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Autoimmune Hepatitis

Diagnosis: Chronic active hepatitis with marked interface components and bridging fibrosis. Ulcerative colitis and hypothyroidism.
Can I pass onto my partner any sexual diseases?
I am taking prednisone, imuran and losec, can any of these medications cause
sores in the mouth (tongue)?
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Avatar universal
Thanks for the advise about this drug you mentioned that protect your bones.
I will ask my doctor about it. I was diagnosed May 2007 just before I turned 38.
I know what you mean about being terrified. I also have ulcerative colitis and Hypothyroidism so when diagnosed with AIH I got really scared I have 3 chronic diseases and I'm only 38. The first thing that I thought of were my 2 boys. How will this effect me as a mother. It's been tough I kind of lose my patients but I am trying really hard to control myself. They are only 8 and 3.5 so it's hard to explain to them what I am going through. Well I have blood test tomorrow wish me luck.
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Avatar universal
I know what you mean when you say your tired, however as tired as I am I can not get a lot of sleep. I have never read so many books like I have the past 6 months.
Sometimes I feel like I can eat and eat and eat. It's unbelievable I try to eat lots of vegetables and things that aren't too fattening. I also try to eat more at meal times so I won't feel like picking as much between meals.
Blood tests tomorrow wish me luck.
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Avatar universal
When I was first dx  - Aug. this year-  MedHelp did not have this forum.  Am so glad to see this  here.
As I mentioned in 9743km's thread I "belong" to another board that is strictly for AutoImmune Hepatits people - no viral alphabets. -:)
I am 65 yrs. and do not want to begin to imagine what it would be like  having this and trying to raise a family.  When my Gastro/Hep. Dr. started me on 40mg of Prednisone - it was not pleasant - had really bad mood/attitude swings.  Also wanted to eat continually (NOT good). Would eat a huge meal (went from salad plate to large dinner plate) and 30minutes later want to eat again.  Drinking water helps, some.  Am now down to 20mg/da, and the appetite has settled back down - not what it was before all this but better. Hopefully my weight gain will slow now.  I put on 20lbs is less than 2 months - yuk.  Have the "moon face", no zits. Did have a case of shingles tho'.-:(   Am having problems now with my joints - not old age thank you very much -:) - especially in my legs; have trouble walking sometimes, like they don;t want to  hold me up or move like they should.  As with everything else associated with this, there are good days and there are not so good (bad) days.

How did ya'lls blood tests come out? Do you have to wait long for the results?  Usually get mine back in about 48hrs, max.  My Dr. is soooooo cool - he will call me afterhours just to let me know the results of my labs and how to change my meds., rather than have his nurse call the next day.

I don't know if you do it or not, but it is a good idea to make sure that the Dr. sends you a copy of ALL of your labs. Then ;you can see for yourself and not have to rely on what they are telling you.

Well, will not post a "letter" this time.  Am so glad this is here and hope ya'll post often.  Make sure  you let us know the lab results.  -:)

Tmblwd
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Avatar universal
How did the test results go?  I agree completely w/tumbleweed1999 you must get a copy of all your test results.  I get a copy faxed to me each time.  Makes it easier to look back at your progression.  I am down to 12.5 mg of prednisone and the appetite has gotten much better.  I started at 40 mg as well, and I could of eaten the walls, if someone would of let me!  Face is still a little puffy, but it is better.  I think the summer makes it much worse as well.  So hot and humid!  That we swell even more.  My next labs are Nov 16th, so I'm counting down the days, and wondering how yours went.  Take Care!
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Avatar universal
Got my results and everything is great. My bilirubin direct is on the boarder but it's fine.
AST, ALT and GGT are all within the limits.
I actually see my results even before my doctor through the internet. I also have everything in my own file.  Biopsy results blood tests everything. I have had medical students go through my file because it is better than my doctors.
I have to talk to m y doctor today hopefully he'll take the prednisone down a bit.
Well its not always easy as you all know. I feel bad for my kids some times, but always trying to make up for it. Take care.
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Avatar universal
As I wrote blood tests came out fine. I know what you mean about the hot weather, where I come from most of the time it's warm, even when it's a bit cooler I'm still warm.
I'll let you know what my doctor says.
Good luck with your labs Nov. 16. Have you had any joint problems? I do in my wrist. I don't know if it is connected to AIH and the medication or not.
Take care.
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