My adrenal low dose stim test showed that my adrenal glands were fine. but my AM cortisol, was 3.5, under range. The doctor said that this is a ACTH deficiency. Secondary Adrenal Insuf. I was told to take 20mgs of hydrocortisone. I have never had low blood pressure, except sporadically, seldom. I have hasimotos, so i am inflamed too.
I am extremely fatigued and puffy anyway. I can only eat tiny amounts because my stomach won't digest. i am holding 15 lbs of fluid..no kidding. Then, they add HC and i balloon even more. I cannot raise my thyroid meds, t3 only, because i get hyper symptoms.
So, my dose is lowered to 15 mgs HC, same swelling. I feel like i will pop. I have gained 3 inches on my waist in 2 months My blood pressure goes from 170/110 to maybe 130/82..it was once 117/72. My belly is blown up. My confusion is that before hc, i had a high pm cortisol of 12..but i was ill and very nervous. My sodium is not low. My pituitary is shrunken.
I think i must make enough cortisol, but my pituitary does not release the signal when it should and when i need it,..does this make sense?.
They think i have low growth hormone, but i have not been able to get a stim test. I am unable to function, drowsy, puffy, weak..they say i have chronic fatigue syndrome and fibromyalgia..the HC, helps the pain, but that's it, i am much worse. Any ideas here on this steroid type and dosing?
SAI, have normal aldosterone and salt retaining properties. Apparently, the glands get enough stim, to keep them from atrophying, but that's about it.
Thank you so much. I think i will have to go back t o Boston, if i want the Gluageon stim test. I do not feel my body would recover from the insulin tolerance test.
i haven't slept all weak, much forgive me if i sound delusional and confused. the anxiet is terrible..i need help and i cant get it.