Autoimmune what to do??

[jmred]

Hello...I have been ill for 12years now...and have had sooo many test done.  I am dealing with quite alot right now....I have fibromyalgia, DDD, migraines, pituitary brain tumor and a brain aneurysm.  And have some other things going on...with all the test I have had the test for autoimmune which it is poitive then negative...been to many specialist who just tell me I have an autoimmune disease....I loss my hair...I have pain...joints hurt...muscles hurt...I am at present on no meds specific for that but my question is....since I have an autoimmune disease what should I be taking?  I am alot of supplements but is there one thing that is better or worse....help would be so appreciated...I am a 49 year old lady...had to have a hysterectomy when I was 28years due to have cyst on my ovaries which when they popped blew my ovaries a part.  after that surgery was healthy until 12years ago when I started showing all the signs of lupus....even my neurosurgeon says my anuerysm is typical in people with lupus....any help would be appreciated.
Thank you for your time.

JM

[jmred]

Thank you for your comment.   I have been to a lot I say again a lot of different specialist....all who have been rude ignorant and down right mean.  One Dr I saw told me I was fat and yes he used that term and didn't care about many other issues.  I have a D3 deficiency....actually have such a low count I am on 10,000 units a day and even that amount can't hardly get it up.   It has been a rough road and it shows no signs of letting up.   My pain Dr is a gem and treats not just the medical part but also the psychological effects....he has become my Dr, my therapist, and my friend.... I don't know what I would do without him.    

Thanks again for your advice... I will keep you updated as more test are done.

JM

[elbamom]

Wow these symptoms are tough to deal with. Have you seen an immunologist and been tested for an Immune deficiency? For more information about who to see and what testing to have done go to primaryimmune.org  It is free and they can tell you what immunologist are in your area.  They can also suggest what testing will diagnose or rule out an immune deficiency. There are 150 known different kinds of immune deficiency at this time. Most docs don't know about this area and just deal with the symptoms. My daughter was told she had fibromyalgia but she didn't. She has a rare type of immune deficiency. This is the other side of the coin to autoimmune. When you are doing blood work, ask the docs to add on a D3 test. She was also severely D3 deficient and that worsened all her symptoms. More info on vitamin D is at vitamindcouncil.org  You must supplement, food and sun are not enough. She currently takes 8,000 IU of D3 a day, on doc recommendation. It is cheap at Costco, Walmart etc.

Just throwing out ideas, you decide if they can help in any way.
Keep looking for answers, I wish you the best.
elbamom