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possible hysterectomy

Well I went in and was finaly able to see my regular Dr. and got the results from the D&C. And he gave me another ultrasound and looked at my uterus and it looked as if I never even had the D&C! There was a lot of inflimation and ALOT of tissue in there. Before the M/C I was having a lot of problems with periods and cramps. They were thinking that I had endo. Well anyway, he said that this is where all the pain is coming from. There is a lot of clotting in there and my body is trying to get rid of all of the stuff but can't. That is why I'm hurting so bad. So I have to wait 2 weeks and wait to see if I get my a/f and see how it goes, if I still havent gotten it then I will get another ultrsound to see what my uterus looks like and if it still has a lot of tissue in it then he want's me to talk to a surgen about a hysterectomy. I'm only 28 and I can't imagian having the choice to have another baby taken away. but I don't/can't live with this pain anymore. My Dr. and I had talked about a hyst. with me but I never actualy thought it was a real possibility. Has anybody here had these problems that I'm having? what was your outcome? My Dr. isn't very optomistic that my body will go back to normal because I have had all of these a/f problems for so long. not sure what to feel about this. Woudl love to hear back from any of you that have been in this situation. ( for all that read my other posts...I don't have PID, that ER Dr. was wrong)
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Avatar universal
Hi,
I would also get a second opinion if you are uncomfortable with this decision. I am having a Hysterectomy in 2 days, I am only 26 but I have 4 kids and wasn't planning on more. I have Endo. and Adenomyosis, so trust me I feel your pain. I am sorry you are going through this and I hope you get to feeling better soon. I tried a couple of medicines and nothing worked for me and I also am sick of thie pain so this is the best option for me. If you want children then it def. is not right for you and you need to explore every option they give you. Good luck.
Tiffany
Helpful - 0
Avatar universal
I will definatly look into it and ask him about it. Now to get a second opinion, my Dr. here is the head OB/GYN and is the Chief of Staff. So going to another Dr. would be kinda going down the todam (sp?) pole? I don't know any other way to put it. I hope that makes sense. Would I go to another town? I just don't want to have to start this whole process over again. Or would he/she just look at my files and see what other options there are? Honestly I'm tired of all of this. I have been so miserable in this area for so many years and we have tried so many different things and nothing has helped. But I love being a mother! It's the most wonderful job (in my opinion) there is. I do have 4 children, but my son has Spina Bifida and I have a 2/100 chance of having another child w/ spina bifida. (average person has 1/2500 chance) And I have had 5 M/C. Last month my husband and I had genetic councling and testing done. We are still waiting on the results from that but the Dr.s there think that either my husband and/or I have some sort of problem with our genes and that is the reason for the M/C's. Every a/f I have I get terriably anemic and there has been so much pain etc etc. There are a lot of problems and it's been going on for years. I think I'm in denial about not having anymore children w/ or w/out the hyst. I just love being a mother so much and could have many more babies. But pregnancy is really hard on my body and I spend a good part of the pregnancy in the hospital. I don't know...it just makes me so sad thinking about not having another. But I am so grateful for the 4 perfect children that I do have. And the thought of going through another m/c is terrifing. It breaks my heart with every baby I lose! I feel like I have been warn out with all of this and am just going w/ what my Dr. says and not questioning...but maybe that isn't the best way to go about this...
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143952 tn?1237864541
has your gyn expressed a concern that the build up of tissue in your uterus could lead to uterine cancer?  or is it due to the pain?
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Avatar universal
I forgot to mention that I didn't get the D&C just for the M/C. We were going to do it anyway...I just happend to get pregnant and lose the baby around the same time we were talking about giving me one. What other options are there to help me?
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Avatar universal
The results from the D&C showed no sign of cancer, but my mother and grandmother both had cancer and ended up with a hyst. And they both started out with all of the a/f problems I have had all these years. It's almost identicle. But he never said anything about being worried about cancer. Right now he is worried about the pain, the fact that I have had 3 D&C's, a lap, and numerious different things to help me. and that we probably won't be having anymore children even if we wanted to. I know it's not the best idea for us to have more children but it's harder for me to give that up. It just seems that I have just been going downhill in the a/f area. I don't know what else to do. According to my Dr. this is the last step. If I failed the D&C the hyst. would be our last option. He did say that I could just keep going on like this...but that would be misserable. I'm open to any options any of you have.
Helpful - 0
143952 tn?1237864541
has he mentioned endometrial ablation?  i know it's supposed to reduce the lining in the uterus, but i don't know if it's something that could help in your situation.  you could always ask your doctor.  try googling it and see what you think.  i'm so sorry you're going through this....it sounds miserable.
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Avatar universal
My Dr. had checked me after the D&C and my uterus was empty, and then another ultrasound today showed everything had come back. My Dr. said that there was a chance that this would happen.I'm a little confused, what seems off? Do you think that there are other options to try and help my problem? We have been working on my a/f problems for a really long time. The hyst. talk isn't just a spur of the moment talk, it's been coming for a long time now. This Dr. has been my Dr. for 11 years now and I trust him completly. But any info you all can give me would be great. I don't think I will be having anymore children, but I wasn't sure how I felt about not having that option. I'm open to any options. What is it that seems off? With a second opinion, would I have to start over with this other Dr.? We have been working for years with this and I dread to have to start over with another Dr.
Helpful - 0
143952 tn?1237864541
well, maybe it's time to ask yourself if you are ready for a hysterectomy.  is this the only option for you?  if so, maybe you have your answer.  good luck, hun.
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Avatar universal
A Hysterectomy is a bit drastic...my mom had an ablation in her 40's and it reduced the intensity of her periods but her hormones levels remained the same.  She ended up having a histerectomy later on but due to other problems not tissue buildup.  I think that your Dr. should be very experienced and you should ask him about all other options and tell him that you feel that you are not ready for a hysterectomy.
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143952 tn?1237864541
who dis is one wise woman.
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Avatar universal
Did the doctor ever say anything about adenomyosis? I have the same symptoms that only started about 1-2 years ago. I ttc, after 9 mo got preggo, then m/c at 11 weeks. Then ttc again, to no avail. I think the clotting and pain and problems with my uterus caused a problem with the implantation, and ttc. Doc said it is adenomyosis, endo inside the uterus.
If I were you I would take time to digest the idea of losing your fertility, it is a grief process, and then consider hysterectomy. It might bring you so much relief after all these years and you can focus better on your kids. I feel for you though. Thats a choice you probably hoped you wouldn't have to make. Good Luck!!1 Oh, and what about BCP's? Have they ever brought you any relief?
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Avatar universal
Thank you all for the replies, I already don't feel quite alone in this process. I'm so overwhelmed with this and dealing with this pain and knowing that losing my baby is going to hit me and knowing I still need to mourn it. I talked with my husband and we are going to get a second opinion. I agree that it is a smart idea. Then if I do end up having a hyst. then I won't wonder what if...
LUCKY -yes, I have spent years and tried SO many different BCP. They make me SO sick. I couldn't take them. I have been on the depo shot and that was a really bad 6 months.  I have had both kinds of IUD's in and they both made things worse. About adenomyosis, I don't know. This past month I have had a lot of different names thrown at me and it's been kinda hard to keep track. What exactly is it?
But what he told me today is that my uterus is inflamed and has way too much tissue and clots in it. I don't rememeber how much he said, but he was amazed at how much because a few days ealier there was nothing. I remember he said that he had to fill more than one cup during the D&C. And it looked like I had about the same in my uterus today. I usualy try and ask more questions and learn, but I was/am hurting so bad I just let my husband talk.

WHO- thank you for your reply, thank all of you. This is a hard thing to deal with even though we have been talking about it for a few years now. It's almost as if I'm mourning any children that I might have had. Does that sound stupid??
Thank you all so much. You don't know how much it means to me to even have somebody to talk to about this. Thank you! I will keep you all updated with the second opinion and everything if you like.
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Avatar universal
I agree with Who.  You need to get checked by another doc.  I've had a similar experience, after a c-section, the doc left some of the placenta in the uterus.  Unbearable pain....worse than childbirth.
You should be checked by someone else.
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