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Myelodysplastic Syndrome Community

WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.
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1 - 20 (of 30) questions
Avatar universal

How to bring WBC up?

BrainsCW
Has anyone found a way to help naturally increase neutrophil count or total WBC?
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What do you do to protect yourselves when your neutrophil count is low?

BrainsCW
I have a total WBC count of 2.0, with my primary issue being neutropenia (my ANC was 280). I am wondering what other people do to protec...
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Thank you

Dwolfff
I have never actually posted on this site but have read on it and many other sites. I am 18 years old and in November my beloved grandmot...
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My sweet father

saddaught
Hello everyone, My loving, wonderful, kind hearted, young father is critical in the ICU right now. Back story: My dad never gets sick or...
1 answer   
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Do cold caps work to reduce hair loss due to Procrit?

Zenakaso
My mother was recently diagnosed with anemia and her doctor thinks she may have Myelodysplastic Syndrome and will start her on Procit soo...
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MOM with MDS

cheflazo
My Mom has been diagnosed with MDS at a younger age than what has normally been the case for MDS. So, I started a website to help our fa...
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MDS and worsening symptoms

Kandyb
I am 30 and just recently diagnosised with MDS. I have WBC at 1.7; hypocellular bone marrow and no iron in my bone marrow. I go to Moff...
3 answers   
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What is next

Umater
Hi! I am new to this site but not new to MDS, I have been on decitabine treatments for 6 months, my blasts are at about 5% they were clos...
1 answer   
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Anyone still on the site?

Atheana
I see some old posts. Anyone our there?
2 answers   
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Newly diagnosed

davidhr
I have just been diagnosed with MDS with RCMD and I am currently at low risk for progression to AML. I am 72 years old and lead a fairly...
17568 tn?1424977159

One Day Only - CCF Oncologists "Live" on MedHelp!

Cindy
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctors from the Cleveland...
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Water Filtration

reelman
My wife has MDS. She primarily suffers from chronic leukopenia due to neutropenia. We are moving to an area that only has well water. ...
1 answer   
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I have large skin tags inside my vaginal lips! Please help!

Needyteen
Hi, I'm fourteen years old and I lead a decently active lifestyle. About a year ago, I developed a strange sort of 'skin tag' (or what I ...
1 answer   
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Hallucinations and violent episodes

tomenswar
My 15 year old nephew has MDS and is currently on dialysis as well as antifungal medicine. He is also getting UV treatment to kill any ba...
1 answer   
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support groups

Vince53
I'm searching for support groups. I need to talk with others about their treatments, what they have tries as far as alternative treatme...
2 answers   
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Fatigue

debsy8342
I have MDS, not receiving any treatment at this time. I'm in a "wait and watch" phase right now. However, I am dealing with a lot of fati...
3 answers   
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Myelodysplasia -- Low platelets

davvydo
I have the blood disease Myelodysplasia, which in my case manifests itself by lowering my platelets and white blood cells. I am reluctant...
1 answer   
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myelodysplastic syndrome

pcpatnaik
My father aged 69 is suffering from shortage of Hemoglobin, RBC and WBC since May 2011 it was identified from Bone marrow aspiration at...
2 answers   
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Survival Rate

Str8att
Hi, I've diagnosed with Myelodysplatic Syndrome (MDS) and ITP back in 2006. Since then I've also had a splenectomy and chemo treatmen...
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Question

needhelptonight
Let me start with the following: a.) I am a bit of hypochondriac that being said, b.) 3 months ago I ran in a 10KM race. 2KM from...
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