Hi All,
I have had sudden onset of sx in Jan 2007, it started with eye problems they would get so sore and tired by the end of the day and i'd have trouble following someones finger and my eyes would droop (more so now after 2 yrs). I also had fatiuge in my jaw, shoulder weakness, as i got tested for MS with MRI's on a 1.5 t but no contrasts it come back negartive.
By jan 2008 my legs were so weak the R mainly that i was registered disabled and had to use a wheelchair on occasion and sticks, they dx fibromyalgia by sx but this last year i have gotten consistely weaker and it never lets up i do get flares of weakness and flares of body spasms and more recent vertigo so i am under an ENT and going to another neuro hospital to be retested for MS but i know MG is a MS mimic and wonder if i should be tested for this. My muscles are fatiuged when i exercise and all the hydro they tried made me so bad, the heat makes it worse too, but also if i get too cold that makes it bad too.
My eyes droop by the end of the day and i am shattered,stress makes it worse,i have problems swallowing and choke on my own spit sometimes and my right side of my face feels frozen and is numb feeling in places and my jaw aches that side.
i know the vertigo and body spasms dont fit the MG but all my other SX do?
i just want to know why in 2 yrs i've ended up disabled i used to bea healthy working mum of 3 jogging up to 5 iles a day with my dogs on my days off now i am listless,didabled and a completly changed person i am also a singal mum as my marriage broke down due to my illness so i am desperate for help and advise i just want something to slow this down, if this is fibro why dont i ever get any let up from the weakness? i do have better days then others but that used to be better weeks then other's last yr onwards has been constant with maybe 4 or 5 days inbetween at its best.I am not fatuiged as in tired i dont sleep well but in my muscles my neck is the worst and my legs right worse.
I dont believe this is fibro, i think it's either MS or myasthenia gravis, what do you think, help please.
sam