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MS or what- doctors say no-what should I do?

30 years Caucasian f. from S. America  living in the US for 3 years
1 year ago I started on TriamtereneHCTZ for high blood pressure After about 10 days taking it I had an episode that looked like a stroke like a wave of a numbish sensation on my face (Never really numb)  left side Had a CAT scan done  normal. Went to a neurologist and had a MRI according to 2 neurologists nothing that could explain the symptoms Also had evocate tests -visual and auditive-normal  The symptoms came and went, at one point it started tingling (forehead, around the eye, upper lip, nose), then it became only a weird sensation, like if I had some stiffness, numbish, always on the right side of my face. Sometimes its better sometimes it annoys me but it is always there My doctor changed my blood pressure medicine to quinapril didn't change anything Both neurologist said I had paresthesia But what is causing it? Now this sensation is on my scalp left side above my ear.
Some times I have sensations on patchs of my body but can't tell if it is suggestion or something normal. Notice that my arms both go numb at night (had a potential test done normal)I know I sleep with them under my pillow but I had never had this before taking the medicine when I move they come back to normal. There is a spot on my belly (left side) that depending how I move feels weird (rare) and my big toe and my fingers (left) feel weird. As I said, I'm not sure about these symptoms they come and go too fast. I don
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Avatar universal
Contact me if you would like to discuss your symptoms that sound exactly like the ones I had.  Email: ***@****
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Avatar universal
I had the very same symptoms as you some years ago, to make a long story short, I was made to feel as if I was a hypochondriac, or something similar as my complaint list was the size of a kids list to Santa for Christmas. My diagnosis was discogenic disc disease, bulging herniated discs, Arthritis & Fibromyalgia.  The shooting & stabbing pains, terrible headaches, deep aching & stiff feelings I had were so contrary to how I looked that it was hard to beleive I was in that kind of pain, but I assure you I was in unbearable pain.  I had an epidural done on my upper spine & that helped, however, I still had pain so I went on a hunt to find a Natural Alternative that would help with my pain & hopefully with my energy & stamina.  I found such a product and all I can say is IT WORKED.  If you want to know what I did to get such fantastic results that many others I knew got too, then please contact me, I will be happy to tell you.  EMAIL: ***@****.  Be assured there are alot of professional doctors, scientists & research endorsements of this product and many thousands of people's testimonies to the results they get.
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Avatar universal
I am really sorry for your pain... Is your doctor a neurologist? I am really amazed how the doctors give up so quick on their patients... Seems that if they can't figure out what you have they just get rid of you instead taking some time to study your case... Anyway, I think you should gather some information from the internet and then ask all questions you have to your doctor. If you think you might have MS you can try going to a MS specialist (I'm doing that). Even if you don't have it, they will search what you could have.
Good luck
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Avatar universal
i have a bulge on c5 and a pinched nerve i am always in pain up into my head causing headaches tingling down into my soulder blades into my left arm causing a painful nubmness sensation in my arm i get shooting pains in my legs the worst in the right leg recently they just found that i have sleep apea and will be fitted for a cpax and both legs hyperextend bilateral that was found a few years back so i must wear leg braces  anyhow my dr thought i may have ms but she has ruled that out she says that my c5 and the pinched nerve is not bad enough to cause the pain im in but i said then what is causing the pain she didn't come out and its in my head but instead she refered me to a head doctor  please help me i know its not in my head i feel the pain now i must go back to work in pain and hope i dont hurt myself or anyone else .
Helpful - 0
Avatar universal
Hi vc24, thanks for your posting. It's interesting, I do have some synus polyps, but doctor said it's not causing the problem. I'm scheduling an appointment with another doctor to check.
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Avatar universal
My daughter, 22, had symptoms almost identical to yours a couple of months ago.  Nerve conduction tests were negataive and blood tests were normal.  The only thing her MRI revealed was sinus polyps, so the doctor gave her a nasal cortisone spray.  It might have been coincidence, but her symptoms mostly disappeared, along with the frequent headaches she has had for years.  It might be worth a try!
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Avatar universal
Sensory symptoms alone can be a symptom of MS, although rare and more common in males. Usually the diagnosis of MS is apparent from other symptosm that develop such as visual loss or weakness. MS attacks also do not come and go so quickly, but last for at least a few days before resolving

Sensory symptosm that you describe can also, and perhaps more commonly be from drug effects, electrolyte disorder, thyroid dysfunction, a vitamin deficiency or as a post-viral effect among other cuases.

I cannot give you a formal diagnossi over the internet, so I would advise you to see a neurologist if you are still worried.

Good luck
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Avatar universal
Hi Linda, yes, I did. The doctor said it was normal, but I don't know exactly the level. I heard sometimes even if you have "normal" levels, but close to low levels, you can have problems. I don't know what to believe. I've been in 2 neuros and both treated me as a freak...
Helpful - 0
Avatar universal
Have you had your B12 level checked?  Easy bloodtest.  Low B12 can cause severe neurological problems if left untreated.
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Avatar universal
I have been treated for pain and for spasticity and for Fibromyalgia and chronic Fatigue for years.  I have been sick for around 20+ years.  Muscle pain and weakness, dizziness and imbalance, phosphenes, tremors, optic neuritis, dysphagia and choking on liquids, sleep problems, paresthesias all over, and joint pain and weakness in arms and legs.  I have had 3 Mri's of my brain and 1 cervical MRI.  I saw a MS neurologist in 99 who promised me that I would not be crippled.  I saw a neurologist for sleep apnea and he did not recommend surgery, I saw an endo who did needle aspiration on my thyroid and he was sure it was not my thyroid, and he wanted to know what the neuro said.  I saw another Neurologist that first thought inflamation until he talked to the first Neurologist.  Recently lost visual acuity in left eye with severe migraines in my eye and myoclonus and scared I called an othalmologist that dialated my eyes 5 times and did numberous tests and he sent me to a retinal specialist who again said this is not the first time you had this right, and I said yes.  He had MRI's done again (they gave me a cd!) and blood tests and mamogram because I have a lump.  The reports were all negative on bloodwork and the MRI's report was "no change".  I asked for a second neurologist and he could not tell me what the spots and lesions on my brain were and said one really bad one that looks like it has a round knot on the end of it tied up he said was not on the brain?  I don't believe this last one and he told me the ovoids were not thick enough?  How can I get help.
Helpful - 0
Avatar universal
rcs2,your symptoms don't actually fit the patteren of MS at this point.In time they may or may not.I know people that have went 10 years with numbness and tingling,diagnosed as benign and go on to develope MS.It could be a reaction to medications.

Stargazer,you seem to have been getting the run around.If your concerned about the possibility of MS and there are abnormalities on the MRI,s the Cleveland Clinic is an awesome facility.If not in there vacinity call the local MS society and ask for the names of MS specialist in your area.
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