Long story, try to make short. I have some sort of auto immune issue going on that first affected my hearing years ago with vertigo and fatigue. Caused HFSNHL in left ear and starting to occassionaly affect my right. Lay dormant for a few years then began again with increased tinnitus and fluctuating hearing loss,vertigo, disequilibrium, low grade fevers, night sweats,severe fatigue and inability to fully wake for at least 24 hours if not days as if sedated. Noticed seemed to increase flares during flu, virus, allergy season and with stress or increased physical exercise. Began to notice intermittent muscle and joint pains, activity and motion intolerance, ataxia, disequilibrium,inablility to focus, visual disturbances, confusion, inability to concentrate, remember simple things and occassionally unable to articulate what I am thinking or incomprehensible words. This is usually accompanied by LOC changes, sensitivity to light and sound, sedation, excessive sleepiness and extremity weakness and sometimes extreme meningitis like headache and neck pain.
I have had ANA reading usually at 1:320 both speckeled and homogenous, intermittent Type II Collagen antibodies around 70, DS DNA around 50 or normal, and an atypical ANCA pattern. My doctors were considering Cogans Syndrome but I do not have Keratitis only an occasional episcleritis. This used to be considered Atypical Cogan's but apparantly the medical community no longer considers this category Cogans dx. I had an MRA. My local Radiologist thought he saw several areas of stenosis but 2 other radiologists said it looked normal accept for some slight abnormalities in the circle of willis that is probably artifact? My sed rate is always very low around 2-3. Therefore they are not considering CNSV. Do you have any thoughts? Is Atypical Cogans and CNSV out of the picture? What about PACNS or BACNS? Or could I be dealing with Myalgic Encephalomyelitis/CFS and the cerebral sx are due to that and the metabolic abnormalities that occur?
Thank you