Thanks for your answers they are bothe very reasuring, we should have the results for the last monitering of her heart. She is beening refered to the hospital so hopefully get some answers from that. She is taking all well but is very scared and she hates any attention as she is shy. I will keep you posted what happens next but I would think its going to be a few weeks. Thank you again Take care
Jackie
Hi,
I'm so sorry to hear that you and daughter are going through this. It sounds like she is in good hands and they are looking for all possibilities of the cause of her faintings and seizures. There are many heart conditions that present with "seizures". These seizures are related to the lack of oxygen in the brain during abnormal heart rhythms. Many people are wrongly diagnosed with Epilepsy as the cause of their seizures but in fact are caused by the heart. I'm assuming Epilepsy was probably ruled out at the hospital and that's why they are looking at the heart.
You can check out the SADS www.sads.org website for the different conditions.
Electrophysiologists are heart rhythm specialists and you could ask if this is the type of doctor looking after her. If not, request one.
It must be hard for you being so far away but rest assured that if they are looking for a problem they will find the cause and treat her accordingly.
Take care
Sometimes a heart arrhythmia can cause fainting or seizure like symptoms. For years as a child they thought I had epilepsy. I had to go in each year for an EEG to read my brain activity. It wasn't until my teen years that a doctor said it was my heart causing the fainting and twitching. We moved and I never followed up on it until I was an adult.
But considering the full body involvement, she probably should have an EEG done to rule out epilepsy. Do you know if they found any heart problems from the ECG's? If not, then someone should insist on an EEG. These seizures could cause her injuries when she falls down like that. There are medications to control seizures and she can learn to recognize her aura that may come before a seizure hits and sit down in time.