Hello. I've been in Limboland for 15 years. Here's my history:
Hep A about age 8
Migraines with aura started soon after - still active
Herpes B
Miscarriage about age 30
Ankylosing Spondylitis about age 32
about age 35 started experiencing: open skin lesions, ski highposi tive ANA, extreme fatigue, cognitive problems, paresthesias, mucosal ulcers, severe muscle aches, hair loss, Raynaud's syndrome, muscle and bruising some minor joint pain, constant UTIs, hot flashes (or fevers - dunno), chills)
to top it off, I have sever OCD - not the behaviors, just the invasive disturbing thoughts
my latest tests show the ever-faithful high ANA, and now a consistant high SMA (smooth muscle antibody)
liver CT, MRI and biopsy all negitive
and I just had a brain MRI which seems ok - it says:
trace periventricular white matter T2 hyperintensity - I'm thinking that's the migraines
so for 15 years my doctors say I MIGHT have Lupus, or I might not, but thet don't know what. all I know is that I have NO enegry and my muscles hurt, and sometimes my hair falls out, and many times I have sores in my mouth, and I can't think straight or remember anything.
now age 49 - am I just getting old?
if ANYONE can give me a CLUE, I would be so thankful!!!
E