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mesh erosive leg nerve damage
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mesh erosive leg nerve damage

2003 herna repair,mesh was used, 2005 pelvic pain ,surgery found mesh was erosive slipped on nerves mesh was removed, pain was still bad in upper leg and pelvic area. Gynecologist removed two nerves in 2006. Pain is still bad ,from top of leg to toes, sometime numbness, feels like on fire at times. Now he wants to put a port in spine area {that is used to help control the bladder}to control the pain. Should l do this? or go to a different doctor, by the way when l ask about a different doctor he gets upset with me says he can help me. l am only 30 have had over 10 surgerys for endometriosis. l can only work part time standing to long puts me in alot of pain.L have two children ages 12 and 9 l can no longer run or play ball or any thing to that area. Please help.
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Avatar_n_tn
Hi , I really feel for you , it sounds awful going through all of that . I too have had endo so I know what its like . I would definately seek a second and even a third opinion about this as it sounds quite a big decision for you to make . Maybe there are other options for you . I hope everything goes well for you , take care - Silver
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Avatar_n_tn
Hi, I know exactly what you are going through. I had surgery 09-10-06  to repair a cystocele and a rectocele and a tvt sling. The physician used the Gynecare mesh and I awoke from surgery with severe leg pain that has been an ongoing problem for 9mos. The pain has taken control of my life. Iam a r.n.and have missed a lot of work because I can not stand over a couple of hours before the pain puts me to tears. My GYN initially thought it was my back. I went to several different Dr's only to be told that my back was fine. I just had another surgery to remove the mesh off of the sacro spineous ligament to see if this helps. My surgery was 08/08/07. I am praying for a miracle.
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Avatar_f_tn
i hope that you aren't talking about a pain pump, if you are go see another doc because it can cause you to loose bladder control.  my mother has that same nerve damage due to a doc causing damage during back surgery.  they wanted to put a pain pump in her, but she found out what types of problems they cause.  Try a tens unit.  it gives you little shocks every so often.  you attach the things to your leg or back or where ever else and turn it on.  doesn't hurt.  helps with nerves.
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Avatar_n_tn
I hope you ran away from that aweful doctor and didn't look back.
I had horrific problems caused by mesh and tack placement by a gyn and had mine removed at mayo clinic. they do a lot of this type of surgery there, which tells us many doctors are over-using mesh and don't have a clue about the harm they can cause.
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Avatar_n_tn
  I have a friend who was talked into this surgery in two weeks and I was trying to discourage her based on my experience.  I told her that when I had the procedure in 1999 I was convinced by my doctor that there was a 99% success rate and the recovery time was very quick.  I had a horrible time and outcome and all these years have felt like god why did I have to be in the 1% that did not have a great result.  She tells me that her doctor (different from the one who did my surgery) claims only an 80% success rate. Well at least they aren’t lying as much anymore.
I had the procedure done in outpatient day surgery in our local hospital.  First of all I was taken back that I was not briefed on how much more invasive it was than what I had been anticipating. I had the procedure and left the daysurgery unit a few hours later. That night I was in excruciating pain, could not even walk into the bathroom in my house without terrible shooting pains in my leg  and groin.  This went on for days and I called the doctor and asked if this should be happening.  They acted like I was a big baby and prescribed more painkillers.  I eventually started to function but with difficulty ( constant pain in my left groin radiating down my left leg.  When I went in for my recheck I complained and the doc set me up with a urogynocologist about 50 miles away.  This guy did not get me in for 4 months from the date of my checkup.  I spent the rest of that miserable summer just ticking off the days until I saw this guy.  I had bleeding issues, I had pain and I was getting depressed thinking that I was just overreacting. I had had Csect surgery before this and recovery was very quick so I just couldn't understand why no one was taking me seriously on the pain issues.  I finally went in to see the urogyno guy and he was appalled.  I had part of the mesh cutting through my vaginal wall which explained the bleeding he quickly set me up to have the mesh surgically removed.  I had the removal 2 months after that and he did a simple bladder tack.  I still have residual groin pain, tissue wasting on my left upper thigh and groin area (obviously a nerve was compromised in the original procedure) I have ok bladder control,  I can walk, run and play without worry of incontinence but if anyone asked me I would gladly pee my pants than to have gone through what I did.  I was made to feel like a liar by my doctor,  I worked for a law firm and I think they were way too careful about admitting any wrong doing and dragged their feet on getting me the help that I needed.  I had the tvt placement in Feb and the removal was in Nov.  too much time had elapsed in between and the damage was already done to the nerve. I cannot sit for long periods of time or I get pain in the left groin and down my left leg, I also have an area that has no feeling above the tie off spot from the surgery.  There was little info on the procedure itself back then because it was new.  I am distressed to think that they are still doing the procedure and people are going through what I did, yes there are success stories just too many that aren't.
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Avatar_f_tn
I am currently going through an identical situation.  I had my tvt/sling (after not being told anything about the complications in the past that people have had...nor what I could possibly experience....as I was told it would be the best for me as I was younger (46) and a nurse as it would work better for me than just "tacking" my bladder which had prolapsed in Oct. 2010.  After surgery, I found I was having difficulty walking.  I couldn't extend my Left leg without feeling a "pulling" sensation in my Right groin.  I had called the doctor multiple times and was told to take it easy and continut with estrogen cream and it would get better.....eventually just before my 4 week follow-up appt I was getting down from the discomfort and scared because I had vaginal spotting (something I hadn't had since my hysterectomy in 1997.  the night before my appt. I "checked"myself only to be terrified as I could feel this sharp material (the mesh) up inside me.  I went to my doctor and he could  barely do a pelvic on me because of the discomfort. I asked him what the sharp "material" was and he said it could be scar tissue to use the estrogen, again rest, and come back in a week.  When I came back, the bleeding had stopped so I thought I was improving, and being a nurse, I needed to go back to work.  He said, "no restrictions and all was well."  Well within one week, pain worsened, bleeding worsened and I had to go back the next week.  I again went to my doctor and he referred me that morning to a urogynecologist who had stated that I had severe erosion and all of the mesh must come up (which would take 2 to 3 surgeries) and then I must have a total pelvic reconstruction.  This has devasted me as I am still waiting as the doctor can't operate until mid May 2011 and she said that my urethra has mesh erosion and I am truly scared about the groin pain as it is getting worse each week.  Then, when I got a copy of my 1st doctor's notes...he states he educated me all about erosions and the complications associated with mesh insertion WHICH IS NOT TRUE....then, none of the complaints regarding groin pain were ever written from when I called or was seen....and that is why he kept me off an extra week.  Now I live daily in pain, may lose my job due to the time I will have to take off.....and I have nowhere to turn.  Who takes care of the patient?????this is not right.  I may lose everything....and some doctor's are pushing these implants.......as they are making millions off of them from the manufacturers.  
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