Complications Post Kawasaki's Disease

[usafbratt]

Hello,

I was wondering if anybody has any stomach issues after Kawasaki's Disease. My son has been having a lot of stomach pain since he had KD. He was 3 years old now he is 15. He also has all kinds of skin issues. His hands and feet still continue to go through this cycle then they peel. He has been diagnosed with Psoriasis, Grannuloma Annulary, and Hyperkeritosis Acanthosesis and he is tired all the time and has joint pain still. Please could some one help. Thank you Lisa

[ameliasmama]

Her abdominal pain is still present but mostly at times when she is sick with some kind of virus. She is 10 now.

[TheLightSeeker]

Hi dariog.

You have addressed a  member who only posted once and that was almost 6 years ago. I hope that this member is still active, and responds to you, but don't count on it.

I would suggest you post a question, with pertinent details about your condition, symptoms and anything else you may want to include.

Take care
Niko

[dariog]

can you tell me how does she feel now?  I have a similar problem

[Kawasakimomma]

I hope you have all reported and contributed to research. We are the advocates of this disease especially during this critical period of research. Since kawasaki is more than likely some sort of autoimmune disorder it only makes sense to have on going adverse reactions due to the body's autonomic nervous system going haywire during this period of distress. Especially those symptoms like RA, which is its own autoimmune disorders. Since this disease is a newly explored project you should go with your instinct in what is causing your post KD symptoms and don't ever be afraid to speak out, you may just help find a cure to prevent further reaction and symptoms after IVIG treatment.

[augbud41]

Update:  I finally went to the Mayo Clinic to understand everything that was happening with me.  They diagnosed my joint pain as Fibromyalgia.  All of these issues appear to me to be tied together as autoimmune disorders (Endometriosis, Kawasaki, Hypoglycemia, and Fibromyalgia), unfortunately no doctor will make that claim because they don't know enough about any of the disorders/diseases.  I have noticed that the older I get the more health issues I have and I am conviced that they are all connected, especially after reading the other posts in this blog.  I am finally on medication that helps my fibro and am able to work (part-time) again.  Before this condition hit me I was competing in triathlons and now I can hardly get through a yoga class.  I have not given up hope yet that I can get back to tri training.  It has been very difficult and discouraging, but luckily I have a great husband to support me though this process and give me encouragement.  For all of you that are suffereing, don't give up!  There are answers and ways to improve.  You have to be diligent and keep digging.  I don't believe that any doctor will give you all of the answers.  Do as much research as you can and talk to your doctor about what you find and possibilties you read about.

[noelia4703]

It is to believed that I had kawasaki's when I was 9 months old, at the time they didn't know much about it, and I lived in an area with a fairly small hospital. I am now being bounced back and forth from specialist to specialist, because they all claim I'm 'healthy' for their field of medicine. My joints have all hurt for as long as I can remember, I have developed severe stomach pain, I have a constant low grade fever, and am very fatigued. Has anyone had any luck with any kind of specialist, or have any advice for someone that is getting very discouraged?

[inthesouth]

my son had Kawasaki's when he was 6 months, now at 18 he has lived with joint pain, immune deficiencies, back pain.  Although his heart did not suffer any damage, the older he is getting the more ailments he seems to have.  He has been tested for RA, immune deficiency,lupus, etc. every tests comes back normal and he gets more discouraged.  Does anyone have any recommendations? Please help.

[kmont82]

I was diagnosed with kd when I was 18months old, before they knew anything really. I am 28yrs old now, and I have stomach problems all the time, seen the gastro several times. I have pain in my joints, I have skin issues and many other issues that keep me from dealing with my day to day. Before I started doin all this research on my own I thought I was crazy, now I know I'm not alone.

[augbud41]

I had Kawasaki Disease when I was 4 years old.  I am now 29 and have no residual heart complications or issues.  Occasionally I break out in a rash or swelling of the hands and feet that have been diagnosed as hives or pityriasis rosea.  In the last couple of years I developed severe stomach pain, nausia, diarrhea, and pain during bowel movements that caused me to be unable to eat or work.  I lost about 10% of my body weight.  I was also very tired all the time.  My gastroenterologist performed every test possible and found nothing, so they diagnosed it as Irritable Bowel Syndrome (IBS) which is just a cop-out because they couldn't find anything causing my problems.  I wasn't satisfied with the diagnosis, so I spoke to my gyno.  She performed a laporoscopy and determined I have endometriosis.  Through a lot of research I determined that I am also hypoglycemic.  I have completely removed all sugar and processed food from my diet and that helps a lot.  About a month ago I started to have a lot of pain and weakness in my hands, arms, legs, feet, and neck.  My doctor thought that it was probably arthritis from the treatment I am on for the endometriosis, but I stopped the medication and it hasn't gotten any better.  It has been very frustrating!!  
I was recently turned on to the theory that all of my issues may be caused by an autoimmune disorder.  Kawasaki, Endometriosis, and some forms of hypoglycemia are suspected to be autoimmune disorders and have unknown causes.  Additionally, several of the other issues that I have experienced throughout life could be explained by autoimmune issues.  I am trying to find a good internal medicine specialist to try to address this.  You may want to do the same for your son.  It is at least worth looking into.

[laurie_bar]

Hi,
My name is Laurie, my son had been diagnosed with kawasaki three times. The last one he had IVIG about one year ago. He was also diagnosed as atypical. He has just been diagnosed with celiac disease and also has positive ana, anti-histone and anti-dna autoantibodies. The doctors have just pretty much given up on his case and said it is probably the celiac disease and that I shouldn't worry, but I have read that celiac disease doesn't cause these autoantibodies.
Please help

[sweetlife70]

i had kawasaki's at age five.  I have many immune related issues, such as eczema, granuloma annulare, possibly RA-getting tested for that now.  It's interesing, i wonder if they are related.  

[kitkatqueen]

My daughter now 5 was diagnosed with KD in early January 2009. She complains almost every night of pains in her legs and arms and sometimes her stomach. At times she becomes very sensative to light and noise. Her skin peels too. I am still trying to find answers too.

[mgjil]

My son had Kawasaki disease at age 3, he is now 11. He did not develop the heart complications   and had early treatment. However since then his feet have continued to peel and overgrow skin in a cycle. the doctor said just to moisturise. Sometimes it is painful because the skin on his feet cracks. i feel sure it is to do with the kawasaki because it is similar to what happened during and just after the onset of the disease when is hands and feet swelled up.    

[Jan_DellTech]

my son actualy is diagnosed of this disease just yesterday, i am in a lot of pain right now, since i cant stand seeing my son go through this pain, i am just 21 years old but i have been working hard to go through, our doctors say we would need 12 shots to cure the disease each cost about 12,000 pesos at such.

[soldy]

Hi,

All symptoms decribing your son has are pointing to mystery illness.In short these are symptoms of exposure to genetically modified foods  such as soybean ,corn ,canola and cotton grown in usa since l985

[ameliasmama]

My daughter had Kawasaki's at age 2 years 10 months.  While she was in the hospital her biggest complaint was that she had abdominal pain.  None of the Dr.'s really seemed to think it was a big deal- that it would go away.  They were obviously more concerned about her heart, which was fine.  She never developed any inflammation in her heart.  However, she is now 4 and has had ongoing abdominal pain.  Prior to her Kawasaki's she never complained about abdominal pain, now it is regular.  She has seen a pediatric gastroenterologist and has had numerous tests with everything being normal.  We stopped short of progressing to more invasive tests (ie. endoscopy or CT).  However, if this doesn't change soon, I'm ready to do more tests to find out why she is constantly having abdominal pain.  She has not had any other ongoing problems with her skin, joints, heart, etc.

[Mister9]

I know this doesn't help you- but I'm 23 and had it when i was a baby and have been having real severe/acute lower back pains.. I never thought it was related to kawasaki but I'm just finding out that I had a spinal tap.  Does he ever have this? I sometimes fall to the floor its so bad!