VERY WORRIED...IS IT ALS??

[ATB22]

I am a 20 year old female.  My mother has als.  She has been tested for the als gene, and she does not have it.  Still, I am very worried.  I started getting widespread twitching about 2 months ago.  I ignored it and thought it was probably due to the amount of stress I was under.  About 2 weeks ago I started getting a twitch in my left index finger.  It would happen when I was resting and was very predictable.  This freaked me out a little.  I then started noticing that my left wrist/arm was a little weaker than my right.  Maybe I am just paranoid and thinging about it too much, but I am still worried.  Also, on my left hand, it looks kind of sunk in in certian areas.  Please let me know if you have any advice.  I have been talking to my mother's neuro, but have not been able to get an appointment yet.  Any reassurance or information would be great!!

[luvmybabes]

Well I know that after I had my son I have twitching in my legs and stomache. It has been a year and the twitching in my legs are constant. I was so afraid I had Ms Or ALS I went to the doctor and she asked me a bunch of questions. My legs would get weak but nothing else would. they did an EMG where the put little tiny needles in my legs and shocked them ( It wasn't as bad as I thought it would be ... I was actually laughing at how weird it all felt) so then I got a MRI of the brain  and they ruled out both for me and think i am twitching for something that happened during my sons birth,.

[knl]

Hi,

I am going through the same thing.  My Dad has ALS and they claim it's the sporadic type but I'm still scared to death.  I have had pain in both of my wrists and hands with a loss of strength in my left hand.  It's so easy to become obsessed with the symptoms.  I'm not sure if he's ever been tested for the SOD1 gene.  Do you know if that is a standard test that they do on ALS patients?  

[Maisey1]

I would be interested in speaking with you. My dad has ALS (diagnosed 2.5 years ago) and he tested for the SOD1 gene as well---no mutations. Everyone said this was good and I shouldn't worry. However, I have off/on symptoms as well....twitching everywhere. Everyone tells me it's anxiety/stress and that I am paranoid. Have you found anything out about testing for the gene and not having it and finding out anything?

Please, I would love to talk with you-