I have Aquagenic Urticaria does any one else?!

[sonygirl256]

I've had aquagenic urticaria for 2 yrs now and where I live the doctor told me I am the only one that has this in the city.

I was told to do my research on this disease online because my doctor did not have much information about it because its occurance is so rare.

All the medication that was prescribed didnt work. Even using boxes of baking soda  in the bathtub doesnt work and thats what my dermatologist told me would get rid of the hives in the first place.

I'm sick of just dealing with the growing amount of itchy hives. My doctor told me with aquagenic the hives stay on the torso and rarely go anywhere else. After 2 yrs they have spread and go anywhere depending on the amount of time I'm showering/working out/ or even just standing in the sun or wearing my winter coat, and lately i just always have them.


I've dealt with this all alone long enough and I was wondering if there was anyone else who has it? Are there any other tricks of the trade to deal with this awful disease!!??

thanks alot!! <3 lauren

[AngelPadilla]

It appears that I'm not alone and after reading many comments online about aquagenic urticaria, it also appears that it's not as rare as most doctors think it is. I too have had the same skin reactions since I was a kid  and I'm now 33 yrs old. I live in San Rafael, California (San Fransisco Bay area)... I have the same alergic reactions while showering and taking a bath. I also have those problems while swimming at the beach, lake, and even sweating. I too also have red swollen eyes after having tears, but I just assumed that was normal. I have never told my doctor about these symptoms just because I never wanted anyone to think I was a weirdo, but after reading how common it really is and knowing I'm not alone makes me feel more at ease with letting my doctor know. After showing my skin feels really itchy and I get white patches that make me want to itch them all over my neck, arms, back, and down to my stomch. I even spit up water if I drink it doesn't matter if it's distilled or not. All water beverges makes my stomache upset. The itchy rash from sweating and after being exposed to water looks and feels similiar to flea biites from a cat or dog. Anyhow, it's interesting reading everyones comments on this "rare" disorder. Thanks, Angelina.

[vikkie303]

Hi!I'm from Ukraine,and I have it also((The worst thing we have-that our doctors even don't know what is it!I'm really scared for my life,and I think I know when it started.When I was 16,I was in the hospital.Antibiotic medicines made me like this!Because I started to feel this dissgusting redness just after I was liying there(This incresased hystamine level made by antibiotics is the reason we have this(But no medicine will help us(we have to learn to live with Aquagenic Urticaria,we have no choise.

[josieandgus69]

hi my husband has the same condition for 30years hes tried everything. a couple of weeks ago he  landed in hospital he wasthat bad. they pumped piriton which for a short time worked.i then went to my local holland and barratt store and they gave me  abottle of tablets called weleda urtica urens and quercetin. which at the moment is helping. i hope this information heltps. if you cant get hold of these items please let me know .there is no cure i am afraid but keep trying homapathic remidies.

[Brynlaa]

Hey, I'm not sure if anyone's going to read this, but I was diagnosed with aquagenic urticaria and aquagenic pruritus about a year ago.
The rash and hives that form after contact with any kind of water like rain, sweat, pool or shower have slowly started to occur not just on my chest, but along my arms, all over my back and i'm noticing them on my legs now too.
I was prescribed some antihistamines which do reduce the symptoms, but only minimally and only for as long as I take them. They also have some annoying side effects, like the ones I have at the moment make me so drowsy its hard to do anything after taking them!
something were gonna have to live with i guess!

[aingealblue]

Being diagnosed with aquagenic urticaria, and discovering that is was really rare, had me thinking about all these posts. apparently i am one of the 30 officially recognized with this condition, but it seems weird that heaps of people think they have it. the best way to discover it you actually have it or not is a few ways. 1. have a cool shower with no soap......... see what happens, stand in the rain........... see what happens, if you keep becoming itchy then there is a chance you may have it. go to a dermatologist and demand an ice block test (as many will diagnose people purely on what they tell you).

hope you all get better :)

[kiwicherie]

Hello
My daughter aged 15 has this and its been an ongoing concern of mine that no doctor has really ever taken any notice of it other then we dont really know what it is
I also have the problem with her if we give her water to drink like is recommended for children in hot weather her face swells and she is just so so sore she gets a measles like rash in big patches that is very itchy all over her body
I have combated the hydration problem for now with giving her sports drinks that are high in salts so that she doesnt have to drink to much but can stay Hydrated (im not sure what this is doing to her kidneys but)
as we live in Australia and we sometimes have day after day of hotter heats I had to do something for her or we where in the hospital having her rehydrated with yes WATER as noone would listen to me so it was hospital to fix one thing then home to fix another and it wasnt doing her schooling any good i can tell u
I find this interesting that not many so called doctors or skin specs know anything about this when its so excessable on the internet and seems to be a very common thing after reading many many pages on it
So come on you so called professionals maybe its time for you all to step up the plate and start helping these people its not just a case of I dont know or maybes its very uncomfortable and draining on all concerned I know i have spent years trying to find out what I can do and what it was
Does anyone else have the prob of there face swelling with this ? the swelling is like she has been stung by a bee (the only way i can explain it)
nothing seems to work to help her with her rash at all