I have Aquagenic Urticaria does any one else?!

[sonygirl256]

I've had aquagenic urticaria for 2 yrs now and where I live the doctor told me I am the only one that has this in the city.

I was told to do my research on this disease online because my doctor did not have much information about it because its occurance is so rare.

All the medication that was prescribed didnt work. Even using boxes of baking soda  in the bathtub doesnt work and thats what my dermatologist told me would get rid of the hives in the first place.

I'm sick of just dealing with the growing amount of itchy hives. My doctor told me with aquagenic the hives stay on the torso and rarely go anywhere else. After 2 yrs they have spread and go anywhere depending on the amount of time I'm showering/working out/ or even just standing in the sun or wearing my winter coat, and lately i just always have them.


I've dealt with this all alone long enough and I was wondering if there was anyone else who has it? Are there any other tricks of the trade to deal with this awful disease!!??

thanks alot!! <3 lauren

[pkock]

I also have aquagenic uticaria. I was diagonoced several years ago. Have any of your doctors mentioned xolair shots. It has really helped with the hives. Before taking the shots I had tried all the antihistamines which would show only small improvments for short periods of time. If anyone has questions feel free to email me at ***@****. I am more then willing to talk to anyone that has concerns with having this. I know it can be more then frusterating.

[Ram51]

Aquagenic Urticaria. is a paralysis in the skin nerves. The wind energy can not move inside as it lacks mineral the Calcium. This calcium can be sent through the skin by lighting holy lamp with ghee and few combination of herbals. If you need more information please mail me.This disease forms in the womb itself or the calcium in the skin nerve is absorbed by the sudden development of Phosphorus and iron in blood that passes through the skin nerve. I wish to offer few suggestions. Please contact me.
iyerindianr(at)gmail(dot)com

[dri1990]

hey i've been living with the same thing for three years now, after i had my first child. my doctor told me i was his first case he's ever seen. but i think there are more people out there like this than our doctors think. there is no treatment and no cure but there arent for alot of things. and it hurts me that i won't be able to do alot of things with my children that most parents can do. but i keep doing my reseach and keep urgeing my doctor for help and maybe one day someone will come up with something. and now that i know i'm not alone in this battle helps me along the way!

[PoWn]

I thought this allergic was rare, but so many people have it. I just read here.

[ingodslove]

I have it too- since I was in jr. high 20 years ago.
Mine has gone through stages of not being so terrible and other times when it flares quite a bit.  I recently started a food challenge diet to try to identitfy food allergies and now my skin is acting up almost around the clock instead of only when I'm showering or swimming.  I am scared it is from me drinking the water!  I keep getting a coughing/choking feeling!  My husband just drove to the store to pick up some distilled water to see if that helps.
Does anyone's condition improve with a low-stress lifestyle?  It almost seems like it must be hormone-related because so many of us started experiencing it in puberty.  I also am allergic to dust mites and various molds.  Is that a common trait with this condition?

[DestinisMommy]

Hello all. My name is Delonie. I have finally found out that I have this. I have had this for about 9 years now. & it's a constant battle. I was told I could be allergic to chlorine, but even when swimming in a lake or simply sweating I get extremely itchy so the chlorine allergy just never made sense to me. It seemed chlorine did some how make it worse, though. I finally after all these years have broke down & researched my symptoms & figured out this was what I most likely had! & today my doctor told me she was 99.9% positive that I was right. I am being give a cream to try before taking showers & bathing & hopefuly it will help. I NEVER in my wildest dreams would have believed someone could be allergic to WATER or yet their own sweat! :/ I do have a few medical problems so this being added is not what I wanted! This all started around the time I had my 4th or 5th brain surgery & it seems over the years it has just gotten progressively worse. I break out into light red (slightly purple/blue tinted) rashes. I love taking showers & baths, but this condition has ruined it for me. :( I like work out & exercise, but yet I know what I'm done I'm extremely itchy from the sweat on my body. Rain makes me itchy as well! I can't enjoy any water!