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Tender/painful neck

Can anyone please advise, I have Hashimoto's and I was hoping to get an ultrasound through an endocrinologist and/or an immunologist if my doctor would not, because the back of my neck is tender and painful and it's on the same side as the swelling and pain on swallowing.
I've been getting bone pain in my chest as well and it can also be tender to the touch.
I don't know what I ought to be doing about it and my appointment with my usual doctor isn't until the 14th January - which seems like a long time to wait.

Thank you
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1530171 tn?1448129593
You RLS could be due to hypothyroid, low magnesium, low potassium
or other reason.
I managed to eliminate my (infrequent) RLS by doing EFT combined with
visualization (I'm an advanced EFT practitioner), but again I love to challenge myself and get into some nearly impossible feats,lol!

Hmm, low magnesium possibility is there as it is common with hypothyroidism.
Perhaps a magnesium oil challenge might be in order.
Just look up trandermal magnesium oil treatment (you can make your own by mixing magnesium chloride flakes with water 50-50).

Endometriosis has to do with menstrual, premenstrual bleeding and "spotting" among many other symptoms. The blood loss showing up in stool or urine is usually associated with internal bleeding due to ulceration or other internal tissue damage.

Your suspected endometriosis should be thoroughly investigated, however,
I feel you have an issue with getting proper medical services, to investigate
diagnose and consequently treat your condition(s).
If endometriosis is indeed what you suspect, it would be likely due to an estrogen dominance (over progesterone). Are you on any birth control which could possibly messup with your hormonal balance?
Topical application of natural or bio-available Progesterone cream (here in Canada it is available without prescription) is probably best to correct the imbalance.
( estrogen dominance also increases thyroid binding globulin in the liver, which binds to thyroid homones in the blood rendering them unavailable to the tissues- that's why it's important to test for free T3, free T4 AND reverse T3 along with TGB in this case).

For the PEG urine test, just do a search under: "Gut Permeability Profile - Biolab" for details.

I get the feeling we know each other from before. Am I right?
If yes, I understand what has taken place.

You may pm me if you prefer the privacy medhelp's messaging offers.

Cheers.
Niko

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Avatar universal
No problem Niko. Thanks for letting me know. :)
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1530171 tn?1448129593
My mistake. Your thyroid function would be low when your TSH is high.
Sorry i did not mean to confuse you. My brain was ahead of my typing,lol!
I'll reply to you later as I gtg now.

Cheers.
Niko
Helpful - 0
Avatar universal
Thank you Niko for this.

TSH is low? My hypothyroid symptoms seem to be getting worse because I get pins and needles in bed which I thought was restless legs syndrome caused by hypothyroidism. I could be wrong of course.

I made a complaint to the NHS complaints service regarding the practice. The NHS sent me a reply saying I sent the email to the wrong address but I only used the one they gave me! Anyway, the email is now sent to the right place (I hope).

I did suspect the blood loss is due to endometriosis because I get knifelike pains in my upper stomach which shoot into my right arm and wrist when ovulating (I presume it's ovulation because it happens mostly around 2 weeks before I start a period). I then get the same problem again just before I start. On both occasions the pain is brief, like an electric shock, but it's unsettling and I've had it for quite a few years. Is endometriosis a possibility and could be the damaged internal tissue?

I will be mentioning this problem to my doctor on the phone Monday as I have an appointment to discuss the low ferritin especially.

I'm quite interested in the PEG urine test for Leaky Gut. :)
Helpful - 0
1530171 tn?1448129593
I have no doubt from what you're describing that you are indeed gluten
sensitive/intolerant, and while being tested for celiacs, if it happens to be
negative, you still have a serious issue, albeit not an medically established one as far as your doctors are concerned.
So pay more attention to your own body and less to your doctors when they rely mainly on lab results and ignore symptoms.
Classic modern medicine intentional disregard for patient suffering!
Even worse, is when the treatment is mainly according to the lab results.
At the end of the day, we don't need doctors!!!
We could have fifth graders in front of a computer, looking at lab results
and when they're off range, the would go to the corresponding list of recommended medications ,select and click PRINT. That would be your prescription!
In all seriousness, you must take charge of your own health destiny.
Your TSH is much too low for optimum thyroid function and worse, you do not know anything about your reverse T3 which reflects thyroid resistance.
fT3/rT3 ratio is probably the most reliable marker for low cellular thyroid function. You're looking at a ratio of 20+ as a target (for better thyroid function). I won't be surprised if your ratio is low, because your low iron status cannot support normal thyroid function, thus the suspected rT3.
Your doctor's office seems disorganized and missing/delaying extremely important things. Consider making a formal complaint, if this continues, since this can have serious consequences to you and this will put them at perpetual check.
Your blood loss is possibly due to some damaged internal tissues and should this be prolonged, it could be more serious than what your doctor thinks.
If I were you, I would make a formal complaint and switch doctors asap!
But that's just me. I have no tolerance for incompetence, specially when it
has to do your with serious health matters.
Leaky Gut Syndrome (not an established medical condition-despite over 11.000 medical studies!) and internal bleeding are often associated, something to keep in mind.
There's a  simple urine test called PEG to dx Leaky Gut.
If you need more details on this let me know, specially with treatment options.

MSM powder is also available for ..horses, however, it is as pure as most other MSM products-99.7%-, but much cheaper. I paid about $60.00 for a 5kg box! And I've been taking it daily-I've shared this with many others as well-with no side -effects what-so-ever!

Cheers!
Niko

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Avatar universal
Thank you for reply Niko, I monitor my thyroid function through my doctor. It used to be every 6 months when the TSH was normal but because it's been abnormal of late it has been every 6 weeks. Now my endo has suggested it's every month for 3-4 month because she feels that it needs to be around 1.0. My latest results show that my TSH is at 3.30 (0.2-4.2) Free T3: 5.0 (3.9-6.7) and my Free T4 is 18.0 (12-22). My dose of Levothyroxine has not been changed and is still 75mcg. I am hoping that my doctor will accept my endo's advice on the TSH needing to be around 1.0.

I am currently on a gluten challenge but I have been on two gluten challenges before this one:

First gluten challenge was started on Jan 2014. My endo ordered a Coeliac screen (I don't know what it consisted of) but didn't tell me for how long I needed to do it for. So I played it by ear and ate things containing gluten (pasta, chocolate etc) for 2 weeks and got tested. Only the IgA antibodies were checked and they were below 1 which meant negative.

The second gluten challenge I started was in October 2014 after getting the okay from my new practice. I followed the instructions on the gluten challenge from the Coeliac UK website in eating at least 1-2 slices of bread a day for 6-8 weeks. Within 4 days I was sick and had abdominal cramps. I couldn't tell the doctor about this because I felt I had to stick to the challenge but in the end I had to give up because I got much worse.

The third gluten challenge I started on the 1st Jan this year after my endo has said she has ordered a repeat screen for Coeliac. But when I went to my blood draw for thyroid and ferritin the nurse taking my blood said there was a blood test outstanding for TTG. I asked her what that meant and she said it was related to Coeliac. I have been getting some digestive symptoms but I'm worried that the symptoms will increase when the 4 days come by because if that happens I know I'll be back to where I was with the second gluten challenge I attempted.

I speak to my doctor tomorrow regarding my ferritin result - I was told my ferritin was low but when I requested the results there was no ferritin on there. The receptionist said that the ferritin "should have been on there" but it wasn't. I have since been getting bruises appearing on my legs (only pinprick ones but still bothersome because I don't know how they got there) and during my period I've been getting blood in my wee and stools (when I wipe my backside there is blood on the tissue) and my ferritin is still low even when taking ferrous sulphate. I am hoping that my doctor will address my blood loss more urgently.

I'll look into Cyrex labs as long as they're affordable.

I did a quick Google on MSM - my local health store sells it. :)
Helpful - 0
1530171 tn?1448129593
Could be under-regulated Hashi's.
How do you monitor your thyroid function?
If your doctor relies on TSH, T3 & T4 results you may be getting unreliable lab resuslts, specially if you have thyroid hormone resistance.
Free T3, Free T4 and reverse T3 indicate thyroid function accurately.

Another thing to consider is gluten intolerance.
Look into Gliadin test (urine), by Cyrex labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily digestive).
Now they can also test which part of the body is affected!
Most Hashimoto's/ Hypothyroid sufferers have gluten intolerance and don't even know it!
The gluten molecules-mainly from gmo grains- resemble the TPO(Thyroid Peroxidase - an enzyme necessary for the signalling Thyroid hormone production) molecules and thus the immune system in its response against gluten, attacks the TPO in the Thyroid also!

You may also do a trial of MSM powder, 1/4t x2 daily with water or juice-it tastes aweful- to help with your inflammation. It is an excellent oxygen transporter to the cells. In 2 weeks you may double the dose.

Hope this helps, however, my comments and suggestions are not intended to replace medical advice.

Best wishes.
Niko
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