nerve and spasms

[62458975]

can you help me im Tt5 paralysis female age 53 i have parapysis for ten years and in pain with nerve and spasms


This discussion is related to undiagnosed muscle twitching, severe nerve pain, spasms.

[sulig343]

Symptoms I haven't mention. Weakness, fatique, vertigo, walking like I am drunk. The more movement I try to do, things go on more, like walking into a store, trying to straighten house. It don't take much. Stiffness, lost my car multiple of times when trying to get out some in afternoon and things eased up some. Can't think through things sometimes and tired of falling and getting bruises,knots and scrapes.

[sulig343]

Checked for seizures on 20 mintute test. None. Propanolol helps the full body tremors. Thanks

[sulig343]

Sorry. My first post went on twice when I was signing up. I some one can tell me how to erase I will.Couldn't figure it out. I am sorry if this is long. I never told my story and things are so out of control after that winter I can't stand it any more and I never vented or ask any one what they thought or had the same problems.
Besides urgencies to go to bathroom a lot and continue with the same symptoms that became severe, I went to the grocery store a few months back. Not far. Don't go out any more, drive much. This has taken over 85% of my life. That evening wasn't feeling real bad. Got into the store to the second isle. Had a harden feeling inside and reached for a can and my right hand started shaking real hard. Put my hand on cart, tried again did it again. Happened again and thought I better grab a few things and go home. Went over to the deli and was standing there and legs felt like jello feeling. No one around and wanted to ask for a chair. Leaned up against deli. after that went straight for the line. My daughter called, was checking on me and ask me how I was and I said not too good. Her, son came up right away and did the rest for me. Went home was walking backwards to the house after going forward. Said I am not feeling too good going to lay down. Put oxygen and c-pap on. Last thing I remember and was unresponsive for over an hour. When I was responding had burning and numbness inside my legs and shortly after the head stuff started. They knocked me out after they found me stable, IV ect.Next few days was weird. After this episode things go up and down. Three weeks ago I woke up from a nap and that nerve pain came back again on the top of my legs! Thoughts were not again. Only this time the spasm, burning shooting nerve pain was painful as usual but it reach the end of the bottom of my thigh and a few seconds stop and went to the front of my legs with nerve pain that any one could imagine! I laid there crying for about 7 mintutes. The nerves on the bottom of the front of my legs was totally unbearable! When it was letting up my thoughts were what should I do if this happens again? Go to the E.R? No they would have to kill me to get rid of it or no I will just put a bottle of medicine next to my bed and take it all. These thoughts were coming out of this pain. Well, been taking baclofen for a long while it helps but I feel like I need it 24 hours a day to work. I have been on neurotin for a long time same there too. Pain meds don't help everything. Going back to pain clinic, haven't been there for a long while. Been to rheumatologist, no nothing, Neurologist now did a MRI  on the brain. Nothing changed from the last one. Did a blood work to check B12 and Lyme disease. Nothing. Now he want to pass the buck to the University hospital so to see if they can figure it out. Oh and that neuro doc I seen for 5 years, he thought it was a neurological muscle disorder. So what happens from here. Going to have a long wait to get into this hospital. I,m tired of suffering. Next time it gets severe or I come unresponsive I am going to demand and refuse to leave the hospital, admit me till they can find out what this is. Even with this neuro I would have been happy with a few more blood work, MRI of the spine some thing. He said to call him if they figure it out. He wants to know. Does any of this sound familiar to ANYONE or have any suggestions? Thanks so much if you made it this far. Maybe someone did. Thanks

[sulig343]

Hi. My problems started when one day I was seeing double vision. I went to my othalmalogist who sent me to my family doctor. I had a lil problem with my balance and kinda falling over. Wasn't real bad but different. That was 12 years ago. I am 56 years old now. My family doctor had an MRI done and some blood workup. At that time I was being check for M.S and Lou Gehrigs. Went back to doctor and he was looking at my chart and he said you have M.S. Kinda surprise. There was some lesions (4) and an area of ishemic changes or demyelating. Doctor sent me to neurology and he did the spinal fluid test. It was ok. Strange was the doctor that did the test was putting the needle in my spine and my legs were kicking all over and she made the statement that ones that do that are usually are the ones with M.S. This leg jumping happened when my daughter was born with an epidural 7 years  before that.I also one day walk into a lil store and went to reach out and I had a tremor ( whole body). Not real bad but notice it. Another thing I notice was waking up my feet couldn't be lifted off the floor. Well I was told two things.It wasn't the worse thing, Aggravating falling over, walking was different. So I just thought just kinda wait an see if anything would change. I decided to see a neurologist closer to me. He didn't think it was M.S either. I went to this neurologist off and on for for 5 years when things were out of the ordinary. Muscle spasm, double vision, numbness in legs, then arms, hands, Still falling over.more symptoms that started getting more that should have been. I had also climb stairs at 4 different time and I was just standing there my legs wouldn't move for like 5 mintutes. Over those years had blood work once and brain MRI. One lesion and that demyelating area. My double vision started getting bad and at that time I had like a rumbling thunder noise in my head.It was there all the time. Sometimes lower than others. That was about two years ago. Same symptoms but worse. Was falling a lot and notice I had to pick my left leg up to put it in the car. Got out of car one time after having to do that and went to shut the door took 3 steps and was holding on to the car. Waited to be able to walk. Walking like I was drunk. Well I guess you got an idea how things were going. November of 2010 I was in bed for about a month same problems that worsened, but when I woke up I had this horrid sharp nerve pains going down the top of my thighs with burning and severe spasm. After this month it lighten up a little to come back again. Stiffness, feeling like I got hit by a Mac trunk. The weakness, fatique and that horrid nerve pain with burning and spasm was there. At this point it took all I had not to commit suicide. The only thing that saved me was my family. It took a lot of thinking.
Well following year, the whole works still going on. Can't always walk straight, double vision,some spasm, tremors so bad many of times couldn't get out of the store or stand there for mintutes at a time till it stop. My body wasn't doing well. Those severe nerve pains let up. Five years prior I was also diagnois with severe central sleep apnea. It in check now. Well that rumbling noise in my head got so bad. I was sitting there crying holding my head praying it would go away. The nerves in my head were shooting off real bad also. Was seeing 4 double visions at this time and the noise worsen to close my eyes at the slowest. Happened 4 more times till I one night pray and went to lay down and fell asleep and pain was gone. Now I realize to lay down and go to sleep got rid of it.If I can get to bed. Didn't even wake me up! Pain comes and goes but the rumbling thunder continues up and down with the loudness. It is at this point driving me insane. Had a few more of that horrid pain. Time goes on. I had to find another neurologist. Hard to find a decent one. The neuro othalmologist suggested I get another one. He said doctors normally don't do that against the other. Problem was I couldn't find one during those two months of total hell. I hope I haven't bored anyone. Will follow up on next post. Thanks for listening.