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Myelodysplastic Syndrome Community

WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.
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1 - 12 (of 30) questions
Avatar universal

How to bring WBC up?

BrainsCW
Has anyone found a way to help naturally increase neutrophil count or total WBC?
Avatar universal

What do you do to protect yourselves when your neutrophil count is low?

BrainsCW
I have a total WBC count of 2.0, with my primary issue being neutropenia (my ANC was 280). I am wondering what other people do to protec...
Avatar universal

Thank you

Dwolfff
I have never actually posted on this site but have read on it and many other sites. I am 18 years old and in November my beloved grandmot...
Avatar universal

My sweet father

saddaught
Hello everyone, My loving, wonderful, kind hearted, young father is critical in the ICU right now. Back story: My dad never gets sick or...
1 answer   
Avatar universal

Do cold caps work to reduce hair loss due to Procrit?

Zenakaso
My mother was recently diagnosed with anemia and her doctor thinks she may have Myelodysplastic Syndrome and will start her on Procit soo...
Avatar universal

MOM with MDS

cheflazo
My Mom has been diagnosed with MDS at a younger age than what has normally been the case for MDS. So, I started a website to help our fa...
Avatar universal

MDS and worsening symptoms

Kandyb
I am 30 and just recently diagnosised with MDS. I have WBC at 1.7; hypocellular bone marrow and no iron in my bone marrow. I go to Moff...
3 answers   
Avatar universal

What is next

Umater
Hi! I am new to this site but not new to MDS, I have been on decitabine treatments for 6 months, my blasts are at about 5% they were clos...
1 answer   
Avatar universal

Anyone still on the site?

Atheana
I see some old posts. Anyone our there?
2 answers   
Avatar universal

Newly diagnosed

davidhr
I have just been diagnosed with MDS with RCMD and I am currently at low risk for progression to AML. I am 72 years old and lead a fairly...
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One Day Only - CCF Oncologists "Live" on MedHelp!

Cindy
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctors from the Cleveland...
Avatar universal

Water Filtration

reelman
My wife has MDS. She primarily suffers from chronic leukopenia due to neutropenia. We are moving to an area that only has well water. ...
1 answer   
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