim DS twice a day for 10 days and then once a day for a month.  I had no trouble for months after that.  Since then (last May), I have had 2 UTI-ish episodes but that is amazing for me.  I think the extra long course of Bactrim is what helped the most.  Some drs are hesitant to do this.  Several told me they were worried about me building up resistance.  I was in such pain I wasnt worried about resistance.  I needed relief.

Im not saying this will work for everybody but it was my experience when I was desperate for anything to help.  I wanted to post my experience in case it might help someone else with these problems.  I searched and searched for anyone going through the same as me and found nothing.

[Hayley723]

I was wondering if you had any blood in urine (microscopic) as well? I have same symtoms (symptoms) and just starting w/doctors and tests, and looking for answers! Also, did you have any back pain, etc??

[hopeshell]

I had frequent and urgent urination but no blood.  I would keep going in to get tested for a bladder infection but never had one.  I think it would be rare to have blood except in a very advanced case and you would likely have several symptoms at that point.  Usually, the tumor just puts pressure on the bladder.  I did have back pain but it was crampy and I could feel it through to my front.  Please follow up with a gyn if you have concerns.  A transvaginal ultrasound is the best way to screen for an ovarian mass.  IYou may want to "post a question" at the top as this is added to an old post and may not get answered the same way new posts do.  Best wishes

[cher27]

I have had many UTIs and I'm only 20 years old.  Doctors would just give me the medication whenever I told them bc I got them so often. I don't know what I get them, I'm a clean person and try not to do anything that would trigger them.  Recently I have felt a ton of pressure on my bladder, I'm very tired, I'm bloated every day , I urinate all the time.  Sometimes I go days without drinking anything just see if I go, and I still go a million times a day.  I can't sleep at night because I'm always up running to the bathroom.  Also, after intercourse I feel like I have a UTI, but I no I don't because it does away after a few.  I have an appt with a specialist in a month but I can't wait that long.  Any ideas?

[Hayley723]

It could be a bladder infection, but I'm learning as well that there are so many different causes of all these same symptoms. I have all those symptoms and more, and have microscopic blood in urine, but no bacteria, so it's not an infection, but could be many different things, just make sure you do get in w/a doctor, maybe even try a reg. physician first to get in sooner and rule out infection or get meds for it! In the mean time you could take uristat or azo to relieve some pain, that's all they've told me to do for now! Good luck!

[MISSTRESMM]

I have the constant feeling of a full bladder, when I go not much comes out and when it stops I can feel my bladder filling up again.  I urinate about 10-12 times a day.  Being in my 20's my doc said this is not normal I was going to be referred to the urologist until she discovered my uterus was enlarged and ordered an ultrasound...... I have 2 cysts on my ovaries which are putting pressure on my uterus and bladder... I am going for surgury.

I HIGHLY RECOMMEND GETTING AN ULTRASOUND

I almost didn't.... good thing I did... before these suckers got bigger.

[brit58]

It was like reading about me. I have had the same symptoms for several weeks. had 2 lots of anitibiotics, but had a negative urine. had negative blood tests and a negative USound. I am waiting to see the urologist. it is a horrible situation. i feel really down, especially as I am about to start a new high pwered job. i feel like an old lady and could end up wearing  a pair of depends.

[CHRSY]

I have had frequent urination and bladder pressure for 7 months, with two UTI's negative, and a urologist appointment in a month- I'm concerned!
After reading your message I realized it is a good idea to look into ovarian cysts. I never even thought about that until coming to this site. Would you, or anyone else recommend forgetting about the urologist and going straight to getting an ultrasound? I would like to rule everything out, but it makes so much sense to not waste the money and headache for unneeded tests!
Any suggestions?

[Hayley723]

If you have had uti symptoms I would still go, if they are a good urologist they will figure out you have cysts causing the problems or something else...they will prob send you for a ct scan which will see cysts better anyways! Thats exactly what I'm going through right now!

[MISSTRESMM]

Since your 2 UTI's came back negative I would STRONGLY urge you to ask your gyno for an ultrasound.... I have had frequent urination & bladder pressure for a few years that I can remember... here is a good website for symptoms..

http://www.4woman.gov/faq/ovarian_cysts.htm

What are the symptoms of ovarian cysts?
Many women have ovarian cysts without having any symptoms. Sometimes, though, a cyst will cause these problems:

pressure, fullness, or pain in the abdomen
dull ache in the lower back and thighs
problems passing urine completely
pain during sexual intercourse
weight gain
painful menstrual periods and abnormal bleeding
nausea or vomiting
breast tenderness
If you have these symptoms, get help right away:

pain with fever and vomiting
sudden, severe abdominal pain
faintness, dizziness, or weakness
rapid breathing

[bjkrt]

Yes, I occasionally have had blood in my urine when the symptoms are at the absolute worst.  It doesnt happen often.  I have also had traces of sugar in my urine but no diabetes.  

[rkenney]

Wow...  I'm reading about ME.  Same symptoms.  Do any of you notice it gets worse at nights (after being on my feet all day0? And do you notice it gets worse right before your period?
I'm 43.  I've had an IUD for years.  I've got a gyno appointment Tuesday to have the IUD removed and see if we can figure out what's going on.  Sounds like I'm just beginning a long road most of you have been on for awhile.  Good Luck!

[stopthepain]

I am 28 years old with a 3 1/2 year old that was conceived almost unbelievably and for the last 4 months I have actually been trying to get pregnant and can't.  I thought that was weird as it was soo easy before, and then all of the sudden this month I began having this pressure in my bladder and down feeling like almost to the urethral opening.  I have had UTI problems in the past and thought that was it but the culture was negative and the antibiotics the doctor gave me are not helping the symptoms at all.  She also did a pelvic exam at the time of the culture and I had a lot of discomfort when putting pressure on the bladder.  I feel as though sometimes the pain is in the urethra, sometimes the bladder and sometimes the vagina.  I can't understand it. Which brings me to the original story, could this mysterious pain be what is preventing me from getting pregnant.  I am immediately thinking cancer, ovarian or uterus.  I have had my yearly paps all good and shee said she pushed on my ovaries and uterus which did not elicit pain like the bladder did.  It came on sooo sudden so that is what confuses me. HELP!  I do have occasional bouts of shooting pain in the pelvic region too...does anyone else?

Stacy

[Hayley723]

I have similar pains...and conceived my daughter w/in 2 weeks of being off the pill...now we haven't exactly "tried" but "should" have gotten pregnant numerous times and it didn't happen. One doctor thinks i have endometriosis, and I'm going back to the other dr. next week so I will hopefully have some answers. You should look into the symptoms of endo and compare your pains, ect...even though it could still be many numerous things...I'm learning that so many different causes can make all the same symptoms. Go see a dr. though, so you can get started with things, cuz it may take a while to get to the bottom of it! Also, you should get an ultrasound and check for cysts on your ovaries...even small ones can cause a lot of pain like I have had as well!

[bjkrt]

yes, i do notice it is worse after being on my feet all day.  It is also worse right before my period.  Ive never had an IUD but I do have Stage 4 severe endo.  

[nadav]

I am 30 years old ,no kids.For the past 2 years  i've been experiencing symptoms like UTI's.The first time I had a pelvic exam and the GYN find nothing wrong with it.Then it disappeared for a while and came back again so i did a 3 day course with antibiotic and went away for about 7 months.Now it came back again.In the past 3 months i've been at the gyn office regurlarly! She did multiple pelvic exams and urinalysis, i had a pelvic ultrasound, Transvaginal, blood work done (to check for ovarian cancer) but everything came back normal.She didn't think it was UTI because the urinalysis was normal  everytime but i asked her anyway to put me on antibiotics(i was in a lot of discomfort) and she gave me Cipro for a 3 days course.It had seemed to have worked  for about  2 weeks but the symptoms have came back again now.My symptoms: bladder pressure, frequent need to urinate especially at night(no blood or pain when i urinate though),pain in my  very lower right-center pubic area,sometimes i get this stabbing-like pains in my vagina also.Now besides this symptoms ,i've been having some nausea for about  a week that goes on and off during the day.Do you have any advice?What should i do?I don't know if I should go back to the Gyn or perhaps go see my MD, i don't know.Any advice?Thanks

[Hayley723]

You could ask to be referred to a urologist or urogynocologist. My symptoms are similar and come and go whenever like that too, and antibiotics dont work, nor do they give them to me because the urinalysis is neg. In the meantime, my urologist gave me vesicare to help with the bladder pressure/urgency, and said to try sitting on a hot water bottle once in a while. I also take uristat or azo standard (both over the counter) for the irritated bladder or whenever I feel like I have a uti. Good luck!

[Hayley723]

You could ask to be referred to a urologist or urogynocologist. My symptoms are similar and come and go whenever like that too, and antibiotics dont work, nor do they give them to me because the urinalysis is neg. In the meantime, my urologist gave me vesicare to help with the bladder pressure/urgency, and said to try sitting on a hot water bottle once in a while. I also take uristat or azo standard (both over the counter) for the irritated bladder or whenever I feel like I have a uti. Good luck!

[nadav]

Did you also experience nausea?Do you think i should go to the Gyn for a referral or should i see my family doctor for that?

[Hayley723]

Yes, I have nausea off and on, it's totally random, which I've never had before. You can start w/your family dr. they will probably check all the basics then refer you to a specialist (unless you've already seen your regular dr. and they found nothing, you can also make an appt. w/a urologist on your own), which is about where I'm at, and I go back next wednesday and will hopefully get some answers.

[nadav]

Thank you for your advice. I think i'll try to go with my family doctor first since i haven't seen her yet since  and see what she says.Then I'll probably go to a Urologist.Keep you posted.

[stopthepain]

Thanks for the response.  Since my last post I have gone back to the DR. and had an external pelvic(bladder, uterus and ovaries) ultrasound. She also did a transvaginal ultrasound at the same time.  Both were unremarkable aside from a small amount of fluid around my right ovary which the Dr. said was normal!  I have one more day of antibiotics left as they did find Strep B bacteria in my urine and put me on some form of penicillin.  I still have the pressure and discomfort.  I also feel now a sort of burning in the vaginal area but all vaginal cultures are normal.  I am stumped!!!!!  I am going to make an appointment with a urologist I think.  My OBGYN wants to do some potassium test for intersticial cystitis (spelling).  I have never had this before and am very scared that it is some bladder cancer or something.  It comes and goes which is weird, and never bothers me while I am lying down or at night sleeping it is the worst when I sit, and second when I stand.  I am so FRUSTRATED!!!!  Anyone have it worse in certain positions?  What if this never goes away?  I can't live like this!!!  

[Hayley723]

I was told the burning like a uti with out having any bacteria there is from vaginal dryness...now I'm really confused! I'm going back to the ob/gyn because the urologist said my bladder looks fine and the very small cysts I have should have been monitored this whole time...what the hell!!!

[bjkrt]

Yes, it is worse when sitting or standing.  And it doesnt bother me at night either.  Lying down is the only thing that helps.  I dont understand that either.  Most people with IC have problems at night.  I had all the IC tests and they were negative.  I also had a cystoscopy and there was nothing.  It is very frustrating!  

[emz317]

i have been getting these syptoms (symptoms) for 5 years it started after i had my son im 23 n in pain most of the time with these symptoms you r explaining i have been to the drs more times then i can remember i have had tests for sti's but thats it now hes telling me its hormonal he hasnt sent me for no blood tests hasnt done nothing other then the tests for the sti's im hoping when i go today he will send me for proper tests n not fob me off by saying its my hormones

[Tracyg525]

I am also going through simular problems.  I feel like I have to urinate about 5 minutes after I already went. Night seems to be worse and when I try to go shopping this is hard.  I have had 5 days of bactrim even thought they found no UTI.  I had a vaginal ultrasound and everything looks ok.  I have biopsys of my uterious and it came back negative.  Urinalysis came back negative.  I am so fustrated right now and wonder how some of you woman telling us you have been going through this for months.  How do you deal with it?  I am going to call a urologist Monday and go from there.  It seems like some of you have gotten a lot of the same results--->Just live with it?

[Hayley723]

The urologist I saw told me it was all from vaginal dryness and gave me estrogen cream~I'm 25 yrs. old and never had my gyn tell me that!! I think the majority of my urgency was from ruptured cysts, but my gyn doesn't think so because she only saw ultrasound and not ct that stated free fluid and bilateral cysts. Anyways, I'd say for now your best bet is to go see urologist and check for any bladder issues to at least rule that out. It could be a slightly overactive bladder. She did say I had that, but that's just based on how frequently I go! Good luck!

[shab1234]

Wow! It's amazing how many people are experiencing the same symtoms (symptoms) and no actual diagnosis. After researching all the different symtoms (symptoms) ( bladder pressure, slight burning, going constantly) It could be a number of things. I am scheduled for an ultrasound on my ovaries after a recent UTI has been ruled out. Thank you to everyone who has posted their personal symtoms (symptoms) and experience. This is encouraging to read and know your not the only one.

[bigdxxx]

i have had unbearable abdominal pain for 8 years, i shake in pain for days at a time. i take percocet which offers some relief, but i am homebound and cannot work. i have to urinate frequently and my bladder hurts really bad as well as my lower right side.i sleep very little because sleeping makes the pain worse. when i wake up i have to run to the bathroom,it feels like ive been holding it for days, or i have trouble urinating. i was tested several times for a urinary tracy infection at the emergency room, i dont think they cultured it. i have been to many doctors including 2 mayo clinics. they said they tested me for everything, i dont know what everything is. i dont know how long i can continue to take this pain.no doctor has even precribed antibiotics for me. i ordered some on the internet but they ill take 11-20 days, maybe they will help. i believe you could still have some infection without testing positive. there is pid which there is no real test for and lymes disease which there is no real test for which can effect every organ in your body including your brain. the doctors say im cronic (chronic), cronic (chronic) what? i guess this means they dont know hats wrong with me so i should just suffer in pain. have you ever met a doctor in pain, if they knew how bad it was things ould be different.

ANY THOUGHTS?

[Hayley723]

Maybe you can start trying certain specialists...can you pinpoint when the pain is worse and where. Have you been to a urologist to have your bladder looked at? That may at least rule some things out. I would just try to start somewhere with a dr./specialist and start ruling things out to get to the bottom of it. I don't know what else to say! And I agree, no dr. would ever suffer in pain, they would get to the bottom of it before the week was over!!! Good luck!

[bigdxxx]

i have been to specialists and doctors for over 7 years,they claim they cant find out whats wrong with me. this actually happens alot,many people suffer in pain for years without any doctor finding out whats wrong with them.all the tests,mri, cat scans, exrays come back perfect. i dont know how i can be so healthy for someone in so much pain. i have pain in every organ, muscles, joints,headaches. thats why i think i might have cronic (chronic) lymes disease. i was bitten by a tick over 8 years ago. now that i have been reading about cronic (chronic) lymes i definetly think it may be my problem. actually doctors dont want to keep messing with you, they want to say you have some cronic (chronic) problem like fibromyalgia, except i have never read one person that thought they had fibromyalgia say they have severe abdominal pain. no one has ever suggested a urologist to me, so i will be going to one very soon.,

[jgeo10]

Hi I just recently had a child in late December through C-section.  I recently out of no where developed pain and pressure in my stomach and felt pressure on my bladder.  I was also getting up 4-6 times a night to urinate.  I went to my OB/Gyn and he did a culture on my urine and there was no uti.  He gave me antibiotics for 3 days any ways and it did not go away.  I have a history of uti's and I was sure this was a uti but it wasn't.  I than again went into my OB/Gyn again and he did some bladder tests that were very uncomfortable.  This included filling my bladder with water and other tests.  He inserted a cathater(sp) and did all these different tests.  It was no picnic.  He diagnosed me with interstitial cystitis and perscribed me a very expensive drug called Elmiron.  I just started taking it yesterday and he told me it takes 6-12 weeks to be effective.  He also gave me info on how controlling your diet can help reduce the syptoms (symptoms).  Google interstitial cystitis and see if the symptoms match yours.  

[whitedove411]

hi,  i wonder if you could give me some advice.
I too, like all of you have bladder pressure and urgency issues. I go to the bathroom freqently...sometimes 3x /hr..  When we were coming home from a VT vacation just last month - i was horrified that i had to stop like every 15/20 min at every rest stop. I have never done that before.  The pressure and buildup it terrible...especially because i know i am not full..
I was just at my gyn last month also. That was the first day i noticed i went alot. Went before the exam.. after the exam... and again after my vaginal sonogram. I went to my GP 2 weeks ago.. no UTi... no infection either. He tested my urine again this past week during a physical. I will be getting my blood work done tomorrow and then i will see what is up. He is suggesting i go next to a Urologist.  I am wondering after reading all your posts if i should go or call my gyn first..... she did do a vaginal sonogram while i was there, so i am not sure ? if cysts would still be an issue. would it be possible that she missed them.  I was there because i had a period and we thougth i was over that so she was looking for anything or everything suspicious. Do i call her and tell her i now have a bladder problem or go to the Urologist?  Also... are the bladder tests painful?? I really have a low low tolerence for pain.  Thank you all.

[Hayley723]

I would let your gyn know first and see if she refers you to a urologist. If you do see a urologist they will most likely do a cystoscopy and I thought it was pretty painful even though the worst of it only lasted about 5 seconds! Then afterwards I had a lot of burning/pain for a day and a half. But it could be cysts causing the urgency/frequency, so make sure thats ruled out first (it's the most common cause usually). Good luck

[Pamela367]

Before I was diagnode with stage 4 ovarian cancer I went 13 solid months going back and forth to the Dr for chronic infections. A cure would cause another illness. I was tested for every everything "BUT" cancer. Many things I read were symptems I had....PLEASE DEMAND your Dr.s do a CA-125 (simple blood test) it tests for ovarian protiens. Some Dr.s are reluctent to run it because horemones can affect the counts.....but if you insist and your counts are super high it should be a flag for your Dr so hopefully if it is that...you might stand a chance of surviving this silent killer!!
These days you have to be proactive! Good Luck!!

[bjkrt]

So, did you get a diagnosis from your cystoscopy?  Mine didnt show anything, just curious what you found out.

[Hayley723]

No, they said everything was normal. She's sending me to a gastro doctor now and a new gyn. She said she thinks either ibs or endo...so who the hell knows anymore!! My gyn says she has no answers and might send me to a pelvic pain specialist. I'm just frustrated with them all!!! Anything new with you?

[whitedove411]

Hello, and my prayers are with you.

how are you?  how long into your testing did they find and diagnose the cancer? what treatments are you doing now??

what did your drs think it was... and was it your idea or your drs to do the ca-125??

[bjkrt]

I am seeing a pelvic pain specialist now.  He hasnt found the problem yet but he is at least trying.  At least he doesnt just give me antibiotics and send me home.   My symptoms were greatly improved after the surgery (for cysts and endo) and the month long antibiotic treatment (see older post) but now they are back - almost a year later.  I go back to him this week to try again.  The pelvic pain specialist has been great - much more interested than a regular gyn.  Good luck, I hope you find an answer.  

[Hayley723]

That's good to know...I wondered how they approach these things. Let me know if you get any help from the pelvic pain spec.!!

[stopthepain]

Thanks for the posts!  I am scheduled for a cystoscopy tomorrow and am very nervous, not about the pain but the result!  I am also very concerned about the post regarding the ovarian cancer, as this has been my worst fear since the beginning of this.  I have had 2 ultrasounds external and tras-vaginal, and a CT of bladder and pelvis and both were unremarkable, and i think that ovarian cancer unlike bladder cancer is almost always associated with a tumor.  I am sick of the constant fear and 40hrs per week of looking things up on the internet.  I am very scared and am having trouble dealing as I have a young child and don't want to have something dangerous!  I have also been have this flakey white stuff in urine and occasionally some white mucus stuff that sometimes almost slows the urine flow to come out!  Has anyone had these symptoms.  From reading forums on IC I think alot of IC people have the stuff in urine.  I do not have any blood, or protein etc... on the last 4 urinalysis  (last one done about 3-4 weeks ago).  Although I have frequency, my biggest complaint as of late is the burning weird feeling in the urethra, usually after urinating and randomly otherwise.  Anyone have any suggestions or words of wisdom/solace, I need them about now.

Thank you

[Hayley723]

I also had the flakey things in urine and burning after urinating. My urologist said both of them are caused by vaginal dryness, I had a hard time believing that all those "flakey particles" came from dryness, but I've been using and estrogen cream she gave me for almost 2 months now and they are almost gone (I have to look very hard to see just tiny ones!) and I haven't had as much burning as I use to. She did say it can take up to 3 months for it to work, but tell your urologist as well and let me know if you get the same answer!! Good luck!

[catlvr14]

I have been having the same symptoms as everyone else, on and off for 8 years now. Sometimes I have an infection, sometimes I don't. We all know how frustrating this is! Had a cystoscopy (my 3rd) today and the dr found that the lining of my urethra was irritated due to a thinning of the lining. He is having me try vagifem, a vaginal tablet, 2x a week. Also, I had been taking vesicare for over a year and he told me to discontinue it. I will post my results when I know more.

[spunkychick]

Hi all, i too have similar symptoms over the last 3 years of UTI but my pain was so extreme i felt like i was in labour again. i would always take a ural and wait for the pain to subside...pain with intercourse, back pain, nausea, urine frequency, i also was diagnosed with a condition in 2005 called chronic daily headache syndrome so i put a lot of the symptoms to that but started worrying more this year after my dad was diagnosed with bowel cancer, liver cancer and bone and he passed away 5 weeks ago. I had a intervaginal unltrasound which found a complex left ovary cyst, the cyst is 6cm and another cyst inside that one is 2.2cm, i am awaiting results of the CA125 test today. my GYNO has scheduled me for surgery to have my left ovary removed weather cancerous or not the cysts are just to big and complex...i have also been unable to fall pregnant for over 3 years now, i have one beautiful 5yr old boy but would like another at some stage...i would also like to tell you about a condition that my mother suffers from called OVERACTIVE BLADDER alot of your symptoms are also similar to this condition and it can never be cured but there is medication for it that my mum takes a pill a day and it has eased her urgency and frequency to urinate, she says its a godsend so maybe some of you might like to look into that condition also. i am hoping after my surgery that my health goes back to normal again, i am only 26 and have been living with this for 3 years.

[Hayley723]

I just found out about a bacteria called ureaplasma that causes all these symptoms and you probably wont know you have it unless you are tested specifically for this bacteria. The main symptoms are the bladder issues/uti signs etc...You really have to ask to be tested for it to find out if you have it and if left untreated too long it can effect many other things in your reproductive tract. You just have to pee in a cup and they send it out!!! They are just realizing that at least 70% of adults have it, but only about 30% catch it! Just a thought!!!

[VB3333]

Hello

I sympathize with all of you.  I have been experiencing bladder pressure and frequency since February.  It has disrupted my life.  I too spend time online trying to find out what's wrong.  My doctor did and ultrasound and told me I have 2 small fibroids and that is what is causing all this bladder pressure.  I  am having a hard time believing that these small fibroids can cause such bladder pressure.  I can't stop thinking about it most days.  It puts me in a bad mood and I have anxiety over it.  I  have 2 small children and keep thinking I have something worse.  I am embarassed to tell my gyne how much anxiety I have over this.  People just don't realize how the feeling of having to go pee all the time can drive you crazy.  I don't want to clean my house or do anything I used to. It's made me no fun.  My doc told me to wait a few cycles of my period and see if the symptoms improve.  I just want to be myself again.

[stopthepain]

Has anyone had the issue of a urethral discharge?  It is like a yellowish color and is kind of thick.  I am pretty sure it is coming from the urethra as I only see it when I go to the bathroom not on underpants etc...  Help?!

[dittogirl]

Just yesterday I visited my GP for symptoms: frequent need to go, developed inability to hold, burning whilst peeing, abdominal pain, ovarian pain, kidney and flank pain, nausea, headaches, and discomfort during intercourse. Initial UTI test was negative (my dr said means nothing) and urine appeared healthy, however I am pending lab results. His best guess was that I have KIDNEY REFLUX (in my case resulting from frequent 'holding on' at work, not being allowed to leave my desk). REFLUX occurs when the urethra is weakened, allowing urinal backflow into the KIDNEY, which can cause all of these symptoms, with or without infection. 3 years ago I had an ultrasound for other reasons & recall being told that fluid was leaking into my kidney - at the time I was told this was of no consequence. Apparently reflux, can be congenital (normally resolving in childhood) or secondary causes of weakened urethra include prior/reoccuring UTI.

[Jamie1023]

I am 27 years old and after my very first yeast infection ever in late March 2008 I have developed what feels like a UTI. I have constant bladder pain, urgency and frequency. My urinalysis and urine cultures all came back negative. My urethra is irritated and I experience clitoral pain as well. My gynecologist diagnosed me with vestibular adinitis (aka vulvodynia) but I believe mine is clitorodynia as well. Could anyone tell me, did your symptoms possibly begin after the onset of a yeast infection also?

I will visit my urologist next week to rule out Interstitial cystitis (IC), but I'm so confused at this point as to what is going on.... I take AZO Standard daily to help prevent pain.

[Hayley723]

Mine started after I had my daughter along with as bacterial infection. Now I'm told I have IC and just started taking Atarax for it, but it makes me extrmely tired! I lived on AZO and Uristat as well though, good luck!

[tduck]

I too have had all the problems most of you speak of. Mine started with a yeast infection and now a year later I have been diagnosed with chronic pelvic pain. I have seen many differant doctors. I have been helped the most by reading the book "A Headache in the Pelvis". I highly recommend this book. I do regular physical therapy and I am feeling better. It is a very slow process. I think alot of you will get answers from this book. Good Luck to all.

[janesarah]

Hi all,
I was doing a google search on "bladder presure" and I found this site. I'm 34 female (from the US, never been preg, no children, weight was around 165), been with all the same symptoms as everyone else. It started with what felt like very bad craps one night all night i was laying on the bed in pain, went to family dr. they done ultra sound, found small cyst. then i went to my gym, all test came back fine, went back a few times with pains in my belly, She sent me for more ultra sounds, found cyst put me on birth control pills, still had the pain (waited afew months) then went back, she done more utlra sounds and viginal ultra sound and they found fibroids, weight was at 199, she told me she could put me on meds to force me into early mentapause (haven't done this yet), wouldn't give me much of anymore info, but suggested i go to a gast.dr., he sent me to do some blood work & a ct scan.

I have pictures of my CT scan (many) to share if anyone would like to see.


When i first meet him, i had done some reading on the internet, and i did ask for this CA125, He Laughted at me. Didn't say anything. I felt like I was stupid. He didn't do this test.
After the blood & CT test came back fine, I went back to the gyn to find out what do i do now. I'm having this horriable pain from my ovaries. She made me wait 1 hour in the waiting room and another 1 hour in the office room. Finally she comes in and she has nothing to offer me or suggest, but that i'm alittle overweight and i should go to this Gast. Dr ...  And i looked at her and told her she just sent me to him. I didn't want to go back to him he was very rude,, She was like Did I send you to him? .... At this point i felt hopeless, sad and depressed, confused...

I recently married a French citizen and we are living in France, once there we went to the Family, Gyn, then another Gast. where i allowed him to do a colonoscopy, we done the surgery and everything was fine. :/ I was really wishing they would find something and say " this is what you have and here is how we fix it" :/  

A year and a half later since it first appeared i'm still here and now the blatter pressure is starting to get stronger.

I also would like to mention and see if anyone else has any pain in the lower back leg. Mine is showing some veins and ache with pain in the afternoon.
Also i'd like to add that in the past 6 months, my belly got big and now i have this big lovely stretch mark. :(  (My belly went down some but it coming back again)
Also my desire for sex is gone :( I use to have a very high desire for sex and it also hurts during sex.

Medication i'm on:

(regular medicine)
Seroplex®/Lexapro® for depression,
Ambien to sleep and it also helps with the Pain at night.

(medicine for my belly issue)
Macrogol 4000 (Forlax 10g): softens my stools
Trimebutin 200mg: For spasam

[janesarah]

I have pictures of my CT scan (many) to share if anyone would like to see.

[Hayley723]

What does your ct scan show??

[janesarah]

There is differnt images, from different views.
The paper the doctors wrote up reads:
Ct of the abdomen and pelvis without and with contrast.
Abdomen liver spleen are normal in size, gallbladder is normal, there is a small hiatal hernia. adrenal glads are normal. Normal Pancreas, Kidnesy are normal in size and configuration, demonstrating no hydronephrosis. ** then it say ** on image 29 Study demonstrates focal irregularity along the posterior cortex of the right kidney mid portion, tthat likely represents a scar from prior inflammation. No other abnormalities are seen in the kidney.
The stud shows uterus that a slightly irregular uppearance suggestive of multiple heterogeneous in appearance fibroids. There is normal appearance of the left adnexa and left ovary. On the right side the study suggest the presence of an ovarian cyst.

Alos the Pelvic Ultrasound Says atleast 2 Fibroids measure 2.2x1.7x2.5 and within the lower uterine segment thier is a 2.5x2.1x3.8 cm fibriod.

I don't mind sharing my images if it would help someone maybe could compare their own to help someone somehow. email: janesarah08(@)gmail(dot)com

[Hayley723]

Oh ok, thanks...I don't have mine anymore, but thanks anyways!!

[Jamie1023]

I was given Bactrum by my urologist twice a day for two weeks. This took all the pain completely away after about 10 days on the medication. However, once it was finished the pain slowly started again. I went back to my urologist and he diagnosed me with Urethral Syndrome. I am unsure this is a correct diagnosis since the pain seems to go away when I'm on medication. Because my urinalysis and urine cultures keep coming back negative, it is very hard to get a doctor to perscribe bacterial medication.

Questions: My urologist found 0.1% blood in my urine and said a tiny amount such as this could be normal, does anyone agree? I always thought any amount of blood found in urine was a sign of something more serious.

I am getting married in 4 months so you can imagine how upsetting it is that this all just started. We want to have children immediately, can anyone tell me if IC or Urethral Syndrome could cause infertility?

[Hayley723]

So far, they say it doesn't affect fertility. I had very small blood in urine as well, and at first was told it's "normal" which I didn't believe. Later they found a bacterial infection, which was treated (prob way too late), and now I'm told it's IC. So don't settle for no answers, they say 90% of people who are told their blood in urine is normal, end up finding out it was caused by something later on when it's gotten out of control!! Being that it's such a small amount though, try not to freak out, because it's definitely not life threatening, but you deserve answers!! Good luck!

[annekdav]

Hey guys.

Glad to know i'm not alone. I know no one seems to have any definitive answers... but i think i'll feel better if i just put this out there to other people going through the same thing as me. I need to speak to someone who can understand.

I noticed a lot of you have said you feel like you are going crazy, or are worried people think you're making it up or that it is all in your head. I'm at the point now where I'm even starting to question if it's in my head. I'm really depressed and I'm worried that people think the same things of me. I've only had it a month - some of you have had it much, much longer. My heart really goes out to you, but at the same time i feel no comfort in knowing that I may end up the same way.

I've had frequent urination for a month now. This is the start of my 5th week. No trace of UTI or other bacterial infections. No STDs. Vaginal swabs came back normal. I've had blood work done, and nothing presented out of the ordinary. I just had pelvic and renal ultrasounds. The woman at the time it was being done said she spotted nothing unusual. I pick them up in two hours and i prey they've found something. Anything.

My symptoms - I woke up a month ago, with an intense urge to urinate. Just out of the blue. Although I did note that, the night before, I had gone to the toilet and my urine smelt sort of like... chicken. But only that one time. Once i did urinate, the urge didn't go away. I felt like I couldnt fully void my bladder, although I had. I naturally assumed this was a UTI, given the smell and urge to urinate. But that has turned out not to be the case. Although they found no UTI, she still put me on antibiotics just to be sure. They had no effect. White blood cells show up in my urine but thats about it.

My urine smells normal now and i experience absolutely no pain what so ever. There is no sign of infection. I can pass urine normally, it's just i always feel like i really need to go. Some days it is better, other days it is worse. I have noticed it gets worse some evenings. I also experience nausea some evenings, and severe fatigue, although it seems to have subsided. I am not pregnant and have done several pregnancy tests to be sure.

I do experience back ache. Like muscle ache - it seems to change place on my back, I cant really pinpoint it. Some days it feels like my whole back, others its distinctly upper back, other days it's lower. At one stage I had all over muscle ache. My chest is also quite sore, like muscle ache, and my breasts are tender and sore. At each side of my breasts, under my arms, it is really sore. The muscle ache really runs me down and everything seems like too much effort.

[Jamie1023]

Well, after seeing three Urologists and two Gynecologist I finally figured out what my problem was... an ovarian cyst - in particular a hemorrhagic cyst, which tend to grow larger and can press against the bladder causing pain and frequest urination.

I am sharing this with everyone because this discovery came after being diagnosed with Vestibular Adinitis and Urethral Syndrome - neither of which I ever believed I had. After doing much research online I learned that other health problems like ovarian cysts, ovarian cancer, endometriosis, fibroids, muslce tension, etc. can cause urinary like symptoms. I took all my research into my "second opinion" Gynecologist and asked for a pap smear, a vaginal culture, std testing, pelvic exam, and ultrasound. I have to say, you cannot expect these doctor's to do all the work. You are the only one who knows your body! It is best to research your issues and pass the information you learned onto the physician. I did this with each new doctor I saw and I was thanked more than once for writing it all down.

I first started out at my Urologist who reviewed my urinalysis and urine cultures, did a muscle tension exam, and prescribed UTI antibiotics. After about three weeks I was able to tell the medication was not making a difference and finally could put to rest the thought of a UTI. I considered attending physical therapy, but was told I did not need it. After all bases were covered, that is when I began to look at the gynecologist issues.

I can sympathize with everyone out there who is dealing with these symptoms. It took me 13 weeks to narrow down the problem and to be honest I thought I had ovarian cancer because it sounded a lot like what I was experiencing. DO NOT give up hope, there are answered for you out there and you deserve them! I was to thank Hayley723 for telling me I deserved to know what was wrong - because it made me fight harder to find an answer! Do the research, find the best doctors you can through recommendations online or given by family/friends, and stay positive! Even doctor's make mistakes, if you think their diagnosis is wrong, there is no rule about seeking out all other issues just to be sure. Even in the extreme pain I was experiencing I knew it could always be worse. Take care everyone!

[Hayley723]

Oh nice lol! You have an answer and hopefully are feeling much better!! Well said!

[mountainbluejay]

wow.
I finally feel like I am not alone, nor crazy. thank you everyone for sharing.
My history begins with chronic UTI 's since 19. I am now 33 and have not had a diagnosed UTI in about 10 years, but over the past 7-8 months I have had constant bladder pressure (for the past 10 years it has been mild to severe, now it is constantly severe).

My stomach has gone from firm and toned to constantly bloated, I have gained 30 pounds and people ask me "how far along are you?"
The exercise that used to keep my belly firm has no effect.

My abdomin (abdomen) feels swollen, I do not like it being touched because any pressure on it is uncomfortable. I lost my sex drive completley and it is VERY painful to have intercourse...my boyfriend has been very supportive but it is tearing him up inside, I do not know how much longer he can take it!

I have gone to the doctor for my UTI symptons, always clear, with the white blood cell count being a little more then usual, I have had hormonal testing, full physicals, std testing,  blood samples for just about everything, and last week I had a pelvic ultrasound because when my doctor was doing a pap, I was in SO much pain, she could barely finish, in fact she did not finish, she said she could not get to my right ovary....HHHmmm?
so I went to the ultrasound, and I had to urinate so many times while trying to hold the water in...finally the lab tech sent me out during the exam to relieve 3/4 of the urine because she said i was so tense from trying to hold my urine in that she could not do the exam on my belly because I was pushing it out to try and combat the pressure of the ultrasound device.
They have not called me back. i am supposed to believe that this is a good thing.

When she was doing the  ultrasound exam (after I had emptied my bladder) she too could not get a clear picture of my right ovary. I am intrigued by this and wonder of it is part of the mystery.

I used to get Kidney aches, and always try to keep my kidneys extra warm in winter, (i tie a scarf around my upper waist, because I heard that it may help)
I live my life around how often i need to urinate, it affects everything I do, and it is making me irratable, depressed and anxious. My co workers can not believe I need that many bathroom breaks, but every time I pee it is ALOT, and within 15 - 45 minutes I have to go again. It always feels full. I can always pee.

after reading all of these posts I have made a list to try and force my doctor to test me for all the things that could possibly be the source of this painful reality. thank you all and I wish you well! I will update you...
and i think it is important for all of us with SUCCESS STORIES to make sure we follow up on this forum, to give others hope that there are ends in sight....
thanks
be well

[bjkrt]

I have found some relief so I wanted to post in case it might help someone else.  My history is in another post on this same topic if anyone is interested.  Basically, Ive had UTI symptoms for about 14 years, off and on, but almost constant for the past few months.  But no infection.  I did have surgery a year ago to remove cysts and severe endo was found but I had no idea.  I have no symptoms of that.  I was ok for a few months after taking 30 days of Bactrim DS and then the UTI symptoms were back.

I see a Pelvic Pain Specialist now for this problem.  He put me on Bactrim DS twice a day for ten days and then one every night, INDEFINITELY.  He gave me refills for a year.  He also gave me UTA capsules which are similar to Pyridium in that they are for the pain and discomfort but they also have an ingredient for bladder spasms.  They work MUCH better than Pyridium for me.  I started the Bactrim about 6 weeks ago and I havent had any pain or discomfort in about 3-4 weeks.  I know that taking antibiotics all the time is controversial.  Most drs worry about resistance but I was so miserable that I dont care about resistance.  I now have a normal life.  

I know that the OC board members probably hate this topic being on this board but somehow it ended up here and I couldnt find it if it moved now.  I know it is off the topic of ovarian cancer and it is an old topic and they hate when those pop up.  I came across it when I was preparing for surgery for ovarian cysts and was worried about possible OC.  In case it disappears, anyone is welcome to email me about this stuff at ***@****.

[elvira333]

I've had frequent urination on and off (mostly on!) for almost 8 years now.... I have a simple cyst around 3.5 cm..apparently small by comparison to some...  but the specialist and dr don't see this as a problem with the bladder pressure.  I've been doing all the exercises to "strengthen" the pelvic floor as they seem to think it is a weak bladder that is causing the problem of frequent urination.... . but after doing the "strengthening exercises"... this does nothing to reduce the pain and the bloating... so I think that the problem stemmed from the pain of the bloating and pressure on the bladder consequently causing me gradually to urinate more than is necessary.  I'm sure the drs seem to think it's all psychological (but the look of my bloated stomach tells me otherwise !) .... my stomach feels like a balloon ready to pop most of the day, sometimes waking up it is very painful.  I am waiting to go back to get another scan to see if the cyst has reduced or remained the same, because the pressure on bladder is not reducing.  

I have actually read about interstitial cystitis; this is possible a contributing factor, but I also have pain where the cyst is and it gives me very sharp and radiating pains also down to the thigh....so I wonder if this is contributing to the pressure as well...

[linda1234110]

ultrasound showed endometrial hyperplasia, d & c fixed it, felt fine.  now 1 1/2 yrs. later symptoms have returned.

[kali77]

I have recently been feeling a lot of pressure on my bladder. It doesn't go away and I feel like I should be able to go to the bathroom more than what I actually do.. but just can't. I had a ruptured cyst about two years ago on my ovary. do you think it could be related?

[apple27]

i have recently been feeling alot of pressure on my bladder,the need for constant empting the bladder and discomfort, sometimes even nausea, i have also been feeling tired. I have had a ovarian cyst removed 2 years ago which was 6cm, so i am having a altrasound tomorrow to see if it is ovarian cysts, the altra sound should also pick up anything else. I cant believe alot of women have the same discomforts and doctors dont pick it up, i have learnt if you want something done, any test or scan you need to ask the doctor or you may not get it.

[lindyloo43]

Hi, pressure on the bladder can be caused by fibroids. I had 3 large fibroids and my uterus was the size of a 16 week pregnancy. i also had leukocytes(white blood cells) showing in my urine but no bacterial infection.I also suffered with constipation and back ache.A ultrasound would pick up fibroids and it makes sense to have this test first before being referred down the urology route.I ended up having a hysterectomy.
If symptoms persist keep going back to your GP until something is done, you know your body better than anyone else!

[MaryMcE]

OMGosh....I AM NOT ALONE!!! Thank you all for your posts and sharing your stories.  I have had bladder pressure and bloating and urethral discomfort for over 3 months now.

I had a UTI in June (arrived on my 25th wedding anniversary).  I was on Macrobid, but the pressure was still unreal after 4 days so I went on 3 days of Cipro.  Still huge pressure.  My dr. thought my uterus was enlarged and sent me to get an ultrasound - they found nothing.  I think what she thought was my uterus was actually an inflammed bladder.  She sent me to a gyn & a uro.  Gyn said I am perfectly healthy.  Uro says it's just my UTI having trouble clearing up.  I was on Vesicare for a bit.  He says it is not IC as my white count is normal.

I have followed the IC diet though, which has helped a lot - so some of you might want to try it.  It was really hard to give up coffee, fruit, alcohol, chocolate - but when it makes your symptoms better it is worth it.  I also have used a heating pad (sometimes I sit on it, sometimes I put it on my lower abdomen) or an ice pack (same).  I think that takes the swelling down of the bladder (that is why you get the pregnant look).  If you google the IC network you can find the diet pretty quickly.

I pray that we all find answers and relief!

Mary

[MaryMcE]

Okay, this is for others who are searching for answers about this topic.  I had my hormone levels checked and my estrogen is way low so I am now on estrogen supplements (vaginal).  I did some research online and here is some info I found.

Low estrogen

Low estrogen starves genitourinary tissues, leading to fragility, dryness and reduced resistance to infection. This would show up as pain or even bleeding with intercourse, excessive vaginal tightness, failure of vaginal incisions to heal, vaginal or labial itching and pain (especially upon washing with soaps), multiple vaginal infections like yeast or repeated urinary tract infections, sensations of urinary tract infection without bacterial growth, and weakening of genitourinary tissues leading to incontinence (involuntary leaking of urine, especially with "urge," laughing or sneezing) or prolapse ("falling").

I wish I had seen this ages ago as I have the vaginal pain and the sensations of uriary tract infections without bacterial growth.  It would have saved me 4 months of searching for a solution to my issues!  Anyway, I have been on the estrogen only 4 days now, and I think it is a bit early to tell if it is making a difference or not, so I'll keep you posted.

Mary

[Karrr]

I had these symptoms, sudden consistent pressure on bladder, and they found a huge fibroid that had been growing for many years, and took it out.  They dont' always show up on ultrasounds right away.  The fact that some of you have not been checked for this is unusual.  An ultrasound can show it, but at different times of the month, it hides.  They are almost always benign and don't always have to be removed.  See a better doctor if no one has suggested this.  Thanks!

[goodgrielf]

Hi everyone,

I've only really browsed this topic.  I had ongoing bladder pressure for over two years with frequent bladder infections and many antibiotic treatments. I was constantly in pain and having to go pee. Eventually I got an ultrasound and they said nothing was wrong.  I totally recommend getting any and every test you can for your health and piece of mind.

In the end I went to a naturopath. I told her my story. She gave me super-potent acidopholous and another treatment called D-Manos.  Her perspective was that all the antibiotics I was taking for the bladder infections were cleaning out the good bacteria which meant I was more susceptible for another infection.  I was a bad cycle.  I did the naturopathic treatments and my infections never returned.  I do feel that my bladder is still irritable and have found it is linked to my diet (caffeine, sugar, alcohol).    I'm still not entirely satisfied with my bladder's condition and this thread makes me think I should be taking bladder pressure more seriuosly but I do recommend seeing a Naturopath at some point if no illness has been detected and you're doctor is unsure what is wrong.

[Musicfan32]

Hi everyone

Now that I am reading everyone's posts I don't feel so alone in this matter.  Last year in June I started experiencing UTI symptoms went and got my urine tested 3 times all negative and each time they gave me antibiotics and same thing, it didn't work.  They tested me for diabetes and STD's and all negative again.  I finally requested a ultrasound and they found cysts and fibroids, and stated that is why I must of had monthly painful periods.  So, I adjusted my diet and did what I could and symptoms slowly went away.  During this time I was also working a job that caused a lot of STRESS and thought perhaps this might be making it worse?  Well, ended up quitting that job and started a new one.  Then a month after I started this new job, I started feeling symptoms again, like I had a UTI.  I went to the doctor they tested my urine and for diabetes and all negative, then asked them to test my hormone level and nothing??  I then asked for another ultrasound, during the ultrasound she said there was no cyst it was gone?  Why am I still feeling like my bladder has so much pressure?  Is it a fibroid?  So frustrated, going back to the doctors to get another ultrasound to check again to see if it is a fibroid pushing on my bladder.  

[Ann1984]

I am so glad I found this site. I am 25 mother of 2 no health problems until all of this. Jan 15 2009 I had my annual exam and the doctor didn’t notice any thing five days later I started vomiting and had diarrhea, I thought I had gotten the stomach bug my husband and daughter had. After 5 hours my husband took me to the ER I was so weak I couldn’t walk. I had urine and blood test and the doctor said my white blood count was really high and I had a bad bladder infection so I had a bag of IV antibiotics and 2 bags of fluid bc I was so dehydrated. The next day I was fine and I didn’t understand how I could have had a bladder infection w/o pain much less a “really bad one” with out any symptoms. Five days later I stared having a dull pain in my lower back and side then came the frequent urination then SEVERE pain and feeling like I needed to pee nonstop. When I would go to the bathroom I would pee A LOT not just a little so I made another doctors apt and was told I had a small amount of blood in my urine still and was put on another kind of antibiotic for 10 days and given tramadol for pain. After 6 different types of antibiotics and being on antibiotic for 3 months the doctor told me I probably just had a vaginal infection from all of the antibiotics I had been taking and told me to go see my OB/GYN.  I never went bc I don’t have insurance and they wouldn’t bill me and they said it would cost $250+ to be seen so I called my family doctor back and since I am not working right now bc of a layoff (my husband was laid off form his job 2 weeks after I was) and since money is low right now and no jobs in town she called me in more pain med and some amitriptyline (is also for depression and is used to ease chronic pain with IC) after I started my second month the bladder pain went away but I was still left with the frequent urination. So here I am 7 months after it all started with more frequent urination, weight, gain, cramps, knife, stabbing pain off and on in my left ovary, and spotting to bleeding off and on more often after sex. I am on seasonique and I am wondering if maybe I have a cyst now. Can you get cyst while taking birth control? I have been on this pill for over a year and never had these knife stabbing pains in my left ovary... never spotted ....after my 1st pack my periods went form 7 days to 1 to 2 days.. BUT on week 5 of the pack I am on now I started having these pains and spotting/bleeding off and on so I have waited to see if it would go away and it hasn’t now I am on week 13 and the pain is starting to get worse. I have been doing exercise in hopes it would ease the cramps and now I have caused pain in my left hip lol I m just wondering when this will end.......my husband is at a temp job that pays the bills and buys groc but I cant work bc we have 2 small kids and daycare for the both of them would be more than min wage would pay me here. I am still staying at home with them and w/o me working I have no ins and no xtra money to go to the doctor. My mom took care of my kids before I got laid off but she has had prob with her heart since then and she is afraid to take care of them now bc she is afraid she may have a heart attach while she has them. I have family planning medicaid that covers 1 exam a year and my birth control so I can’t use it again until after Jan 15 2010. I am starting to get scared. I am thinking about going to the ER it may cost me more and at our hospital they have financial  aid based on income and family size that will cover part of the cost. I have had to use it once before and my ER bill was $1000 and they paid $300 of it, then they just bill you the rest and as long as you make a payment of at least $10 a month they don’t hound you for the money. Im just glad that I know that other ppl are going thru the same thing that I am and I know Im not a freak for having pain like this. I am glad I have something to show my husband bc he doesn’t understand how I in the beginning I was going to the dr once a week and she couldn’t find a cure for it and how I can have so much wrong with me at one time. My husband NEVER gets sick the last time he was sick was 6 yes SIX years ago. He is one of the lucky healthy ones he just doesn’t understand how one person can be sick all the time. He read the articles on here and now I think he realizes Im not making it up and I am having more than one prob and I am not alone.

[doc_M1MZ]

I think the UTI and the vomiting attack was so connected, as there is organisms that may cause both of them simultaneously and the most famous example is E.Coli.
And because of the fluid you lost in these attack you were not able to walk and once replaced you was OK , and urinary symptoms may be delayed till organism multiply enough to cause it and these called asymptomatic bacterurea,blood in urine is also expected with cystitis(bladder inflammation) so don't panic.
and about antibiotics the course for UTI should continue at least 15 days of Amoxicillin or Cephalosporin,and within you should eat well especially vegetables and fruit for antioxidants and vitamins,meat for metabolism and rebuilding your immune system and fluids as much as you can drink to increase your diuresis and urine output.
And about your left (ovarian) pain,all hormonal contraceptive pills that suppress ovulation including Seasiquine is concisly decrease the risk for ovarian cyst and neoplasms(cancer) as well,but you could repeat Ultrasonography for more assurance,contraceptive pills too increase vaginal acidity due to estrogen content which is protecting against a lot of organisms including E-coli there is exceptions (like monilia but it's characterized by itching and whitish thick discharge) and for spotting explaination it could be explained by pills to as it causes (cervical erosion) that cause the contact bleeding. but for more assurance you could make cervical (Pap) smear. I suspect these pain and bleeding are due to pelvic congestion because of the UTI which i think is not erradicated completly so you can relief the PAIN not the DISEASE by (Glycerine Icsthiol pessaries) it really helps so much, you can search the web for its trade name in your country and use it put you MUST relief the cause of congestion which i think is INFECTION. you could use antispasmodic like Buscuban too.
MY BEST WISHES OF RAPID CURE.

Doc/ M.MZ

[Chicone]

I too had chronic bladder PAIN flareups( infections I thought )for many years. Finally a good GP told me I did not have an infection something else was going on! Sure enough a urologist test showed I had interstitial cystitis.

The remedy I researched and used was marshallo roots made into a pale yellow tea which I drank daily for a year. I have not hav ONE flare up in over 2 years...
Ebay has a seller of this root.
The best!
I KNOW the suffering involved in chronic excruiting pain flare ups

Chicone

[happysue]

after reading all these comments, I noticed so many of us have seen doctor after doctor, with no cure, just recommendations of more meds and more tests. I have been thru the same thing, spending so much money on dr. visits, to get answers that never found what the prob was. the drugs only cover the symptoms not solve the problem. the end of last year i had a urinary tract infection needing 2 consecutive doses of antibiotics. this whole year , i have had bloating, gas, stomach pains, chills- one doc wanted me to take mylanta, another recommended dozens of tests and more drugs. i started paying attention to when the symptoms occurred and what i was eating that day. as i eliminated certain foods, the symptoms started disappearing. I stopped eating beans and the gas pains stopped. i stopped eating walnuts and almonds and the stomach pains stopped. the day after i went to doc, complaining of daily diarehea(his answer was take this drug and lets run all these tests), i stopped eating peanuts and the diarehea immediately stopped. the other symptom was frequent urination, and soreness in the bladder area. i couldnt sleep thru an entire night, because every few hours i was waking up to pee. i had been eating alot of tangerines(citric acid), i stopped those and it seems the urinary frequency has slowed down. today i ate alot of onions and immediately got the soreness back in my bladder and the need to pee.
i think you should definitely consult with dr's if you are experiencing problems, but if you go to dr after dr and still don't get answers, then you need to be your own doctor. take a look at your diet, maybe there are certain foods that are irritating your insides, maybe the drugs you are taking are causing problems. the dr's i went to were  not trained to ask nutrition or lifestyle questions. if the doctor had just asked what i was eating, instead of prescribing drugs or tests he might have realized it was the peanuts causing the diarehea.

[Blondie1971]

Wow, I have been reading everyones comments and feel better knowing that there are others with similar issues. Bad that not all have found answers.I think all of the reasons can be valid ,maybe not the same answer for everyone. It woould be nice to have someone say yes this is what is wrong do this and then thats it. I have had UTI's all my life off and on when Iittle for a few years and then not again until I was almost an adult17-18. Probably about the time I met my husband of almost 20 years now.I would have symptoms  and sometimes there was infection and sometimes not. The urologist had me on a long term antibiotic for a while after I had my children when they seemed to be flaring up again. It seemed to help a few years later I had a kidney stone that was lodged and they surgically removed. Off and on I would get them but nothing constant.So about a year ago I started having pressure on my bladder and of course thought UTI. went to the Dr. and it was negative the pain went away and soon after went for my yearly and everything was fine but I kepy getting pressure and occasional discomfort on my left lower side like in the inside crook of your leg . So tested for another UTI aound Dec. this time positive. So I am thinking wow maybe I had a really mild one all that time took the meds. and it went away . For a bit. Finally in Feb. took myself to the ER. They did a CT scan and said we think you have a fibriod. Ok that would explain the pressure . So we were in the middle of moving and when we got settled in went to my new gyn and she did an external and internal ultrasound which showed not fibroid but a large chocolate ovarian cyst which I thought was funny. 9cm at the time . they removed it laproscopically july 27th it was 17 cm by 8cm at that point. wow I know. she said everything else looked good . she biopsied it which was benign which she was 99 % sure it was anyway. Everything else looked really healthy . the pressure on my bladder is not all the time now or the frquency but is still an issue . She said my bladder was not prolapsed and they did an ultrasound of it also and looked good. she said it might take some time since my bladder was being really pushed on. And I might have a sensitive bladder. It definetley seems worse around or prior to my period. She said if it does not improve we could do the test where they fill your bladder , but she wanted to wait a bit. Excersising also I am not extremely heavy but do have some extra.which will add pressure. So I did not really say anything profound but people that have not had this issue do not understand even if they are understanding. Any comments are welcome . the posting about the marshallo roots was interesting. Thanks

[dancesilly2]

I too have bladder pressure and have off and on. I've been diagnosed with a low GFR and have compromised kidney function, and I thought that that was causing my urge to urinate. But I was told it wasn't low enough to cause these symptoms so I had many other tests done. It wasn't until I had a gyn internal exam that my doctor discovered that I had a rectocele. This is like a herniation inside when your colon presses on your uterus, vagina and bladder. It is very common for women who have had children and/or are going through menopause. It is especially noticeable when I am constipated and the stool backs up this causes pressure on the internal organs. I also have low back pain and left side abdominal pain. It is all extremely annoying. There is surgery that can correct a severe rectocele and also there is a ring that can be worn inside the vagina that props up the colon. If anyone out there has had children even at any age this can happen. If you are experiencing these symptoms but your UTIs are coming back normal as well as ovarian CTs,etc, get checked out for this problem. It can be very painful as well as very aggravating!!

[brandonsgirl3]

i feel like im crazy, if i hadnt had 3 blood test saying i am begitive for preganacy (pregnancy) hormone i would believe I am nine months pregnant.  An no im not exagerating.  Swollen tender breats, occsional fluuter and pressure in abdomin (abdomen), i am a plus size woman so i can hide a prgnancy but it appears to people i am pregnant.  I have recently in the last two weeks become frquent urges to pee and pressure .  I feel things move in my abdomin (abdomen), some say its gas but it feels like a jab and rolling.  Ps i have had 2 children to term and just feel crazy, they are going to do a biopsy for uterine cancer but no one will listen to me to look at the region above my hips, preganacy (pregnancy) would be fine but not choice at this time of life since the childrnes dad has been gone almosyt nine months, so i dont think its one of those cases where you want it so bad your body mimicks it.  PS i am very uncomfortable cannot lay on my stomach it feels like a watermelon is in there.  Back ache, occasional cramps that radiate around from my back, i just want to know what to look for so i can suggest things to my dr.'s who all seem to think im just a whiner who is overweight and i should lose wight and it will go away.  I am overweight and need to lose it but come on what does that have to do with all the uncomforatble pain and pressure.  

[vulcancat]

I have been having severe sharp pains in my vagina and rectum for the past two weeks. Urine Tests and Swaps have come back normal. Now I am having a pressure feeling in my bladder, everytime I pass urine, and when laying down on my stomach. What could be causing this? I have polysystic ovarian syndrome and insulin resistant pancreas but am not taking any meds for them. Any help ladies? I hate having repeat visits to my doctors and I don't see my endo. til March. I am 21 years old.

[Angeleyes1015]

Hi, I've been having pressure in my bladder since the beginning of Oct. I went to the ER then and there was no infection. I am constantly having to use the bathroom,when this first started i also had burning an itching. Then it went away  for a few weeks an came back. Without the burnung and itching I have alittle bit of pain in my back but that's not unusal for me.This constant urge to use the bathroom is driving me nuts. Does anyone know what ths could be?

[samantha425]

It is so wonderful to read all your posts-I thought I was the only one in the world going through this and it makes me feel much better I am not alone.

I am a 22 year old graduate student and I have had what has been diagnosed as 'chronic UTIs' for the past 3 years.  In the past 4 months I have been on 3 antobiotics without any breaks, even though every culture came back negative (besides one), and I still have UTI-like symptoms almost everyday and I take pyridium and hydrocosamine almost daily to ease the bladder pain.

I have seen a urologist and my school's gynocologist many, many times over the past three years, and have been told over and over again that I just have chronic UTIs.  They have tested me for every possible bacteria or STD which could be causing these symptoms, which have all come back negative.  My period has been incredibly irregular even though I have been on the pill for 5 years.

I went to see a new urologist a few weeks ago and after culturing my urine with a negative result, he ordered a ultrasound of my kidneys and bladder region.  I just got the results today and they found a complex mass (both cystic and solid components) on my ovary.  The urologist told me this was out of his scope of expertise so I have made an appoint with my gynocolist for when I return home next week from school.  

From reading ya'lls posts it seems like maybe this cyst may have something to due with the constant pain and pressure I have been thinking are UTI symptoms.  Does anyone have any advice or experience they could share so I can make sure I am taking the right medical steps? I find myself secretely happy that maybe I have FINALLY find the reason behind all my pain, anguish, uncomforte, and annoyance caused by my urinary symptoms.  It has also put a great toll on my relationship with my boyfriend, as every doctor has told me intercourse will make the pain worse, and I have abstained from intercourse for the past few months, but when I have had it, I have had intense pelvic pain which I thought was related to the UTI.

Thank you so much in advance, and again I can't tell you how nice it is to hear everyone's situations which seem so similar to mine!

[nicksgirl03]

Thank god I  found this site! I am 25 with three children and I have been to the doctor for the past four months with all testing coming back normal. I feel like I have to pee right after I pee I have abdominal pain and I feel like I have no energy. My family thinks it's all in my head and they don't want to hear it anymore. My mom tells me I'm too young and healthy to have anything. I'm so glad to hear that some of you are doing better. Im going to my obgyn next.

[br434]

It's great to know that their are other people out there who understand what's going on with me. It started almost two years ago, it would last for a few weeks and go away for a several months. This time it has lasted for over a month now with relief only lasting a day or two. I have had several coulture's, all were negative. I have had blood tests done twice, and several pelvic exams. When I see my gyne first week in Feb, I am going to insist on a pelvic and transvaginal ultrasound. I am making an appointment to see a urologist tomorrow, because I am tired of going throught this. I have been experiencing pubic area pain that is either dull or shooting, and gets better and then worse through out the day. No pain or urination when I am sleeping, but once I am awake the symptoms begin within a few hours. I have also had strep b and bacterial vaginosis in the last six months which was really when the symptoms began to get worse. I pray that everyone can find some relief from their symptoms so they can get on with their lives pain free.

[ShaixGirl]

I've read almost everyones post & Im having mixed emotions. I'm glad that I am not alone but really scared that no one seems to know the problem. I am 19 years old and have 4 UTI's since I was 16. I'm having the same symptoms as everyone.  Pressure on my lower abdomen and frequent urination.

Sept. 1, 2009: UTI, prescribed  Cipro & Phenazopyridine
Jan. 5, 2010: UTI, prescribed Cipro & Phenazopyridine for 5 Days.
Jan 12, 2010: I went back because I was still having symptoms. I did another urine test & it came up negative, so did the culture at the lab. My doctor perscribed me Phenazopyridine for the pain.
Jan 21, 2010: I went to the wellness center at my college to do a STD screening, did a urine test and they said I had a lingering UTI so they prescribed me Cipro but put me on it for 10 days.
Jan 29, 2010: I went to my regular doctor because I was still having symptoms and was now experiencing upper abdominal pain, I did another urine test. Test came back negative. I then went to get a CT scan, nothing showed up.

I have an appointment to see a urologist in a couple of days, what should i expect? what should I ask?

[CindiMo]

Wow, I thought I was the only one, thats how you are made to feel. I know this pain & annnoyance to be very disruptive. Have been having the off & on UTI symptons, test came back neg, GYN. nurse told me to try my family Doc., I told her it seemed Gyn.(like pulling teeth) related. She said she would talk to my doc. Heard back later today, & doc recomended a ultrasound. I go Thurs., will post results to let you know outcome. I feel for all of you, you have to experience to know the streess this causes.

[bambi246]

I am so glad I found this site.  I am a 44 year old woman.  I have had endometriosis since I was 14.  I suffered with it for years before I was properly diagnosed (sp?). Fast forward to 2005.  I had my uterus and cervix removed. I had to keep my ovaries because I cannot be on hormones because my mom had breast cancer and supposedly hormone treatments put you at risk for breast cancer. I had releif from pelvic pain for about two years. Past couple of years of been terrible pain.  Now I have pelvic pressure and frequent urination.  It feel like my bladder got caught in a bear trap. I am doubling up on tylenol 4 with codiene. Last month my family doctor told me it's probably a nodule from my endometriosis. He did no exam. I, too, have to plan my life around having access to a toilet now.  I have an appointment on Friday.  Will let all know how it turns out.

[Lisa04R]

Wow... its made me feel a bit better just reading this . I have the same symptoms as most of you.. Frequent urination slight pressure on the lower abdomen. Also strangely enough i feel im constantly dehydrated and no amount of fluids will quench my thirst. My tongue always has a coating over it mostly yellow anyone else experiencing this? Ive had blood tests.. also ive had a lot of UTI's since the age of 15 im now almst 20 and have this problem. Its making me feel down and today i went bk to the docs who tested a sample an said their sending it away to the lab to be analysed they said it has an increase of white blood cells in it, they also said i could have bladder stones , IC , some other conditions. im going out of my mind with worry thinking i have IC. its making me really ill .

[Bartsboss]

I am so pleased that it is just not me that is suffering!!!  After a course of antibiotics for a chest infection,  I have have a constant urge to pee but when I go I just pass drops.  I am also suffering with a constant full feeling in my bladder but i know it is not full!!!  :o(    I have had 2 lots of antibiotics for a UTI but to no avail!  The last dipstick test I had was actually negative but the doc prescribed antibiotics anyway.  I am also suffering with itchiness, burning and swollen labia so I am wondering if it could be a yeast infection - don't know if any of you on here might have yeast problems?  Yeast/fungal infections can cause frequent urination if the pee opening is inflamed?
Also, on the UTI front have you heard of Waterfall D-Mannose which is supposed to be excellent for UTI and the urinary area.
I am feeling very depressed about my condition.  I really don't know how the people who have been suffering for a time goes on.........I don't think I could handle it.

[seisui]

I've been having a lot of discomfort for about three months now. When I first went to a doctor while on vacation he diagnosed it as a UTI even though I was taking those bladder numbers (not sure what they're called, I got them in the States but I'm from Canada) which I learned later made the test invalid. Went to two walk-ins, had two more tests, and as soon as I told them I had been diagnosed with a UTI previously they passed it off as just stubborn left-over symptoms.

Finally went to my regular doctor and she sent me for an ultrasound, which came back negative. I know about IC and tried to stop drinking coffee or drinking/eating things with a lot of potassium or vitamin c (difficult, seeing as how all fruit juices seem to have vitamin c added!) but I didn't really notice a difference.

I'm not really in pain and it doesn't really full feel - but my bladder feels inflamed a lot of the time (not a "burning sensation"). It actually feels better when my bladder is full and starts to bother me again after I pee. I don't urinate frequently (although I feel as though I've started drinking more liquids to relieve the discomfort) and I don't have pain with sex or anything... I'm just uncomfortable all the time.

I'm going to try to go back to my doctor soon, it's hard because I'm so busy with school and work. Hopefully I'll find something out soon. It's very frustrating.

[jjjade]

I have the same problem. always needing to urinate and actually urinating alot not just feeling like I need to. pressure in my lower abdomen which hurts. I've been to the doctors a few times about this and she came to the conclusion that it was just stress which I think is not! she tested me for everything like uti, stis, coeliac disease, diabeties and other things.

[patg221]

Same problems here. I feel pelvic pressure and the need to go again just minutes after urinating. Tested negative several times for UTI. I had hernia surgery last June and endometrial ablation last October. Also have endomietriosis and four fibroids. Definitely feel some pressure/tightness at the site of the hernia surgery. Wondering if adhesions could be the culprit or is it the fibroids? Don't want to go out much and don't feel comfortable having intercourse either since I'm always feeling as if I have to "go". Doctor gave me Vesicare, which hasn't done anything to improve the situation. Driving me crazy!

[citruslove16]

Hello everyone! I am 30 yrs old and I too had UTI symptoms for years with negative urine analysis.  After test after test I went to a urologist.  Please don't think that you are crazy! I was diagnosed with  Interstitial Cystitis.  This is a condition where the lining of your bladder is eroded by acids in your food and drink.  Please look at the following website:
www.ic-network.com.  If you feel like the symptoms described match your issues I would suggest altering your diet for 2 weeks to see if it makes a difference.  Drink ALOT OF WATER! NO CRANBERRY JUICE OR ACIDIC JUICES.  STAY AWAY FROM ACIDIC FOODS LIKE TOMATOES, TOMATOE SAUCE, SODA, COFFEE, GREEN TEA, BLACK TEA & WINE.  Also try to stay away from spicy foods for a while, these things can be very irritating to the lining of your bladder.  I know it sounds weird but this has changed my life! Good luck to all of you! I hope you all feel better soon! I know how frustrating and painful this issue is.  

[TexasGirl72]

Thank God I found this site!  I've been experiencing these symptoms for 3 yrs and was finally told by my regular doc that these are NOT normal symptoms to have (OBGYN said they were).  Got into the Urologist tomorrow - Can't wait to see what they find.  I got up 6 times last night between 10:30pm and 5:50am to pee - I wonder what a full night of sleep feels like?!?!   If I get answers I will post ASAP..

[DOitUP15]

I get UTI's all the time. It's usually only after I have intercourse. But it happens nearly every single time. I've gone to the doctor and it's been true UTI's each time, one time I was peeing a noticeable amount blood and it scared the heck outta me. They found that I seem to always have abnormal urine results. They find both blood and protein, more than the normal everyday person should have. I've been sent to a nephrologist (kidney dr) and a uro-gynecologist to get it checked out, but they can't seem to find any reason for why this happens. I'm already on a strict diet due to intestinal health issues, so the dr's just gave me a list of more things to cut out since they're bladder irritants. It's frustrating and I'm always afraid to have intercourse because I know what kind of pain I'll be in afterwards =(

[booglie]

Im going through the same thing I just had a percedure that the UROLIGIST did by looking into my kidneys, it came out negative Im actually going for another test and its called a V.C.U.G. its to see if i have something that is called vesicoureteral reflux.. its when your bladder doesnt rid of all the urine which causes pressure, bloat, fever, pain,going constantly and exhaustion.. the test consists of catherizing you and putting a dye into your bladder ansd as u urinate they xray it to see what your bladder does..

[Talkertotexttwo]

Interstitial Cystitis. I had never heard of it until I was diagnosed last year. Please go to a Urologist and discuss your symptoms. It is controllable to some degree - by watching your diet and Ph levels. A diagnosis though is key. I am sorry for your suffering.

[psalms91]

Hi,
I have been having symptoms of a UTI since March 2010. I am really exhausted with this pain, pressure and worry.It all started with pain and pressure to pee. I went to Urgent Care and was told that my urine cultures were normal, but they prescribed Macrobid for 7 days. I took that and felt a little better, but still had symptoms. I went back to the doctor and they did another urine test, which was negative again. They sent my cultures off to the lab and also prescribed another antibiotic (Bactrim) for 14 days! I  was not feeling much relief at all. I was having to pee all day, and through the night and had back pain also. I went back to the doctor again after not feeling much relief. They finally did a pelvic exam and also a test for Bacterial Vaginosis and the test did show that I had Bacterial Vaginosis. I was prescribed another antibiotic (Flagyl) for that! I took that for 7 days and never really felt my back pain getting better. I just noticed it was tolerable but very annoying.
I started to feel nauseous so I decided to call my OBGYN. I made an appt and went in for a vaginal and pelvic exam. I was also tested for STD's (which I really didn't think that was a factor). My husband was very willing to be tested also, but I was not worried about that at all. Those tests were negative, I also did another urine test at that appointment, which was negative again! That was my 4th urine test, in which all were negative. I was not feeling much pain or pressure that day, so I hoped that it was going away. Last week the pain returned, after intercourse with my husband, It seems that after sex I notice the pressure. The back pain was not so bad, but it has become bad over the last week. I went to a urologist last week and he examined me (vaginally),and when he did that, I felt instant pressure and pain in my bladder! I told him that I felt the pain when he was examining me and he said that it sounded as though my bladder is sensitive or could be having bladder spasms. He prescribed Vesicare and told me to come back in 2 weeks and he will do an ultrasound of my kidneys.
Today I am in pain in my back and very nauseated. I have an appointment with my OBGYN tomorrow for my regulary scheduled pap smear. I am going to talk with my doctor about all of this. I don't know what to do about this, but it is physically and mentally draining. I have also noticed some pressure today to pee also. I don't even feel that the Vesicare is helping much at all. I don't get up to pee during the night, but in the mornings I can feel the pressure, back pain, and nausea the minute I wake up!

[shannon27ca]

I have had extreme pain and pressure in my bladder been peeing like crazy and feeling real thirsty. My doc did a urine test by stick came out positive and then sent it off to the lab and that came back negative. He put me on a 7 day course of meds that arent doing any good to me. I am going back to see my doc tomorrow and try and figure out what is causing it. I am fixed so it not prego or endametriousis (this is why i got fixed). I do have a history of overian cysts and i still have one overy left cause of my age. my doc can't see it being that.

[fueledbyfaith]

I am having the same symptoms as you all.  I've been researching all this online and am frightened to say the least.  My symptoms started back in December 09 that I can remember.  It started with sharp stabbing pains in the ovaries in which I went to the Er and they did a intra vaginal US, and said I had some fluid on my left ovary which led him to believe a cyst had ruptured.  I was on birth control for 3.5 years when I was married, but went off it bc it was messing with my sex drive and made me gain weight.  I haven't been back on it since.  Well lately here are my symptoms:

Sometimes shooting pains in ovary area, radiates to crease, groin, and leg.  Also dull achy back pain right near my tailbone (under my waist)  Sometimes seems like the area near my kidneys is throbbing also.   My urethra/clitoris was also feeling funny like throbbing or stinging.

I went to Doctor's Care, and they found white blood cells in my UA, diagnosed me with a UTI, and prescribed me Cipro, so I took a weeks worth of that.  Symptoms still not gone, but I felt a tiny bit better.   I called the office to get more pills, and they said my culture came back negative and I never had a UTI.  WTH?  So there was white blood cells in my urine, but no UTI.  

It's May 12th and I'm still having symptoms.  I feel bloated all the time in the lower half of my body.   Intense discomfort, not pain, just discomfort (something is definitely not right)  Today I have extreme urgency to urinate like every 10 minutes.  My bladder hurts.  It doesn't burn to pee, just hurts in my bladder or urinary tract.  And I've had like 4 bowel movements already and it's only 2pm.  That is not normal for me.  The last 2 were very loose.  But my bladder hurt a little during the bowel movement.  I have no idea what is wrong with me.  Ive been reading about endo, ibs, vaginal infections, appendicitis , fibroids, cancer, and I'm getting really scared.  Someone please tell me Im not crazy.  Are these bowel movements normal with all of these other symptoms?

[fueledbyfaith]

Oh yea, I forgot to mention the last year and a half, my periods have mostly been clots.  :(

[Sara650]

I've been having constant pressure on my bladder, especially at night. And after I pee, the pressure is still there when I lay back down. And I can never get comfortable...at all. I almost always have to take something to MAKE me fall asleep. And to top it off, I have and odor that won't go  away, no matter how clean I am. The discharge is normally white, or clear. And sometimes it builds up and it looks pasty white on my undies. I use creams to clear it up, but it comes back. And what ***** most is I have no health insurance. I live in SSF...help anyone??

[hayzeleyez]

have been through that I have read. Ultrasounds found nothing time and time again. Then after a piercing pain in my ovaries and then in my back I went to the ER. They did a Ct and found a small mass. The only thing was htey couldn't tell if it was located on the ovaries or Uterus. My doctor (GYN) said that since I was put through all the necessary testing and nothing was found,and Instllations made it worst later, she wanted to try me on birth control to see if it helps. She asked me tht when I was on BC did I have any of these symptoms , I said no , she then said this could have been a problem while taking them and it was suppressed due to the BC Going to pick them up tomar, I will give feed back after my vaca to Disney World this week. I have nothing but faith  and if this is the problem I hope it doesn't cause me to be infertile. Cause at age 26, I am due for at least 3 kids after all these years of menstral cycles..... Will post later on results of treatment..

[NoKittyNo]

I have no where else to go, no one to ask, no one to tell, so here I am adding to the plethora list.

Okay, well, I've been having recurring and advancing symptoms - seems like since forever, but to be frank about 2-3.5 years now. I am 22 years old, fairly healthy, and at a loss of what to do.

It all started with minor symptoms of "The urge to pee", never ever in my life had that before, went to a Walk in clinic where I was diagnosed with a UTI. Prescribed pills, sent off my way. Okay, same feeling came back, prescribed meds, went away for a week - came back. This had gone on for a very long time, and after a while - Nothing was found, no infection, no abnormalities in my blood or anything.

In '08 I had a Ultrasound and Scan, showing I had "benign" small teeny cysts, apparently normal said my doctor in all women.

I went to a Gynecologist in 08 as well(after having no period for 4 years and 3 months, 2004-08). I finally got it in 08, and it was semi-steady, but as of late its been off, I've been late 3 times and now as of today I am 82 days late, from my expected period.
I also might add, I am not sexually active - ever, and am a virgin, hymen and everything intact.

When I saw the Gynecologist, he did a Pap and a check-up, stating I was fine. I asked why I had to keep going to the washroom, .. He said he saw nothing,

I had my Kidneys checked and done in 08' with a vile of colored stuff, and found nothing.
I was checked about 5 times for diabetes, sent to an Endocrinologist for 2 years of follow-up, and nothing, except I was a little low on Vitamin D and take 1,000 Units in summer, 2,000 in Winter.....Fine.

Okay, Fast Forward to present, August 21/2010. I Still have the symptoms of:
+ Constant, Constant, Constant feel of urination(to pee)
+ Persistent pain and throbbing in my stomach, pelvic area, and back(Kidney area)
+ Irregular Bowel movements, that seem to follow/precede Bladder problems
+Vaginal discharge
+A feeling of abnormal pain(discomfort?) in the area of the walls, or clitoris(kind of?)
+ Never a feeling of truly emptying my bladder, and afterward a sort of burning sensation, - and I do NOT mean WHILE urinating, I mean a dull insistent burning ache in the(Ovaries?)Pelvic area, and it sits there, and when I sit down its INSTANT pressure on my lower abdomen and pelvic region, thus in turn causing a feeling of "got to go again"
+Thirst associated with this, it comes and goes, but usually is in tune with it
+ Missed/Irregular/Late Periods(4 year span once, 42 days, now 81-83)
+Throbbing, aching in the Sides, Back, Lower/HighBack(Kidney area), Pelvic Region and lower region. . . Always this, burning sensation(again not a fire-y one, but a.. How to explain, ... persistent.. one and when I exhale, it hurts, my back, my sides..it hurts.

+Everyone thinks I am crazy and faking it. I have been told point blank, this might be "In my head", "Incurable", "Possibly never (to)find an answer", "Unsure", etc.

I had a Gynecology Appointment in July, but somewhere down/up there hates me, because apparently there was a mix-up("my fault" HIGHLY UNLIKELY, as i've been looking to that appointment as a beacon of every-growing hope) and had to reschedule because then, after someones mistake, the doctor could not "fit me in". How about fit into my situation then proceed to reschedule?

I am slated to see a Gynecologist September 09/2010. I am unsure of how long I can wait, the pain is progressing to unbearable heights, and I am afraid to go to a doctor or a Hospital and be deemed "Unfit". I went to my Family doctor two days ago, where he just told me it could be "stress related" and wait for my appointment. Stress related, really? so for about 4-5 years i've been dueling the same component? I dont think so.. +Sigh+

Its 140am and I start work in a few hours and this pain and discomfort is preventing me from sleep..

I am 22 and  I am depressed about this constantly, all I want to do is go to bed and forget about this, but how can I when the problem reoccurs as I lie down, and have to do..and this sick cycle returns. If anyone knows how to help, or what it could be - or have(and are) experiencing the same symptoms please let me know....

[crissman4279]

Im 23 female, i have a long history of uti's and white blood cells in my urine. I was taking macrobid for 3 1/2 years only recently have i gone off it. in June i was hit with  a sudden urge to pee, everything was normal until i was almost finished and i felt this pressure in my uretha, only to feel this pop and out came this sac like thing, its soft not hard. after that the pain became soo bad, i couldnt deal with it, i went to the er they did a urine test and it came back neg, for bacteria but had gross blood found, they thought that was wrong and gave me meds for a uti, they had no idea what the little sac things are. i took some pain meds, and continued to pass the sacs for a few hours. the next day after waking up after i stopped passing the sacs i felt way better still i little sting from the sacs comming out(some were the size of a quarter) so i thought i was all good, until a couple weeks ago when it happened again, they did a urine test again, gross blood but no bacteria, they did a culture and that to came back neg, with bacteria. they also did an xray to check for kidney stones, neg as well. now i am left with this feeling of having to pee all the time. its not painful just annoying. i do however get these really low cramps right in the middle of my pelvis area. i dont know if i microscopic blood, but ive only noticed the blood when im passing the sac things. i have a cytoscope next week friday, im just wondering if anyone else has passed those sac things, i thought it was kidney stones but doctors said they wouldnt be soft. ive looked up bladder tumors and the pictures look like what im peeing out only what im peeing out looks like smaller like it came off something bigger?

[Meg1107]

I've been having the same symptoms of the constant pressure and feeling like I had to pee all the time.  Went to a dr and they could find nothing wrong.  Went to the ER with the same results.  Then one day about a month after the symptoms started II ended up with such severe pain.  It felt like someone was twisting and ripping my insides.  My husband took me to the ER and they did a cat scan and found two kidney stones.  They said that was what was causing my problems.  That was about a month and a half ago.  I still have the constant pressure.  It comes and goes in intensity but is always there.  I'm starting to get so frustrated and depressed because of it.  I've read kidney stones can last up to 6 weeks for just one to pass so I'm hoping that I'll soon pass both and everything will be better.  I'm trying to not panic that something else is wrong and they'll never be able to fix it because I'll go crazy if I have to live forever like this!

[Autumn711]

After 10 weeks and 2 rounds of two different antibiotics, I still have the pressure from hell.....Not a UTI.  Same story as all the above.  It is driving me crazy, I am up all night going to the bathroom.  I guess I should find a way to just sleep on the toilet or buy a box of depends. To make it even more frustrating my husband is a family doctor and I have had every test you can think of and ultra sounds.  He did find kidney stones but, they are very small and not many.  I may have passed them as I had light bleeding for a couple of days.  I can really relate to Meg 1107 as well as most of these posts.   Like all of us here I just want to be back to normal and not to sure that will happen.  I just wanted to thank all of you for sharing your information.  My husband wants to try the Bactrim for 10-14 days and more test, will be back to share information if I have any luck.   Take care and hope we all have relief soon!!

[clk2010]

I'm so sorry to read all of these posts and the pain we are all experiencing including the phycological pain of not being heard and diagnosed.

I too have all of the symptoms along with a few more. Any information would be so appreciated.

In 2007 I underwent surgery for Stress Urinary Incontinence. The procedure I had was called TVT-O sling. It holds up the urethra since my pelvic floor muscle was weakened from 2 difficult childbirths and a very labor intensive career. The FDA now has this synthetic material on a public health advisory watch.

Additionally, I have had a lot of Kidney Stones throughout the years from again my career which I get dehydrated often. FYI, I'm a Horticulturist. I have been drinking lots of water to keep this under control, but this is only the tip of the ice burg on my problems. I also wanted to let you all know to that you can keep kidney stones for years and them not move or pass. I have had the same 4 now for over a year. Stay away from drinks and foods high in oxalates. Oxalates attach to calcium in our body, and if your dehydrated, begins to form Kidney Stones.

This all started earlier this year when I noticed how many UTI Infections I seem to keep having. After 3 diagnosed this year,- I had a couple more during the year I just masked with AZO to keep going and working-, I went back to my Urologist for answers. He then shared with me that his culture was negative and the culture I had sent to him from my family DR. was also negative. Well, I then asked him what could this be, since he, my urologist, found a considerable amount of blood in urine back in April. He had sent me for an xray back in April because the blood in my urine concerned him that it might be one of my kidney stones, and 6 months earlier, I had been hospitalized for 6 days with a raging kidney infection. So he wanted to rule out my stones. Xray was fine in April and was sent home with Cipro. The last urine analysis at family Dr.'s office also found blood in the urine. There should be no blood in the urine at all incase anyone was unsure about this. My urologist then did another xray and ultrasound, early November now. He said that they had been monitoring a cyst on my ovary and that now it was gone. I said great, didn't even know I had one. I  really want to know why I keep getting these UTI infections that you are now telling me are all negative before I become a complete cray women. As most of you know, sitting on the toilet all day so your brain can think its peeing just to give you relief is not something you can do all day. This will make anyone psycho!!!! I then asked him about the TVT-O procedure I had done in 07' and he said it could be the problem. Tape erosion into my urethra, bladder, or vaginal wall. He did a cytoscope the next day and said the interior of the urethra and bladder looked pristine. So, that also rules out Interstitial Cystitis for me. He then told me to go see my OBGYN.

So, I went to go see my OBGYN and had all of my tests sent to the main office which he did not get to start all this off. My ObGyn is the one that performed this TVT-O procedure in 07'. I explain all of my symptoms and all the tests I've had done to catch him up to date while he is doing my regular yearly exam. At least I could try and save some money. I showed him the lower abdominal area that was still hurting during this visit shortly after my week earlier visits to my urologist. The painful urination and urgency had gone away by this time from the cipro that my family dr. had started me on. He said, Oh, that's a cyst on your ovary! I said wait a minute, I was just told by my Urologist that the cyst they were monitoring was gone. My Ob then started to explain according to my menstrual cycle that I should be around ovulation time and it could be a new one. This is one week later after an ultrasound that showed no cyst but hurt so bad during this test because my bladder was so full and something in  there hurt from all this pressure. The exact same spot that was hurting ,and he concludes with no tests of his own, or any of my test results I had sent to him, that it's another cyst, just from his physical examination.   I then asked him did he think it may have anything to do with the TVT-O sling and he very quickly said NO! Not after three years and didn't even really check me for any vaginal wall erosion. He has me going for another ultrasound to check on this cyst after my next menstrual cycle is complete to see if its gone or getting larger.

I have 2 foreign bodies in me, kidney stones and tvt-o tape. It makes sense to me that if I am presenting all these symptoms and my urologist immediately rules out kidney stones that the next obvious choice to rule out is the tvt-o tape. But he, my Ob, didn't even begin to discuss this topic. I'm starting to feel so helpless and frustrated. I'm always tired, rounds and rounds of cipro- probably shouldn't take that for the next 10 yrs, he gave me a script for an antibiotic to take after intercourse with my husband-every time!, lower abdominal pain, bloating, fevers, very warm urine, burning urination, urgency, lower back pain, irritable, cloudy urine, always blood in my urine, excessive thirst, I've added ovarian cysts to the list, and on and on. I've read that excessive inflammation can cause urethytis and ovarian cysts. That is all in the same area as this synthetic material surgically implanted in me. I know I'm a Horticulturist and not a Doctor, but this is just plain common sense....Right?????

I do so hope most, if not all, of you have found answers and relief by now and if not, very soon. I empathize with you all. Thanks for sharing and letting us all vent. It feels good to know we are not alone and not crazy :)

[lindy2756227]

Hi all I too have all these symptoms and thank the lord for this website. It has truly comforted me throughout this process.

Hi Hayley

Thanks for all your contributions. I was wondering if you could post all the things you got tested for before you were diagnosed with IC. I’m booked in for my urologist in April and am worried I won’t be tested for all the possible things I could have. I get the feeling specialists tend to chuck this in the too hard basket and that it is up to us to demand certain types of testing. I have started making a list of all the possible things that it could be including:

Cysts
Abscess
Structural abnormalities
Vulvitis
Chlamydia or gonorrhea
Intestinal Cystitis
Bladder cancer/ovarian cancer
Overactive bladder
Fistulas
Allergies to certain foods
Sensitive to additives in certain foods
Urethritis

Does anyone know what other things it could be?

My symptoms are as follows:
Started with thrush
UTI like symptoms after sex – however tests came back negative
Slight dragging/crawling feeling in my lower abdomen/bladder. It kind of feels like 15% of a UTI urge to urinate feeling. It feels better when I am lying down.
Burning and stinging sensation while urinating
After sex I’ll pass blood in my urine
My urine has a funny smell. It has an infected smell like when I have a UTI
Green greyish foul smelling discharge
Kidneys feel tender
I had UTI like symptoms after drinking excessive alcohol  

Does anyone have similar symptoms?

Environmental factors
My boyfriend and I engaged in anal to vaginal sex and anal to vaginal oral sex. I had UTI like symptoms after doing this. Naturally we do not do it anymore.

To add more confusion to my diagnosis, I took my antibiotics wrong when I first had UTI symptoms. Ever since then I have felt the dragging pressure in my bladder etc. Is it possible I could have some left over bacteria in my body that couldn’t be detected in the urine culture? Ureaplasma maybe? One of my doctors said there is no way this could be and one said it is quite possible. HuH!?

Love for everyone! xoxox

[mrseyes]

hi all - i found this post searching the web. ive had intense bladder pressure for months now (no pain but a constant feeling of needing to go, even a few minutes after i just have. sometimes even when i've JUST finished going). the pressure is intense (im lying in bed looking for a distraction!) and especially bad at night. at night it also becomes difficult to go, like my muscles are swollen.

started at the general practitioner after a gynocologist dismissed everything (no uti so im fine). they ran all kinds of tests (blood, sonogram, etc.) and came up with nothing. i found a urologist that seemed to specialize in exactly what i was suffering from and i thought, if anyone can help me, he can (visit his site - http://www.centralparkurology.com/) reading about IC on his site (finding out about what IC was led me to googling to find dr kaufman).

after a month of antibiotics (bactrin) which is his usual starting course (works a lot of the times as a lot of weaker bladder infections dont get picked up in testing for utis) the discomfort/pain that i did have/had been feeling (mainly during sex) was gone but no affect on the bladder pressure.

next step in treatment is physical therapy (specifically for "tight pelvic floor muscles"). tomorrow will be my 4th pt session. the muscles seem to be relaxing some (its easier to go when i have to...somewhat...) but still no affect on the pressure. i would do anything to make it go away!

my pt therapist thinks its a combination of having had uti's in the past/the infection not being completely cured in the past (chronic uti's can lead to this kind of thing) and scar tissue from having my appendix out (about a year and a half ago). she thinks i should only need a month or two at most of therapy but right now its really hard to see the light at the end of the tunnel when it feels like its never going to be over.

look up dr. kaufman though - hes been in tons of magazines, journals, etc for his expertise in this subject! it made me feel like i wasnt crazy at least!

[Mashiya]

Went 2 a doctor 2 do pap smeer n he said he cant see anything coz the is a white thing that is covering my womb. So i want a child wil i ever be pregnant

[Nic2001]

Hi there,

The last 2 months of my health life have been very disturbing.  It started with a UTI (which I have NEVER had in my life before).  Was given antibiotics for 3 days and went back as still in pain - doc said blood in urine, but no infection.  Cultures done, no infection, just trace blood.  Went to gynae, pap, cultures, exam, scan all normal.  Then went to see urologist.  All the time having pain in abdomen area, pelvic area and vaginal area - no buring on pressure or constant need to urinate, just pain.  Had CT scans, abdominal xrays, ultrasound - all normal.  Had cystoscopy to look into bladder (all 100% perfect according to urologist), but he did say he stretched the urethra (he doesnt talk much so didnt say why), but I have since learnt this can be done due to scarring (huh? didnt know there was a problem there!).  A few days after my period, I had terrible pelvic / abdominal pain.  Went to see a GP who said 'do you expect me to wave my magic wand?' - I almost said, yes I do, you're a doctor!  She upped my anti-anxiety meds to the point where even the pharmacist said "has something traumatic happended to you recently"....I refused them completely.  After about another 3 days in pain I didnt know if I should actually go to ER for them to check, but opted for a different GP who I had to ask: could I possibly have PID (pelvic infection).  Yes, she said, gave me 7 days worth of antibiotics and I felt sooo much better.  After a week, ALL my symptoms are back but not as bad as when I thought I had the PID.  Saw my gynae again yesterday (he by now thinks I'm looney in the head) and actually asked if I'm depressed.  NO, I'm not normally, just depressed and sick and tired of pain.  When he pressed on what I thought was my ovary it was very tender.  He said that's your colon I'm feeling, maybe you should see a gastroenterolist then you have ruled everything out.  Well, that helps tons if that comes back normal I said and what about the pain?  Well sometimes we just have to live with it.  I do not understand how they can all assume all is well, just because they find nothing.  How can I demand a laporoscopy for them to look inside?  I dont know where to go anymore.  I am not a hypochondriact and before this whole thing only saw a doctor 3 times in the last 5 years.  I know when there is something wrong with my body....husband is frustrated too!  Anyone with similar issues?

[sonmul]

I am so glad I found this!  I recently have been experiencing bladder pressure.  Not a lot of pain but pressure on and off.  It came on very sudden and I thought it was a bladder infection but it never turned into one.  I have had many bladder infections in the past but none for many years now.  I had ovarian cysts in my early twenties, before children, but took FC w/ **** Quai from Natures Sunshine products and have not had trouble since.  I have had kidney stones, mostly when I was pregnant and recently have had kidney pain but seems to subside with lots of water, Chanca Piedra Tea for kidney health.

I also take Urotone from Botanipure for urinary tract.  My cousin who has had many bladder issues swears by lemongrass oil rubbed over the kidney area.  I also know that Cornsilk from Natures Sunshine helps with bladder issues which I'm going to try now.  I am stumped as many of you are with this bladder pressure. I will look into cysts and fibroids.  I feel for you all who have had to experience this for so long with no answers.  It IS NOT in your heads!  I hope some of my suggestions will help and I hope we all find some answers!

[beatrice1982]

Hi leannemartin, I have all the symptoms you mentioned too. did you find the answer this time? please share. thanks

[valerinanj]

http://www.thehealthierlife.co.uk/natural-health-articles/digestive-problems/candida-cure-symptoms-00154.html


i found the above article on Candida that can cause a lot of these symptoms we all seem to have.   abdominal pressure, bloating, urinary frequency/pressure, vaginal discharge/hot sensation, discomfort during intercourse.

  I have been suffering for 16 months straight now. All tests negative.  All treatments only work temporarily.   Ten years ago I had the same problem, it lasted just over a year.  It was when I finally got off all meds and saw a natural health practicitioner and chiropractor that I finally got relief.  One day it just stopped.  I wish this time that would work.   The week before my period it gets so bad.  My current chiropractor has been successful in helping me relieve the bloating for long stretchs of time and I've tried not to use vaginal medications for a few months now in an attempt to let my body get back to normal.

[averagemum500]

I had all these bladder symptoms and I was diagnosed by mu urologist as having Trigonitis. This is where the bottom of the bladder leading to the urethral tube is very inflamed. It is often missed when a gynaecologist does a cystoscopy, because the inflamation (inflammation) is where the camera enters the bladder, and the camera cannot look back on itself.
I came off all antibiotics that weren't working anyway, and was told to take a teaspoon of potassium citrate solution every morning.
I also had my urethra opening stretched slightly during the procedure, as I was told that it had nearly closed up! This has given me years of relief. My symptoms appear to be returning a bit, so I may go back to have the urethral opening restretched.
The urologist said that most doctors, (and that includes gynaecologists) don't know about Trigonitis.
Hope this helps someone.

[jj859]

I had frequent thrush like symptoms but all tests showed negative, constant pressure on my bladder and pain. I got referred to a gynecologist who put me on antidepressents telling me it was all in my mind. Then I started getting regular UTI's so i got referred to a urologist and thank fully he sent me for a scan. It took 2 years to diagnose that I actually had a urethral diverticulum as these are rarely diagnosed. This can only be found by having an internal vaginal scan as its such as small area to detect anything. Well hope this helps as some of your symptoms are similar to what mine were. I feel for all of you still suffering, but my advice is to keep pushing for more tests.  

[SE2T]

Hi there, I am new to this, and was wondering if perhaps any of you ladies might have some info. I went for laser treatment in my cervix, last Tuesday (31.05.2011) and have since experienced a lot of pressure on my bladder and constant urination. Not a lot but small quanities. Could this be due to the laser treatment? My nipples have also been very sensitive and have darkened in colour and the bumbs have become prominent. I don't really know what to think. Any ideas ladies?  

[MLBIGG]

I have experienced an occasional sharp stabbing pain during or after sex that started over 10yrs ago. When I first experienced the pain I was 15, it happend after sex (with my boyfriend, my first) we had been intimate for 6 months when It happend. The pain felt like a huge knife stabbing in my vagina and it was paralizing, it took my breath away for about 20 min. over the years it would happen on occasion but would vary in severity. My doctor thought it was muscle spasms in my vaginal wall, no big deal. At the age of 23/24 the sharp paralizing pains after sex became more frequent and I also started having symptoms of a urinary tract infection. I am 25 now and over the last 2 years I had frequent UTI symptoms and have been tested for a UTI atleast 8 times but test are always negative. My pain and UTI symptoms have became more frequent over the last year. I had an ultrasound that showed 2 small cysts (normal) on my right ovary, My doctor said the cyst were causing the pain, but had no explanation for the UTI symptoms. He perscribed birth control to stop ovulation and growth of cyst. After 4 months of bith control pills, and a visit to a Gyno + MRI still no real answers or relif from pain or uti symptoms (mostly in right ovary or after sex) . I went to another Gyno that thinks I have Endometerosis. Endo. does seem to explain MOST of my symptoms but the only way to diagnosis is laproscopic syrgery.

However I have had other symptoms that could/or could not be related like:

Cronic (chronic) lower back pain that worsens during my period this started around age 20. My periods have always been consistant and predictable. I have never been pregnant. In the last year my lower back pain has also been accompanied by some occasional hip pain and siatice like nerve pain down the back of my thigh.In the last two years (since age 22) I can always tell when my right ovary is ovulating and my periods are worse every other month. I have random mood swing, hot flashes, decreased sex drive, fatiuge, acid reflux, stomach upset/discomfort, depression, anexity, problems concentrating, along with recent use/abuse of alcholo and drug abuse to cope with fatigue, pain and stress. The mental symptoms may likley be due to the effect that the physical symptoms have caused. My endometeriosis diagnosis was accopmanied with diagnosis of herpes.

I still do not know what is causing my pain, I have scheduled laproscopic surgey to diagnois endometerosis and remove the endo cells if that is the cause of my pain. But it will only cure it for a few year.. endometerosis comes back after a few years and can only be cured by historectomy.

ANYBODY ELSE KNOW WHAT IS WRONG WITH ME? PLEASE HELP ME

[Tami2507]

I HAVE HOPE!!!  I've been where most of you are that started at age 19 and suffered through to age 30 when I finally found answers!  If anything in my story sounds familiar, please look into this.  There are answers for everything, but doctors give up, don't understand the pain we feel or just don't have the time.  I suffered 15 years ago when there was no internet but only libraries and bookstores to do research in.

This is how it started.  I had a bladder infection every two weeks for two months and sent to a urologist.  The urologist found nothing physically wrong except to say he would dilate my urethra which I allowed him to do since I had no other answers.  This did not help at all and was extremely painful afterwards.  My husband and I were using condoms as our method of choice for birth control and I noticed the infections always started after sex.  I decided to stop using the condoms and the infections stopped!  I shared my discovery with my doctor and he said I must've been allergic to them.

Well, the infections were gone for many years.  I went on to have two children and two normal vaginal childbirths.  At the age of 26 and one year after my last child was born, I got another bladder infection.  I was prescribed Bactrim, but this time I was still having symptoms of frequency and bladder pressure five days into my treatment.  I knew this wasn't right.  I called the doctor and they had me come in to check my urine and said I was fine and to finish my meds.  The frequency and pressure did go away after a few more days.  I still thought this was alarming since I had never responded like this before and I was very in tune with my body.

Little by little, I started noticing what seemed like hormone problems, acne, tiredness, low sex drive, constipation, frequent urination sometimes all night long and pressure over my bladder.  I didn't think it was an infection because it was mild and there was no pain.  It came and went.  I drank lots of water and noticed it only bothered me when I drank juice or milk.  My stomach became distended a bit when I had always more of a concave one even after my children were born.  I told my gynecologist and he laughed which was understandable since I weighed only 115. I however, still thought this was strange because no matter what I did, I couldn't get it to be flat again.  I also started having a weird sensation when I fell asleep, it felt like someone slapped me upside the head awake.  Try to sleep through that.  Each time I would fall asleep, it kept happening.  The aching over my bladder and frequency became more of a problem as it lurked always in the background.  I went to my general practitioner and OB/gyn only to be told there was no infection and nothing was wrong.  However, they gave me antibiotics just in case.  My OB/gyn finally prescribed me an open ended prescription to Keflex and told me to take as needed.  He also tried me on birth control pills to see if that would help anything.  

Two months later, I had what would come to be known as a panic attack.  I would be just watching TV and a rush of adrenaline would come over me and send me into a terror as I felt like I was having a heart attack with sweaty palms, numbness in my fingers, felt like I couldn't get enough air and finally feeling like I was going to faint or die.  There is nothing to prepare you for these symptoms that can overtake you in seconds and especially when you don't know what they are.  I blamed the birth control pills and immediately stopped them.  I was referred to an endocrinologist who did find one problem.  I was diagnosed with Hashimoto's which is a thyroid disease.  I was prescribed Synthroid and told it was definitely not the cause of my bladder symptoms. Because so many of my symptoms were intermittent and there never seemed to be a pattern, it made it so much harder to zero in on the cause.

I turned 30 that year and for my birthday, my husband was taking me to Vegas.  A few days before our trip, I was standing at the Walmart counter making a return.  All of a sudden, I was hit with my heart racing and had a hard time breathing and the feeling I was going to faint.  I grabbed my children and went straight to my endocrinologist's office which was only five minutes away.  I had just eaten an icecream cone prior to this attack so the endocrinologist did a diabetes test.  It came up negative and he started to look at me like I was crazy.  Luckily I had a wonderful friend who is in the fire department meet me there and vouched for my sanity.  Still I left with no answers.  The doctor called me when I got home and had a very worried tone in his voice.  He said he wanted to test me for a Pheochromacytoma.  It is a tumor in the pituitary gland and very dangerous.  It could be very responsible for my symptoms.  I did a 24 hour urine catch but was leaving for Vegas the next morning.  The doctor called my home and said he didn't want me going and to cancel my trip.  If I did have the tumor, it would need to be operated on.  I told him there are doctors in Vegas and I could just as easily wait for the test results there and why couldn't I just continue on and if I had any trouble I would go straight to an emergency room.  This trip was all I had for pleasure lately and he didn't even know if I really had this "tumor".  Well, as I thought the test came back negative.  

While I was in Vegas, I was exhausted and not hungry off and on, and constant bladder aching and frequency so I kept taking my Keflex 2-4 times a day.  I still managed to have a pretty good time despite those exceptions but my memories are always first of my bladder irritability. When I came home from the airport I took a nap.  I woke up crying with a pain over my bladder like someone was standing on it or twisting it and another panic attack.  My husband drove me to the hospital.  I had a cardiologist, gynecologist, neurologist, urologist, gastroenterologist and endocrinologist all assigned to my case.  I had every test imaginable including a 24 hour sleep study.  The cardiologist said my heart was only the victim and something else was causing the quickened heart rate.  The neurologist kept trying to say I was having seizures, the gastroenterologist just gave me anti-spasmatics as my stomach was so bloated and the urologist found no bladder infection.  The endocrinologist took me off the Synthroid and the gynecologist found nothing and did nothing.  I went home with no answers.

Unfortunately my life was getting smaller because I was afraid to be in public and getting a panic attack and afraid not to be close to a bathroom.  A new year was coming and I decided to consult another doctor and zone in on my hormones.  This doctor looked at me as a challenge as I was so weak I could hardly get myself up on her table.  She took each symptom and tried to unravel the cause.  I was prescribed a heart block, thryroid hormone, anti-depressant, anti-spasmadics, anti- anxiety and an anti-psychotic and told to come back in two weeks.


Continued next post...

[Tami2507]

One morning, I was awoken in the middle of my sleep by terrible aching in my bladder and decided to go downstairs to the other restroom so I didn't wake my husband and read.  I had picked up a book at the library on intersticial cystitis.  I cried as I read it, realizing I probably had this and there was no cure and would have to find a way to live with it.  I spent an hour feeling sorry for myself and then I decided to pray and thank God for all that I DID have.  I decided to make the very best out of the life I was given and be the best mother and wife to my family.  It really does help to have a positive attitude!  I wasn't going to give up!  

A few days later, my husband had to make a stop at a store in the mall.  I saw Waldenbooks and said I just wanted to take a look.  I picked up this one book and started to cry and shriek that I finally found all of my symptoms!  Someone understands what I've been going through!!  The book was the Yeast Connection.  I was told about a yeast overgrowth and laughed about it only a year before.  My mind was completely closed to the idea and I thought it was stupid.  However, when I started going back thru my life and when my symptoms started, it all made sense.  I told you I didn't have any more bladder infections once I stopped using condoms when I was 19.  I told you the next time I got an infection was a year after the birth of my second child.  What I didn't tell you is how over the years I slowly became more and more addicted to eating sweets.  I didn't tell you that a month after my second child was born, a friend of mine taught me how to make home made bread dough and I made it twice a month.  The recipe made 8 loaves.  I fed my body so many simple carbohydrates along with all of the antibiotics and hormones that yeast were overgrown all inside of me.

When you are suffering, you will do just about anything for relief.  I obeyed everything the book said and in FIVE days, ALL of my symptoms were gone!!!!  Especially the bladder pain and frequency.  It got worse before it got better in those five days but I emerged with a clean slate and more energy than I could imagine.  However, it doesn't just take five days to fix the imbalance.  It takes a lot longer but well worth every moment to have the quality of life back because while you are healing, most of your symptoms will be gone.  It is a very strict diet but you gain so much and it's not forever.  You will be able to eat most of those foods again.  During this time, my husband did the diet for 12 days with me.  I did it for 66 days.  Then I jumped head first into a bucket of m&m cookie dough!  If you go back to your regular ways and the imbalance is not fixed, some of your symptoms will return.  

I returned to the doctor who prescribed all those meds two weeks later and she was in shock.  She called all of her nurses in to witness how well I was doing and described the state of health I was in when I first came to her.  I told her I was not taking any of the meds she prescribed and this was all natural.  She just stood there in disbelief and said she wished she had more time to study macrobiotics.  

The wonderful part for my husband who was so wonderful just to sacrifice and do the diet to support me was, he was given a blessing too!  He had always suffered allergies to cats, dogs, grass, trees and lived with a sinus headache everyday of his life.  Then he had recently developed asthma and given a puffer. When he did this cleansing diet, he found out he was actually intolerant to cheese, whey, wine and chocolate liquor.  If he stays away from those four things, he has no headaches and no allergies to any animals or grass and trees and the biggest one is no asthma.  It's been 15 years and still he is symptom free!!  

Now that we have the internet, there is so much more information to gather and people who can empathize with our suffering and some can even help.  I hope I can help someone from all of my suffering.
If you google yeast and bladder infections and you will see there really IS a connection.  You are more susceptable to bladder infections if you have a yeast imbalance.  That's why we kept getting them so easily!  We have to strengthen our resistance.  It's also very important to always keep that area clean before and after sex and try to urinate afterwards to flush out the bacteria.  I also recommend Cystex to help with the prevention.

[kay2702]

HI to you all,just want any advice i started 3 months ago with really bad pain in my back,stomach and when i had a wee it didnt sting but towards the end of weeing i got a lot of pain in the bottom of my stomach,i was hopeing it would get better but it didnt the next day when i went for a wee it was all blood.I rang the doctors up and they said i had a very bad UTI so they gave me anti-biotics,It did get better for 2 weeks but when the anti-biotics stop within a week its back again. I have been on 4 lots of antibiotcs in 3 months and im geting the infection back within a week of finishing the antibiotics.
I keep geting pain in my back and presure when i wee but no burning,i keep feeling bloated and just unwell.What does worry me is all the bleeding everytime the infection is back but as soon as ive seen the doctors and got antibiotics within a couple of days the bleeding stops.It is painfull when i have sex.My doctor is now sending me for a kidney stone on 24th this month to see if i have any stones.
Would love to hear any advice from anyone as im very worried what it could be xxx many thanks

[81ststreet]

Most of these posts describe 'frequency' in urinating, small amts of blood in urine and white blood cells, pelvic fullness, and more.  Usually, not cultured as real UTIs.  Get yourself to a urologist and gynecologist to rule out things.  I have experienced this for past 4 years and it was quite scary at first, especially when they look for ovarian cancer because many of the symptoms described are for ovarian cancer. I didn't have OC. A urologist did a cystoscopy to rule out many bladder things, including bladder cancer. Most doctors don't know much about handling Intersititial Cystitis and it is a mystery illness. What does help is something to calm the bladder, such as Detrol.  It calms a nerve running along the bladder and will stop most of the "going" or frequency. It helped reduce the fullness and some discomforts.  I am very thankful for these types of drugs. You'll have to add more fiber or sprinkle flax meal on your food, as these types of drugs also slow down the intestinal tract, causing constipation.

Antibiotics seem to help, but all comes back after discontinuation.  I did find that Doxycycline helped me for a longer period of time, 3 months or so.  Many of the drugs for IC, like Elmiron...I think it's a waste of money ...to wait 6 months ...there is not much proven success. Ask the doc what the success rate is for these new things.  Not being able to empty the bladder may be low estrogen, as that also affects me.  I take a small dose of estrogen for that.  You could probably get a cream instead of a systemic pill.  Urologists will tell you that the bladder likes estrogen.  

Also, many probiotics help with the pelvic region. My gynecologist said the pelvic region likes probiotics and many studies have been done on this.  I use a variety, switching them - pills or yogurts.  Acidophilis, L. casei (Dan Active),  Femdophilis (rhamnosus and reuteri).  Many Yoplait brand yogurts have acidophilis in them. I've made yogurts part of my day, including my new dessert.  Sauerkraut is a probiotic too.  I avoid bifido bacterium versions as they seem to affect my bladder negatively.  I've gotten away from those with lots of colorings and other additives.  Start slowly with the probiotics until your system adjusts.

After 4 years of this, I still think it's some type of infection, even though I've been tested for STDs and other things.  My bloodwork is always perfect.  But all this did start, for me, with a low grade fever the day before my bladder frequency. I easily get infections for all kinds of things now.  Finally, I will make it to an infection specialist and that is because my newer doc knows that Doxycycline makes it all go away for a few months.

[Catfink]

Hi there,

I am 32 years old and have currently got a dull achy pain in my lower back (right hand side). I'm also going to the toilet for a wee about every half hour and my last two periods were heavier than usual. I also have been experiencing brown discharge a week after my period has finished which lasts for about 5 days. Anybody else experienced something similar?

[neicy78]

Hi all, after reading some of these posts and skimming thru some not once has anyone mentioned PCOS ( Polycystic Ovarian Syndrome) it reflects many of the symptoms and causes so many more. I have been suffering for years and some doctors believe it is crap others not so much!  Search it out and see if it can help you out!  after I got on metformin and changed my diet it has helped so much!

[lauraJ22]

Hi... Its quite comforting reading these comments about the pressure around the pelvlic/bladder area. I regularly stop myself from going to the toilet when i feel i am in awkward situations (School, friends house ect) I am only 16 so beginning to feel such a pressure in such a place frightened me. I find it is worse when i am sat down. However my pressure does not go away when i lay down, but does lesson some what. I was terrified i might be pregnant as i knew these were some of the symptoms, including the breast tenderness, but realised after reading these post that it most likely is not... espeically as i am on the pill. However i am still very scared about this and quite unwilling to make a doctors appointment... as i said before i am only 16! Some other things that i have experienced is a very sudden brief stabbing sensation. It feels almost like i am being stabbed internally. This has happened twice whilst walking. Also yesterday i realised i needed the toilet, (it's hard to tell when i need the toilet because of the constant pressure) so i went. No more than 5 minutes later did i find i was DESPERATE to go again. It actually hurt i was so desperate. Can anyone suggest anything to me? I honestly feel like i should be 50 and experiencing this... not 16!

[CNewman32]

I have been having the exact same symptoms as you. I don't have much pain at all but feel like i have to go all the time. Even right after i go. I am not sure if the pressure is really in my bladder or more my like my ureathal(can't spell) It is a lot worse at night. I can't sleep, i can't concentrate at work. It completely consumes me. This started for me3 weeks ago tomorrow. I hv been to the dr several times and been on cipro, bactrim, and macrobid even though i test negative for uti. He now has me on detrol 2mg twice a day, which is not helping either. My culture came back normal as well. I have an appoint with a urologist tomorrow and am praying he can give me some kind of answers. I have no clue how some of these women have been doing this for months on end, I can't live this way as i am sure you feel the same. I was just wondering if you have found anything out or anything that helps releive the symptoms? I have found that cystex releives some of the discomfort, enough to give me a few hours of sleep anyway, however it makes me kind of nausous. I am just wondering if any one out there has any kind of suggestions or can help in any way. I feel like i am going to go crazy. I am an emotional wreck worrying nonstop and so so exahusted from lack of sleep. Can anyone help?

[Tamberlaine]

*******
Please read the info on this site.
I have had this same problem on and off for years and am about to try this product above-sounds amazing and completely natural. I also find limiting stress and preventing constipation helps! Also homeopathy has helped where the doctors have failed.

[Vipsam17]

I have an ovarian cyst in my right ovary. It's stopped me from having my period for months. I had a papsmiere done and a vaginal ultrasound done. The doctor said he can give me medication to start my period again, so it can flush out the cyst since it's not that big. You can take a vitamin called evening primrose oil to shrink cysts. If the cyst is too big, it'll have to be surgically removed. Hope this helped.

[stressedtodeath]

so im yet another victim of frequent urination. you can follow my posts to know exactly whats been happening to me. i have had chronic yeast infection since 9 months now. each time before i get yeast infections, i urinate 2-3 times per hour ,i feel a pressure in my bladder which gets temprarily relieved by peeing. the amount of urine is  quitea lot and it is not cloudy or burning. is this all yeast related?? im at a loss so as to know what is happening to my body.:(please help

[Tamberlaine]

It didn't seem to let me post a link but I have found an amazing support. Its called waterfall-D-Mannose and is completely natural.
Google it and read for yourself about the research surrounding the awful problems our bladders can give us.
I have been taking it all day and am just starting to feel the relief slightly.
I also have IBS and yeast seems to affect my symptoms greatly but I think this is because it is highly acidic.
I could talk for hours about my desperation and the detailed research I have looked in to but that would be boring-its best to see firsthand.
Good luck everyone-I totally sympathise x

[kridz]

I had the same symptoms as your describing, went through a bunch of tests only for them to tell ;me i'm fine. Then it would get worse and more painful and make me sick to my stomache from the pain down there. I had the heavy bladder, the painful peeing, the stingy burny, almost itchy pee, but according to the drs tests i was just fine. My mom said hey have them test for BV (bacterial vaginosis) ,dn't worry its not an STD, its a overgrowth of natural bacteria that is already there. The dr's sneared and told me thats not what i have and continued the other tests. I FINALLY went to a midwife (I was pregnant at the time) and asked her, she tested for the normal UTI, yeast inf. and said its prob one of those, after I had already been tested. So the culture still came back neg. for those, I finally Said, can you PLEASE just check for BV, simple swab and culture procedure. She did and low and behold the culture finally came up posative, BV is terrible painfull, but the symptoms are so difficult to distinguish because they seemingly momic all sorts of other things at once, if I were you, tell you OB to test for BV, they will laugh at you, but in the end you can either, rule it out, or get treated for it, im not sure why dr's are so obstinate about testing for that, it was even causing me to have contractions from 8wks to 20wks because they were telling me thats not what it was and dn't test for it for so long it got soo bad, I almost lost my baby over it, I had to take control and MAKE make the dr's test for that! Hopefully you have already figured out what to do and you feel better, but if I were you, i'd google BV and check your sypmtoms to it, and have your OB check for it, it couldn't hurt to rule it out! good luck

[whatswrong130]

I suffer from nausea espeacially when something presses against my tummy or early in the morning sometimes I wake up during the night because of it. I urinate frequently, my breasts are tender and sore, frequent headaches, fatigue, dizzy spells. At first I thought I'm pregnant but then my periods came. So I don't know what is wrong with me. Please help because I'm confused.

[Sheila8587]

I, too, over the last two years have had unrelenting pelvic pressure, freq urination but not painful urination, severe bloating and repeated negative urinalysis.  I've endured two cystoscopies that were negative for interstitial cystitis (I.C.) and two CT scans which showed nothing.  Abd US showed a small, insignificant ovarian cyst.  As a 49 yo menopausal female, I thought I was losing my mind and questioned whether or not my physicians felt the same way. After believing that my bladder was not the issue I turned to my GYN who was not impressed with my symptoms and merely gave me the "I don't know look."  Meantime, I quickly learned that I felt better on antibiotics and became very resourceful obtaining what I needed to stave off the pain and other symptoms.  I had periods of 1-2 weeks that were normal.  I switched GYN physicians and agreed to have an exploratory laproscopy...WELL, the results were surprising....I had a partially obstructed appendix causing a persistent mild infection.  Due to the atypicaly location of my appendix (near the bladder) I had constant bladder pressure from the inflammation caused by the appendix.  Incidentally, I had small uterine fibroids, adenomysis, and cystic ovaries...all of which were not causitive but were removed. As I heal from the surgical procedure, my expectation is to feel better than I have for years.  ***please have your physicians consider a chronic appendicitis!!!!   God Bless

[cwrw999]

Drink some cranberry juice.  This helped me.  Are you eating or drinking something different?

I was using doctor prescribed mouthwash.  Mouthwash  had penicillen in it.  Stopped mouthwash solved my issues.  Drink some cranberry juice may help

[dolphinia94]

I was looking up similar conditions with UTI's and came across a different thing called IC.  This website might help read it and see if it fits for your symptoms.  www.ichelp.org

[sarah_1989]

IV had an ultrasound done which showed cysts on my overies but all my bloods and urine came back negative for anything endocrinologist says I have pcos but I keep getting pressure on my bladder its so painful and affects me working as im a fitness instructor been trying get answers for 12 months now

[HeidiLynnM]

I have fibromyalgia, and I have horrible stomach problems.......I have seen  many doctors, had a hysterectomy, and then had my right ovary out. They left my left one in, and I am now going to a urologist. I am bloated A LOT. I have been through the rounds with a gastro doc too...........I am looking for answers, and fibro does hurt every part of your body!!!

[dar41]

    I have also had every symptom your talking about and they did a ct scan on me and found cysts on my ovaries that where pushing on my bladder  i have to go back and have an ultrasound done but i have also had many bladder infections in the past year so i am hoping this is the problem I had an hysterectimy done 1 year ago and they left my ovaries i wished they had went ahead and removed them now. Good Luck ask your doctor about this...

[melissat2]

Ladies, I have the same symptoms-- on my second round of antibiotics and the culture came back negative.  One possibility I wonder about is if they tested for all the possible bugs.  Maybe we have one they didn't test for.  Another is the ovarian cyst connection.  I do have a history of these and have made an appointment to see if they are causing the trouble.  

My symptoms are I pee and dribble and nothing comes out sometimes, usually in the evening -- sometimes if I have eaten too much or am otherwise bloated.  When I do pee, I feel this wobbly sensation in my bladder, and five seconds later I feel the need to go again but nothing comes out.  Then all night I am up peeing and being uncomfortable.

In desperation, I ordered a natural product I read about online--  it's called D- Mannose, if you do a web search you can read more about it.  People swear by its effectiveness on UTI problems.  I've been taking it for about five days 3 times a day and I did begin to show improvement on the second day.  

The product i ordered is D- Mannose by NOW, in 500 mg capsules.  I take a does of three capsules three times a day.  In reading about this product, I noticed many people say they take one dose a day as a preventative measure.  Worth a try!  

Good luck all.  

[Leasa1970]

I have been reading this forum today because for the last 4 months after every mentrual cycle I have the same UTI pressure.  My gyn has run blood test and ultra sounds but all came back normal.  In December I rushed to his office because I was passing alot of blood thru my urine and what looked like small pieces of meat.  The gyn sent me to the ER to see a urologist after a 5hrs wait in the ER they sent me home with a diagnosis of kidney stones, they put me on pain meds and flomax but I never passed a stone.  This morning I get up and call the urologist because just like clock work the UTI/Kidney stone symptoms are back along with the blood when I pee, after speaking with the nurse she said my MRI showed 3 small kidney stones in the right kidney and a couple of cyst on my left pelvic area which she said could be on the ovary.  I along with all of you are so frustrated I just want answers.  My question is did any of you pass the blood and the small pieces of what looked to be meat?  Im 41 years old had two c-sections and my tubes have been tied, galbladder removed 13yrs ago other than that Im very healthy and active.

[jessy083192]

my pelvic hurts so much I cry i get cramps peeing in my adominals I'm not prefnant I just got tested but it came out negative I've been dizzy including in the shower I threw up and get light headed. the pains get sharper nd my pelvic gets a lpt pf pressure :'( tje pains un barable

[jessy083192]

my pelvic hurts so much I cry i get cramps peeing in my adominals I'm not prefnant I just got tested but it came out negative I've been dizzy including in the shower I threw up and get light headed. the pains get sharper nd my pelvic gets a lpt pf pressure :'( tje pains un barable

[snookie_pie]

I am constantly going to the Doctor
I had a Depo Shot a year ago, and ever sence i pee out blood
I havent had a period though in a year, I just recently had 3.
And my third one, I had 2 period in one month????
I also take 60 mg of cymbalta in the evenings.
And I take 10 miligrams of Paxel daily.
My cultures as well come out Negative.
I also, recently first time ever hooked up with someone unprotected & he gave me Trichmonis  Chlomedia I used to take the drug tripple c alot, dmx 30 mg
I think I could have very well messed my body up .... :'[

Sorry TMI i just feel like I am the Only girl out here feeling like ****

[gagirl69]

OMG o have the same pressure going on. I am 30 yrs old. It wakes me up at night
I've been to a urologist. He is going to do a cystopy if I'm spelling correctly. I had a Cat scan done with contrast on my bladder
I wasn't emptying correctly. I have several uti's on antibiotics.  I'm glad to know I'm not going crazy
I want my life back. I will let u all know how the cystopy turns out on Thursday.

[saki502]

Hi. I have been a victim of all the symptoms of urination like frequent urination, burning sensation,bladder pain and so on. I have tried all kinds of medication for UTI, Interstitial Cystitis,Bladder Infection and many other as prescribed by the doctor including homeopathy. There was never a bacteria detected in any of the urine cultures. Even the cystoscopy was normal. Then I visited the best and most experienced doctor here in Singapore. After going thru the detailed history, He said " that you have no infection and you are perfectly fine. What you have is chronic Pelvic Pain Syndrome. He did trigger point release (putting pressure in the pelvic muscles by finger) and I shouted at the top of my voice. So this was it!! The pelvic muscles were tight,contracted and not relaxed. Then he suggested meditation to relieve any stress (as people contract their pelvic muscles when stressed), yoga poses especially happy baby pose and the book named "A Headache in the Pelvis". Its a MUST READ. Please do buy the book. While I was reading the book, I was also trying to relax through meditation,visiting doctor for trigger point realease (can be done by self also) and doing some stretching exercise. I am almost 85-90% recovered now. I dont feel the symptoms as bad as earlier, just some flare-ups sometime. It will take time to be totally free of all the symptoms as mentioned in the book. But I am hopeful and positive and constantly working towards it. IT WORKS
GOOD LUCK!!

[LeslieCeleste]

Hey all! GREAT NEWS!!!! There's hope!!!! I had the same issue for 4 years. Pain in my urethra EVERY time I urinated. I would cry sometimes it would hurt so bad.I have been to the gynocologist 3 times due to this and the urologist twice. They all said tests showed no signs of bacteria infection or urinary tract infection, and No STD's. The urologist put a scope up my urethra into my blader(worst pain ever) and found nothing. It cost me $300 cause my insurance didn't cover it. But I was desperate so I had it done.  He told me there was nothing else they could do for me, but take Azo uti pain relief and deal with the pain my the rest of my life since that was the only thing giving me relif. That was Nov 2011. Towards the end of Jan 2012  The pain had gotten worse to where I didn't want to potty at all. The AZO wouldnt work anymore. It felt the worse at the end of me going. Like razor blades were coming out!  So I took it upon myself and bought a $6 Home UTI test by AZO. And guess what?! It came back positive!!!!! I called my reg. doctor and told her and they called in some meds to the pharm. They only cost $12. I've only taken 2 pills out of the six, and the majority of the pain is gone!!!!! I still have a slight sugn of discomfort but nothing compared to what i was feeling. I can still tell my blader isn't back to normal. Still have the urge to go frequently, and my back is still sore where my kidneys are. I'll be taking a home Bactria infection test shortly to make sure that's not the prob. Please take a home UTI test!!!! It's super cheap and totally worth it if you are in the same pain. Good luck all!!!

[garsama]

The same exact thing happens to me. For the last few months it has been after every time I have sex. Did you figure anything out?

[tiredofit700]

I am 38 yrs old, never been pregnant and during the last year I have experienced a lot of UTI's on and off - some bladder pain and very frequent urniation, easily 3 - 4 times per hour and even then, it feels like I am holding it in vor a while before I go. The lab cultures have come back positive for bacteria but when I went to the urologist yesterday, he said that, even though the cultures show bacteria, it does not show any puss in the bladder and that a true UTI will show puss as well. My GP has prescribed various antibiotics such as Avalox (If I remember correctly) and the last time I had Ciprol. The infections do go away but the side-effects of these antibiotics are terrible. I have been taking probiotics daily for probably at least 8 months now, because of all the antibiotics I have been on. At the same time the UTI's started recurring, I also developed cystic acne (which I never had before) and eczema, which I have always had, got a lot worse. I have always been very sensitive to especially caffeine and never drink coffee or Coke, etc. After the bout of Ciprol I had about 2 weeks ago, my bladder was just fine but after being examined internally by the urologist yesterday, I am suffering from abdominal pain and frequent urination again today. Every single time I have sex, it flares up as well. Luckily I am single at the moment but I cannot even imagine how a relationship could survive this - I am too afraid to have sex because I know that the UTI will start again. I would rather go without sex than suffer all of this. My GP has also given me antibiotics for chlamydia just in case - he never tested for it but said that it could be the reason (no other symptoms except bladder pressure, urinary urgency and frequent urination) but seeing as I once again have the same symptoms less than 24hrs after being examined by the urologist, I obviously never had chlamydia coz if I did, the antibiotics the doctor gave me as a precaution would have sorted it out. The urologist did a scan and could not find anything wrong. He prescribed Purbac (apparently it is called Bactrim in the USA) for me to use in case I became sexually active again (one tablet after sex) so that I wouldn't have to come and see him first before I could have sex. I took one last night when I started feeling symptoms after the examination but it is worse today, so obviously no luck in that regard. I will, however, take two a day for 5 - 10 days just to see if it will have an effect. I am travelling abroad in less than 2 weeks and do not want to sit with this kind of hassle!!! I have also felt that I need to wee more when I drink water (even a very small amount) - normal water or carbonated. I also find I go a lot more when I drink flavoured water (I think most of them contain artificial sweeteners) so I am going to try and avoid drinking any kind of water - normal, carbonated or sweetened/flavoured. I generally don't have sugary things and I haven't eaten chocolate since last year, so I don't know what else I can change in my diet, although I do eat a lot of fruit and I read somewhere in this thread that fruit should be avoided. I realize that I could go for more scans, etc. but when I read how much some people have gone through and how many tests just came back with no answers, I really don't think I see chance for all of that. I get so depressed by all of this. I went to the loo 25 mins ago (probably at least my 10th visit since I got to work 7 hours ago) and I already feel like I have been holding it in for hours. :(

[kimmi43]

I have gone to my doctor about the same symptoms and she has said to take cranberry pills which I now do as they are so much better to take then antibiotics.  Also drink lots of natural Cranberry juice not the fake stuff.  She told me it could be from bubble bath and soaking in it.  I have found that I haven`t had a bladder infection type since I stopped having bubble baths.  I only use baking soda or Epsom salts in my bath.  I hope I helped out a bit for you!

[kimmi43]

Try different position other then the Missionary position!!!

[heather02004]

the dr.s dont help its cystitis most likely , after i went 7 years with probs it turns out its what i have an all the dr. could say is it will continue ...an it does theres alot of woman going thru this and its really sad but mine started after i had my tubes clamped ..all the atibiotics will help supress the syptoms (symptoms) but its life long as i see it im with you on the sexual part an hope for some kind of miracle they fix this situation ..hope you feel better an heal from this as well as the rest of the woman to live normal lives cause i sure dont know what that is at the moment but sure hope to get it resolved soon ..

[bmill401]

Wow... I am so surprise by reading all of your stories! I have suffered with this issue now since my high school years. I am now going to be 25 years old and still suffer with this. Almost everyday I feel extreme pressure on my bladder like I have to urinate. Some times I am able to go alot and some times very little to not at all. I had A c-section last year with my second baby and it has gotten even worse since then. I have been using my friend as my "personal pharmacist" Her doctor calls her in antibiotics without even seeing her if she calls by phone and says she has a uti. It's not good to do that because I most likely DO NOT have a uti or bladder infection but I have gotten so fed up with the run around with my doctors sending me home with no meds and no answers.

I am miserable everyday of my life and some times just wish I wouldn't wake up. I know it's so horrible to say that but that's just how miserable I am day to day. My ob-gyn wants me to see a urologist but my mother and grandmother have suffered with the same symptoms as myself and have been to urologist and they found nothing wrong with either of them so they suffer through it and I don't want to wast my time and also have to pay a huge bill for them to tell me they found nothing wrong. It's very frustrating and I just take Uricalm " A medicine that numbs the urinary tract" You can get over the counter <--- I use this pretty much every day to help keep me comfortable. I just wish I had some answers because I really don't want to live like this forever. :/ I wish everyone else luck and hope someone can figure this out because I know your pain and I know how miserable it makes everyday life.

[nessa41]

I am going through similar issues. Always have to urinate use to be the problem. Lately I feel like I always have to but when I get there no luck. I feel tremendous pressure before and after the little drops that do come out. Went to the doctors all tests are negative, no kidney stones. One day I couldnt even get up pr walk the back pain was so bad. The following week the pain was in my pelvic area. Why can't these doctors find anything with what seems to be so common? I feel like I can't go anywhere because of the pressure and on certain days the pain. Always after intercourse it is worse. I was told I have no fibroids. IDK what to do. I think I will try this Interstitian cyctitis cure. I do not drink soda at all usually eat healthy, although I do drink turkey hill green tea.If anyone has any answers please post!!!
Thanks.
Vanessa

[MMlady777]

Today is the first time that I feel tremendous pressure in my blader and when going to the bathroom, it feels as something is going to drop down, then sharper preasure and only few drops come out, and afer getting up, it feels as I need to go again, but nothing is coming out. The preasure is constant, so I came here and see that I am not alone. Where does woman of 54 go without health insurance and unemployed?

[Peytonaa]

I am 19 years old. I have had many UTIs but the only symptoms I've ever had with those were urgency and frequency. I never had the burning. So about a year ago I had these symptoms, thought it was a UTI and took many different antibiotics for it. The urgency and frequency remained after taking all the meds. I was so tired of going to the doctor by then I just tried to ignore it. It has come to the point I cannot ignore it. I go to the bathroom 20+ times a day and wake up so many times at night I am constantly wore out and tired from not getting sleep. It has interupted my life and is so frustrating, sometimes I can't handle it. I cry or freak out because I just want it to stop. It is so irritating. I went back to the dr Janurary and blood tests, urine culture, sonogram all came back normal. I went to a urologist and he put me on versaid. However, the versaid has not worked so far for me. I go back to have a scope in a few weeks. I have a lot of anxiety because I'm freaking myself out with what I might have. Cant they detect cancer through a sonogram? I have no burning or pain urinating. Although, I am in the nursing program and have to do clinicals for 8-12 hr and stand the whole time. Standing for that long makes my lower stomach/lower back hurt. Its like cramping pain and it makes me nauseated until I sit down. That is the only time it's painful. Other than that I have no more symotoms of endo or IC ... They did the sono and didn't find any cysts so I am clueless and irritated.
:(

[danitait]

I am a 35 yo female no children, no history of UTIs. Went to my Primary doctor recently because of a nagging never ending urge to urinate and feeling like I've completely voided when I do. He did a stick urine test and there was trace amounts of blood. He said even though I had no evidence of a UTI that he will prescribe me Cipro and also gave me a referral to a Urologist.

Today was my first appointment with the urologist and when he pressed on the area of my bladder it was tender and hurt a little bit. He wants me to take the cipro that my PC prescribed and come back in a week. If nothing has changed he is ordering a CT scan.

This pressure and feeling of having to urinate is taking over my days. It is extremely annoying. I will update this post after a week or after I do the CT scan if it has to go that far.

[Missymn07]

  I am a 28 year old female with the same pressure symptoms.I have had a few bladder infections before and always suffer only pressure and constant need to urinate. So when I started feeling those symptoms about 2 weeks ago i assumed it was the same and went to the clinic where they took a urine sample and did a culture or whatever. The urinalysis only showed the elevated whote blood cells and a trace of blood in the urine.I was given a 7 day prescription for cipro.My symptoms seemed to resolve themselves,then 5 days into the medication the pressure and urgency came back which I knew wasnt right as this had never happened before.So I made another appt and they did another urine test and culture this time everything came back completely normal showing no infection.So my doc suggested I go home and take a hot bath as she thought maybe I was experiencing residual bladder spasms from the UTI.Well its now 4 days since then and the pressure is getting worse!I am no longer getting any relief at all from going to the bathroom in fact it almost seems worse after like my bladder is throbbing or something.I would think if these were residual symptoms it would have at gotten somewhat better rather than worse.It is getting to the point where what started as an annoyance is turning into real pain.It feels like my bladder is full and someone is poking me in the stomache.I dont know how im going to continue working like this and i just switched jobs and im currently without insurance so I dont have the money for all these tests!If anyone has any advice or has had the same symptoms and found relief please HELP! No one around me understands how painful it can be to not be able to relieve urinary pressure

[Missymn07]

Please do let us know what happens.It is so frusturating when people write about having my same symptoms and about what tests they are having but then they never follow up.

[danitait]

I will be following up for sure. I am not happy about being prescribed Cipro medication especially since they do not know what is wrong with me.
Not going to lie I am very scared. I would be less so if it was a determined UTI  (which it not) for obvious reasons because not having a concrete diagnosis leaves the mind to wander a bit.
The nagging pressure (not pain) in my bladder region has not relented even with the Cipro and I am 3 days in on the meds.

[danitait]

The urologist told me I could stop taking Cipro, the urine cultures that were sent off were confirmed as NOT a UTI. I have an appointment now to have a pelvic and transvaginal ultrasound and go from there.

Pain is still not present thank goodness however the pressure and urine frequencies are still there. Wish this would end. It is soooo frustrating,

[danitait]

Got the results from the ultrasound and a very small 1.7cm simple cyst was seen. Doctor has no real explanation for why the urine frequency. At this point it is gone. Just thought I would follow up because so few people do here.. good luck everyone.

[seekingsolution250]

Hello.  I can identify with what you are going through... I am relieved that I found this site as I have had what I am calling 2 "attacks" in the last year.  Both times I had at home positive pregnancy tests and a few days latter have an ungoddly "period" that until today I thought were miscarriages.  I am relieved that I have not miscarried and internal ultrasound showed that my lady parts are healthy.  However, I wound up in terrible pain, mostly right lower pelvis and across lower back.  I had a low grade fever of 100 for over 2 weeks (my temp is always up when prego so I thought nothing of it).  Each attack resulted in this constant pressure to urinate and only momentary relief when urinating.  Both times my urine has been clean.  Both times terrible vaginal pain.  The first time I had a pap done and cultures taken and it came back clean and normal despite my cervix looking enflamed and spongy. The first time I was put on CIPRO because I had an absess (abscess) on my abdomen.  The CIPRO fixed everything and I felt like me again.  The second time I went to the emergency room and had internal ultrasound done.  All was normal with my lady parts.  However they noticed then that despite the fact that I had just urinated, my bladder was full.  The hospital that I went to (FOX in Oneonta is full of idiots).  I found out 2 weeks later that my ultrasound actually showed that I was NEVER pregnant and that I was not miscarrying.  And my HCG was 3 (not prego), not a level 3 (prego).  This was not shown or explained and when they saw this they did not look further to determine what was going on.  My regular doc went over everything with me today and read the report.  So now I have to continue to wait to see a urologist and a GI specialist.  We are looking into Diverticulitis, appendicitis and kidney or bladder issues.  I have been throwing up a lot over the last 2 months and dealing with a lot of nausea and right before the attack I had a week of constipation and that is never a problem.  I would be curious to know what blood type everyone is with these problems.  I am O blood type.  There are health issues that are common according to blood type and are influenced tremendously by diet.  I have GERD and an overproduction of stomach acid but have never had vomiting like this.   Intersticial Cytitis has been suggested to me but rulled out as Cipro made it better.  Also is the abdominal pain across or primarily on one side?   I am convinced that we are looking at an infection somewhere and tempted to blame my appendix.  Those of you with these problems, do you have you appendix still???

[gellious]

i have been diagnose with ovarian cysts and the gynecologist ask me to go for surgery but when i ask to be educated more about ovarian cysts she ask me to wait and have another scan in three months time and see what the result will be is it okay to wait or i should go ahead for the surgery for the cysts to be removed please i need your help give me advice since you know more about ovarian cysts thank you

[frustrated106]

I have been experiencing the same thing for a month or two now. Especially at night when I lay down. I have to get up numerous times during the night because I can't sleep with the pressure on my bladder. I feel bloated all the time, like I have a baloon inside which is pushing on my bladder and pushing out my stomach. I have no pain like you would expect in an infection. I have noticed that if I lay on my back the pressure is some better at night. It also seems to get worse after I eat but that only makes sense if I have something pushing on my bladder. It is very depressing with no answers. The Dr. didn't order tests, just said to sit on the toilet longer to make sure I fully empty my bladder. UGGG!!!

[frustrated106]

I have been experiencing the same thing for a month or two now. Especially at night when I lay down. I have to get up numerous times during the night because I can't sleep with the pressure on my bladder. I feel bloated all the time, like I have a baloon inside which is pushing on my bladder and pushing out my stomach. I have no pain like you would expect in an infection. I have noticed that if I lay on my back the pressure is some better at night. It also seems to get worse after I eat but that only makes sense if I have something pushing on my bladder. It is very depressing with no answers. The Dr. didn't order tests, just said to sit on the toilet longer to make sure I fully empty my bladder. UGGG!!!

[rexgirl77]

OMG so glad I found this site, I am 51 three grown kids  have been having frequent urination for quite some time now but just chalked it up to having big babies and being overwieght. just recently it feels like I have to pee most of the time and like I have a pressure at the bottom of my bladder, I also have frequent loose (not diariah) stools maybe 4 or 5 a day sometimes, does anyone else have this? been tested twice for UTI no UTI but trace amount of blood in urine, went to a different doctor (mine were gone) and she has ordered a pelvic sonogram to look for Ovarian cancer, she scared the crap out of me!! now I see it could maybe be other things, anyone with similar story please let me know, thanks

[tired1234]

What your saying is exactly what is happening to me! I'm only 15 and it has been happening for a couple of months. Last night my last drink was at 7pm and I had to go to the toilet 11 times with this urge to pee. I'm staying home from school today because I am soooo tired. I find that I lay there on my back, and it is worse when I am on my side, and I have to get up to pee pretty much every 15 minutes. I have had no blood or discoloration in the urine and I dont really have any pain, just a dull pain towards my left side.

[Tee0869]

I am having lower abdominal pain (girgling, gas, swelling, distention, lower back pain), pressure that feels like it is pressing down on my vaginal wall as well as the anal area.Just weird feeling in that area. I am older & was diagnoised with FMS, IBS,Hypo-Thyroidism back in the mid 90's. It took a long time but I did find an alternative, general MD & I did get better. I have 2 grown men delivered by OB/GYNs the LaMaze way. I still have my ovaries & my uterus but falopian tubes were tied off. Went to my Gyn last week.she said everything seemed to be okay except for some vaginal thinning. Paps & Mam came back okay. Went to surgeon/MD Friday, he scheduled a colonoscopy & after all that stuff you do to prep, he claimed after starting he quit because of so much curviness in the colon, etc. Had a ct scan 2 hrs. later & they did find a cyst (small) on my right kidney. Not probably what's causing all this pain, etc. For a few days I tried to be very careful about what I drank & ate just to see if it helped. Did a little but not enough. Went back to surgeon/MD and because I seemed sencere he offered me Neurotin. Since I had him fix two hernious, one on lower left & one on lower right, and a tubligation yrs ago...he says it could be scar tissue and/or adhesions. Bo Ho!!!!!!!!!!Not what I really wanted to hear. It's all in your head more or less. Just like before in the 90's! Now, I am looking at Celiac diet, Fobmap diet, perhaps, parasites (had before) as well as Candida Yeast (I did have that before also), and there are a few others to investigate. So I do feel like all of you trying to figure this out. These Drs. would never contend with this much pain or discomfort. It is better when lying down after taking meds. I will keep looking for another dr. also...I found one before & maybe it will take a naturopathic dr. I just don't know but I do hope to figure it out even if it is on my own. I have been messing with this for over a month & this is ridicululous. My Mother believes me & now my husband is starting to believe me also. This has recked havoc in my life & I am very tired of putting up with it. It is preventing from working & just living my life. It has made me think I am dying or have cancer once again. I hope we all can figure out some reason(s) why this is happening to us. Take care, T

[underpressure78]

Feeling pressure for 3 wks. now. Initally felt like a uti after uricalm organic cranberry and enough the lemon juice to give me some serious reflux. I knew it could not be that. I called my Dr. and he prescribed Bacrtim. After a few days no relief, I figured it must be kidney stones. Again with the cran and lemon. The discomfort turned into pain. I went to the er where they said they found no blood in the urine(not stones) and no elevated wht. bl. cell ct.(no infection) sent me on my way. For four days I was in agony waiting unil my gyn. to fit me into her schedule. She gave me Vesicare and said it was bladder spasms(I am not buying that BS)and called in a script for Elmiron(which I am not taking) and referred me to a urologist. No relief...infact there was so much pain that I could not sit. I went to the ER again they did a ct and drew blood,again nothing. They told me to persue an appt. w/ Urologist(duh) and gave me Pyridium which thank god relived the symptoms of whatever this is. Atleast I can be comfortable until my appointment with the Urologist. I hope everyone gets the answers they seek be persistant be aggressive this is your body, don't settle!

[Donna529]

My daughter was diagnosed with IC. She is only 21 but has had these problems since she was young. The doctors never took her seriously because they all felt she was too young to have those problems. They kept looking at her stomach because of the pain involved with IC.  Many foods will trigger IC flare ups. Especially anything acidic. She has to stay away from fruits and juices and tomatoe sauces. Her diet is very bland and that seems to help. Also caffeine wil instantly start a flare up. She is on the same medicine as your daughter and also another.  The specialist has talked to her about disability because she has very painful flare ups approximately three times a week. It is a day to day struggle. Most people don't understand because this is a chronic condidtion and like you said there isn't a cure.  My thoughts are with your family as you all learn to live with this terrible condition.

[mousenose]

was like this 20 years ago doctor told me to take an antibiotic everytime I was intimate thinking I infected easily, I kept getting diagnosed at hospital the emergency with bladder infections and given pills cause my urine looked like it had blood in it.  Eventually my urine was full of blood.  This was the onset of all the pain which never stopped from this point on.  I was eventually diagnosed with interstitial cystitis.  I live my life around the washroom and have had two children.

[mousenose]

it sounds like interstitial cystitis see a doctor and persist there is no cure but at least you'll have peace of mind, I live like that everyday.

[featherfocus]

I too have these same symptoms. Had cysto- all normal, CT of kidneys- all normal. He put me on Vesicare. Nothing is working. I have cysts on both ovaries and feel swollen and also look pregnant! He thinks now diverticuli. He cannot see it but with a vaginal check and when he pushed up into my vagina - he could feel a mass of something and it was very tender. I feel the strong urge to pee really bad and go about 6 ounces. In the morning when I get up, I go about 20 and that is immediately when I get up. I am not sure if the ovaries are the problem causing this pressure - but everything they check it turns out normal. I don't feel normal and I am only 50.

[Endogirl07]

Hello! My name is Bethany. I have endometriosis. Since december, my following symptoms have become worse: intense pelvic pain & pressure, frequency & urgency to urinate, many bathrooms breaks (esp at night) with only 1-2 tblsp of urine, bloating, decreased appetite, feeling full quickly and extreme fatigue. Some of these symptoms are NOT caused by endo. I will be going to the urologist in May. I also need to schedule either another laparoscopy or a hysterectomy for my endometriosis as it grew back. Hopefully my symptoms are something treatable and will go away! (Unlike endo where there is no cure) best wishes ladies! Keep us posted!

[danielledev87]

I have had frequent urination for the past 5 years (ever since my daughter was born). I have had UTIs in the past, very uncommon with me and never long lasting. I rarely have pain when urinating..maybe a half dozen times a year, but do have a dull pain whenever I orgasm. I waited so long to finally talk to my doctor about it because I accepted it as something I will have to live with. It's gotten much worse recently, it's the most frustrating thing to live with. I go to the washroom approx 40 - 60 times a day and 4 - 8 times a night, each time is a normal pee. I went for an ultra sound of the uterus, kidney, colon and bladder today and also a blood test. I should get my results from my doctor in 2 - 4 days. The ultrasound technician was not able to give me any results but did mention that my bladder not even 10% full when I asked him if I could please go use the washroom as I was feeling extreme pressure. My doctor is great and assured me we will get to the bottom of it. I will keep everyone posted on my results.