Back problem symptoms-burning in lower back, buttocks, burning behind legs while sitting...

[versute1]

I have gone to literally over 14 doctors- orthos,neurolgists, neurosurgeons, general practioners, and none of them has acknowledged my symptoms, but will only look at my MRIs and say, "everything's fine".

I have stopped going because I am so sick of paying them for not doing anything for me.  

My problem is related to my lower back and on one MRI a radiologist actually called it what it was- a slight? herniation of L5-S1 and a central disk "protrusion" in L4-L5.  But the neurologist failed to do his job and find out why when I sit, my perineum burns and I have a burning sensation that goes through my urethra also.  Also, while sitting, the back of my legs start to burn very badly, and sometimes my perianal region also.

Now, why can't a neurologist tell me what is being affected, given that it seems the nerves of my perineum and my bladder nerves are being compressed/irritated?  I am on Lyrica and Cymbalta, but other than weird dreams, the Cymbalta hasn't done much, and the Lyrica might be helping with the burning that I was having in my toes.

I have basically given up hope on doctors and have all my hope in God.  Anyway, just wanted to write to see if someone has any experience with the symptoms, or have seen anyone with what I am describing.  I have to lie down to get relief, but I have lied down with my neck on a pillow for so long that I strained my neck and my fingers and left arm started to tingle.  

Any suggestions anybody?

[PPNH]

Please research Piriformis Syndrome.

[hunid]

im suffering from the same symptoms, when i walk im fine but when i sit my buttocks and perineum goes on fire, even back of my thigh get hot and i have to get up to cool it down, i have pain in my lower back as well, and on top of all that i have frequent headaches now. it all started with a little burning down there without any other thing like images on google,  i visited several gyno and run blood and urine test (at that time i didnt have pain or burning in my buttocks) so by this time i was going crazy with no answer so i started searching alot on the web., the symptoms was matching with herpes, but how i can have that and im still virgin and no sexual act of any kind whatsoever??!! i did the blood test anyhow cause they cant take anyother way...it was negative for type 2 but positive for type 1 and she said "despite you are saying it still burning but there is no current infection at the moment and result of type 2 showing it is not new, and antibody in your system is for long time, some 3.5 or something, so we are not sure it is gentile or oral that u have" also she said "it is possible to get from public toilet or even to infect yourself if u had oral herpes by touching or something" so long story short burning didnt go away like they say about herpes within 14 days or max a  month, and my symptoms increasing day by day, stiff back muscle and buttocks and burning which reaches even around my anus, unable to wear jeans and sometimes underwear...i have some pus in my urine as well but my ultra sound for kidney and bladder (i have done it twice) are normal, body temperature changes and im depressed alot, cant focus on my studies or anything and gynos just telling me its in my head and put me on ciprelax and lexotanil which are antidepressant and anxiety pills, and TONS of antibiotics and topical creams for everything (fungus,bacteria, herpes, burning, oil, etc) no relief , pls help me or give me some adv. if anyone of you found any type of cure
tanx  

[munna475]

i am originally from india, living in in here since 2003. i am in situation like you. 10 years back it statrted with burning in my back.what i am telling every thing related to this burning pain. since my teenage time(i was in severe depression and i didn't know about it) i had lot of  inferiority complex that i am short i used to think i am ugly all the time , never used to go to parties , if go also used to sit alone thinking that everybody thinks  i am ugly, in my college days i never made any friends , and i used to sit alone thinking that i am ugly. after i got married i was ok around 1year. then i started thinking that my husband likes other ladies even he looks  at my or my sister, and i used to say to him all the time(he is the best husband in the world, he loves me lot, he is with all the time, when i needed help, he is like god in the form of husband) i wanted to stop thinking but could not stop, i used to cry a lot because i could not control my thoughts. then i went to my doctor(we were in NJ ) told about burning in the back, he did not believe in me, and i asked him to refer me to psychiatrist for my thoughts he prescribed me paxill after month of using paxill my thougts, inferiority were gone, so as my burning pain and i was normal without pain. i went to india for 4 months. and after 6 months stopped taking medicine( i didnot know that should not stop depression medicines suddenly) burning got worse this time in my legs also. then moved to CA. then i went to different doctors nobody trusts me , they say that it is just  my mind (i used to have weared symptoms along with dryness in the mouth,used to burn in the eyes, hard to walk, talk,i couldnot do small exercieses, or swimming i used to get tired fast and burning used to get worse, it get worse before and during my ovulation time , and my periods, too much pain in my shoulders and neck, and too much muscle tightness)one doctor believed me that when i used paxill  i got better. he told me that its neurotransmitters in the brain is the problem. he gave me prozac for 6 months i was relaxed with the neck , shoulder and muscle tightness but burning pain is same. then i went to india and i went neuropsychiatrist told him about all my symptoms and he said burning pain eighter because of diabetis or anxiety. he gave me loropazam(atavin) and escitalopram oxalate tabletsa(lexapro) after using for around 10 days i was normal without any pain. whenever i am india and using medicines iam perfect without pain, normal. when i am here eventhogh i use medicene still have pain , not normal as when ia in india. the reason is i am so stressed here all the time all the time we are here (around 10 years) we never had any friends, family, hard to get pregnant never had children . we are only two in the house. my husband is more  spiritual, self oriented, has goals in life. on other hand iam more peolpels person i like family , friends, children and i feel so lonely and depressed all the time. i am 100% sure its because of anxiety and depression. talk to doctor who can understnad your situation tel him about my sotry me be he will understand your problem and  help you.

[conklev]

Recently, I have the same thing. I have something in my low back and butt cheeks that stings and burns all day. It is hard to sleep when I have it. Sometimes, mine is accompanied by bursitis (swelling in the hip joints). It USUALLY occurs during periods of high stress as I have more and more frequently due to money issues, the economy, a bad neighborhood and a disabled spouse who needs cared for. I am hesitant to even GO to a doctor because I know they will laugh at me. The only things that help at all are escaping the stress by leaving the house, ibuprofen, hugs and laughing and/or crying. I hope this helps.

[jack251]

why don't you ask your doc for an upright MRI.  you are clearly getting nerve root compression which may be more in an upright position than recumbent, so the MRI is not showing the real amount of compression you are experiencing when upright.

[memrleeone]

I have been diagnosed with spondylolisthesis at the L5-S1.  To put it in English it is a fracture of the vertebra at that level.  I causes pain in the lower back, buttocks, backs of the legs, ankles and feet.  The only position I have found while sleeping that helps is on my side with a body pillow between my legs.  I am on Lyrica & Robaxim to help.  The nerve pain has been covered up slightly but sometimes it flares up so bad I want to scream.  It feels like my buttocks, lower back and feet are on fire.  I have swelling in the feet, ankles, knees, hands, etc.  I also have a neck fusion which hasn't taken for the second time so now I have to go through a third C-Spine fusion.  I have had a Facet Block done on the lower back with no positive results.  In fact, the pain has gotten stronger and more pronounced since the injection.  See a Neurosurgeon and Orthopedic surgeon.  I have been bounced between doctors too and the only one with a sort of good answer is the Orthopedic spinal surgeon.  I have had two nerve conduction studies and neither of them has shown any problems with my nerves, BS.  The Physiatrist told me that there are so many nerves in the body that a nerve conduction study being negative doesn't mean anything,  Keep at getting help.  I have even been told by two very good doctors that I am disabled because of my conditions and Soc. Security denied my claim.  Unreal.  Anyway, keep at it.