I have a similar case, 2.5 yrs ago I started developing such symptoms. My nipple became a bit pinkish, and scaly. No nipple discharge, no ozzing. Just crust as it is dry. I attached a photo for your ref. is it similar to what you had experienced?!!
I saw 7 doctors and they told me it is not paget's I did 2 biopsies and it came clean in addition to mammo and U/S. Yet I am still concerned. No changes in breast shape, size or skin or color. Appreciate your reply.
Could you see my post nipple disease and paget's where I had attached a photo.
Thanks again
I glad that you were taken care of and are now free from cancer. It is a good thing that you kept pressing the issue!
I am a 41 year old female and what like to share with you what I have been experiencing to see if any of my symptoms are at all similiar to your symptoms.
My right nipple has been extremely itchy for about two years. Sometimes, sometimes at embarrassing times, I have to slip into the side of my bra to scratch the nipple because the itching is unbearable. Recently, I have noticed that my nipple has become painful, almost like a pinching sensation. In addition, the area surrounding the nipple has become very itchy and almost rubbery feeling (but not discolored). I also do not have discharge except for the normal milky type. Today, the nippled started to bleed so much that I had to put a bandaid on it. There is a definite difference in appearance of the affected nipple compared to the left one. The right one is dryer and darker in color all the way around and actually has a dark spot on it (almost like a freckle). I have several times noticed that where the nipple meets the breast, skin flakes-off. I lovingly refer to this as, "breast-rot." I have used Cortisone ointment for months and it has not helped at all with the itching. I have pretty small breasts and do not feel any lumps. I talked to my Gyn last year about it and although he seemed concerned, the mammo and breast ultrasound did not reveal anything so I have not pursued any more (yet) with the Dr.
Ten years ago I was diagnosed with skin cancer (squamous cell carcinoma) on my neck and had an excision with no recurrence as of yet. I'm not sure that this has any bearing but thought I would mention it.
I finally shared with my mother today what I have been going through and she informed me that my maternal grandmother had Paget's disease of the nipple about 40 years ago and had to have a masectomy (at the age of 50). Do you know if this type of cancer is hereditary? I am scrared to death. I have two small children (ages 4 and 7) and my husband is such a worry wart.
I realize that you are not a doctor but can you offer any advice based on your experiences? I am not asking for a diagnosis...just advice... so feel free to share anything you think might be helpful. I am desperate for answers but do not want to seem like a hypochondriac either. I have an HSA insurance plan (high deductible) so I am concious of the potential expense to obtain a diagnosis.
You are indeed fortunate in the outcome of your case. This is an excellent reason that if you ever have doubts a second opinion is the best next step. Much better to be proven wrong than to neglect something serious. Best wishes for your continued successful treatment and congratulations on being persistant. Regards ....