Myelodysplastic Syndrome Community

WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.
1 - 20 (of 28) questions
I have never actually posted on this site but have read on it and many other sites. I am 18 years old and in November my beloved grandmot...
Hello everyone, My loving, wonderful, kind hearted, young father is critical in the ICU right now. Back story: My dad never gets sick or...
1 answer |
My mother was recently diagnosed with anemia and her doctor thinks she may have Myelodysplastic Syndrome and will start her on Procit soo...
My Mom has been diagnosed with MDS at a younger age than what has normally been the case for MDS. So, I started a website to help our fa...
I am 30 and just recently diagnosised with MDS. I have WBC at 1.7; hypocellular bone marrow and no iron in my bone marrow. I go to Moff...
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Hi! I am new to this site but not new to MDS, I have been on decitabine treatments for 6 months, my blasts are at about 5% they were clos...
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I see some old posts. Anyone our there?
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I have just been diagnosed with MDS with RCMD and I am currently at low risk for progression to AML. I am 72 years old and lead a fairly...
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctors from the Cleveland...
My wife has MDS. She primarily suffers from chronic leukopenia due to neutropenia. We are moving to an area that only has well water. ...
1 answer |
Hi, I'm fourteen years old and I lead a decently active lifestyle. About a year ago, I developed a strange sort of 'skin tag' (or what I ...
1 answer |
My 15 year old nephew has MDS and is currently on dialysis as well as antifungal medicine. He is also getting UV treatment to kill any ba...
1 answer |
I'm searching for support groups. I need to talk with others about their treatments, what they have tries as far as alternative treatme...
2 answers |
I have MDS, not receiving any treatment at this time. I'm in a "wait and watch" phase right now. However, I am dealing with a lot of fati...
3 answers |
I have the blood disease Myelodysplasia, which in my case manifests itself by lowering my platelets and white blood cells. I am reluctant...
1 answer |
My father aged 69 is suffering from shortage of Hemoglobin, RBC and WBC since May 2011 it was identified from Bone marrow aspiration at...
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Hi, I've diagnosed with Myelodysplatic Syndrome (MDS) and ITP back in 2006. Since then I've also had a splenectomy and chemo treatmen...
Let me start with the following: a.) I am a bit of hypochondriac that being said, b.) 3 months ago I ran in a 10KM race. 2KM from...
My mother has been diagnosed with sever anemia. Iron, Vit B12, Folate levels are all normal. Doctors are waiting on results of a Bone Ma...
2 answers |
My wife has MDS. She is 41 yrs old, and has been battling MDS for about 20 years. Recently, she was having bladder problems and had to ...
3 answers |
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Myelodysplastic Syndrome Community
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