recovery time for miller fisher

[carmen01]

my
34 yr. old son has been hospitalized for over 6 wks. with GBS/ miller fisher. He started with double vision and tingly hands, by the 3rd day he was on a respirater, could not open his eyes , could not talk or move his body. This week he has started to open one eye and shakes his head yes that he can see. His blood pressure goes up and down and his blood sugar levels go up and he is given incilin. He is getting physical therapy once a day and the family also helps when we visit him. He moves his feet sideways on his own. The hospital wants to transfer him to a physical therapy rehab. facility. Do you believe this is the correct way to go? Since his case is severe, how long do you think it will take him to recover? The doctors have said it can be a year or longer.


This discussion is related to Miller Fisher Variant.

[shlok_123]

Hello! My brother in law is in ICU and in critical condition. He is also diagnosed with Miller fisher syndrome. The doctor has completed 5 days IVIG course but he is still unconscious and showing no response. His condition was getting worse very fast. When he was admitted to the hospital he had double vision and was not able to walk. His MRI, CT scan, CFS etc test showed normal range But next day he started having slurred speech and next day be was not able to walk. The very next day he could move his body and eyes. Although the hospital started IVIG treatment next day but even after five days he is not showing any movement signs. Has anybody experienced the same?  Can anybody tell me till what time  the patients should show some response to the IVIG treatment.

[LISA05]

How is your son doing? My husband was diagnosed with Miller Fisher in Oct. 07. All the same symptoms as your son. He has completely recovered, but continues (after 2 years) with muscle pains, gets easily tired, chest pressure.. He has visited all kinds of doctors and they all attribute his symptoms to Miller Fisher after effects. Is your son suffering of the same?