mesh erosive leg nerve damage

[brelis]

2003 herna repair,mesh was used, 2005 pelvic pain ,surgery found mesh was erosive slipped on nerves mesh was removed, pain was still bad in upper leg and pelvic area. Gynecologist removed two nerves in 2006. Pain is still bad ,from top of leg to toes, sometime numbness, feels like on fire at times. Now he wants to put a port in spine area {that is used to help control the bladder}to control the pain. Should l do this? or go to a different doctor, by the way when l ask about a different doctor he gets upset with me says he can help me. l am only 30 have had over 10 surgerys for endometriosis. l can only work part time standing to long puts me in alot of pain.L have two children ages 12 and 9 l can no longer run or play ball or any thing to that area. Please help.

[Silver]

Hi , I really feel for you , it sounds awful going through all of that . I too have had endo so I know what its like . I would definately seek a second and even a third opinion about this as it sounds quite a big decision for you to make . Maybe there are other options for you . I hope everything goes well for you , take care - Silver

[rmustain]

Hi, I know exactly what you are going through. I had surgery 09-10-06  to repair a cystocele and a rectocele and a tvt sling. The physician used the Gynecare mesh and I awoke from surgery with severe leg pain that has been an ongoing problem for 9mos. The pain has taken control of my life. Iam a r.n.and have missed a lot of work because I can not stand over a couple of hours before the pain puts me to tears. My GYN initially thought it was my back. I went to several different Dr's only to be told that my back was fine. I just had another surgery to remove the mesh off of the sacro spineous ligament to see if this helps. My surgery was 08/08/07. I am praying for a miracle.

[laura1977]

i hope that you aren't talking about a pain pump, if you are go see another doc because it can cause you to loose bladder control.  my mother has that same nerve damage due to a doc causing damage during back surgery.  they wanted to put a pain pump in her, but she found out what types of problems they cause.  Try a tens unit.  it gives you little shocks every so often.  you attach the things to your leg or back or where ever else and turn it on.  doesn't hurt.  helps with nerves.

[sun321]

I hope you ran away from that aweful doctor and didn't look back.
I had horrific problems caused by mesh and tack placement by a gyn and had mine removed at mayo clinic. they do a lot of this type of surgery there, which tells us many doctors are over-using mesh and don't have a clue about the harm they can cause.

[gee30]

  I have a friend who was talked into this surgery in two weeks and I was trying to discourage her based on my experience.  I told her that when I had the procedure in 1999 I was convinced by my doctor that there was a 99% success rate and the recovery time was very quick.  I had a horrible time and outcome and all these years have felt like god why did I have to be in the 1% that did not have a great result.  She tells me that her doctor (different from the one who did my surgery) claims only an 80% success rate. Well at least they aren’t lying as much anymore.
I had the procedure done in outpatient day surgery in our local hospital.  First of all I was taken back that I was not briefed on how much more invasive it was than what I had been anticipating. I had the procedure and left the daysurgery unit a few hours later. That night I was in excruciating pain, could not even walk into the bathroom in my house without terrible shooting pains in my leg  and groin.  This went on for days and I called the doctor and asked if this should be happening.  They acted like I was a big baby and prescribed more painkillers.  I eventually started to function but with difficulty ( constant pain in my left groin radiating down my left leg.  When I went in for my recheck I complained and the doc set me up with a urogynocologist about 50 miles away.  This guy did not get me in for 4 months from the date of my checkup.  I spent the rest of that miserable summer just ticking off the days until I saw this guy.  I had bleeding issues, I had pain and I was getting depressed thinking that I was just overreacting. I had had Csect surgery before this and recovery was very quick so I just couldn't understand why no one was taking me seriously on the pain issues.  I finally went in to see the urogyno guy and he was appalled.  I had part of the mesh cutting through my vaginal wall which explained the bleeding he quickly set me up to have the mesh surgically removed.  I had the removal 2 months after that and he did a simple bladder tack.  I still have residual groin pain, tissue wasting on my left upper thigh and groin area (obviously a nerve was compromised in the original procedure) I have ok bladder control,  I can walk, run and play without worry of incontinence but if anyone asked me I would gladly pee my pants than to have gone through what I did.  I was made to feel like a liar by my doctor,  I worked for a law firm and I think they were way too careful about admitting any wrong doing and dragged their feet on getting me the help that I needed.  I had the tvt placement in Feb and the removal was in Nov.  too much time had elapsed in between and the damage was already done to the nerve. I cannot sit for long periods of time or I get pain in the left groin and down my left leg, I also have an area that has no feeling above the tie off spot from the surgery.  There was little info on the procedure itself back then because it was new.  I am distressed to think that they are still doing the procedure and people are going through what I did, yes there are success stories just too many that aren't.