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Back problem symptoms-burning in lower back, buttocks, burning behind legs while sitting...
I have gone to literally over 14 doctors- orthos,neurolgists, neurosurgeons, general practioners, and none of them has acknowledged my symptoms, but will only look at my MRIs and say, "everything's fine".
I have stopped going because I am so sick of paying them for not doing anything for me.
My problem is related to my lower back and on one MRI a radiologist actually called it what it was- a slight? herniation of L5-S1 and a central disk "protrusion" in L4-L5. But the neurologist failed to do his job and find out why when I sit, my perineum burns and I have a burning sensation that goes through my urethra also. Also, while sitting, the back of my legs start to burn very badly, and sometimes my perianal region also.
Now, why can't a neurologist tell me what is being affected, given that it seems the nerves of my perineum and my bladder nerves are being compressed/irritated? I am on Lyrica and Cymbalta, but other than weird dreams, the Cymbalta hasn't done much, and the Lyrica might be helping with the burning that I was having in my toes.
I have basically given up hope on doctors and have all my hope in God. Anyway, just wanted to write to see if someone has any experience with the symptoms, or have seen anyone with what I am describing. I have to lie down to get relief, but I have lied down with my neck on a pillow for so long that I strained my neck and my fingers and left arm started to tingle.
Any suggestions anybody?
I have stopped going because I am so sick of paying them for not doing anything for me.
My problem is related to my lower back and on one MRI a radiologist actually called it what it was- a slight? herniation of L5-S1 and a central disk "protrusion" in L4-L5. But the neurologist failed to do his job and find out why when I sit, my perineum burns and I have a burning sensation that goes through my urethra also. Also, while sitting, the back of my legs start to burn very badly, and sometimes my perianal region also.
Now, why can't a neurologist tell me what is being affected, given that it seems the nerves of my perineum and my bladder nerves are being compressed/irritated? I am on Lyrica and Cymbalta, but other than weird dreams, the Cymbalta hasn't done much, and the Lyrica might be helping with the burning that I was having in my toes.
I have basically given up hope on doctors and have all my hope in God. Anyway, just wanted to write to see if someone has any experience with the symptoms, or have seen anyone with what I am describing. I have to lie down to get relief, but I have lied down with my neck on a pillow for so long that I strained my neck and my fingers and left arm started to tingle.
Any suggestions anybody?
Holy smokes! What happened 10 years ago? And what could be happening to perpetuate your problem? You mentioned that you "tried all Western and Alternative Med treatments you can think of" but what you need is an evaluation to determine the source of the problem.
Pain across your lower back is indicative of active trigger points in the lower rectus abdominis muscle. I'm going to suggest that you start here because you describe pain in relationship to your posture. You wrote " I cannot sit, stand or even lay down for more than 10 minutes without the pain sending me thru the roof."
Lay on your back (supine) and bend your knees. Using your fingers press into your lower rectus abdominis muscle. Keep moving around until you find a sore spot. Most lower trigger points are located on the outside border of this muscle and where it attaches to the pubic bone. Apply pressure. If you hit on the right spot you will reproduce the pain in your lower back. If this is the source of your problem the rest will take care of itself.
If you're unsure whether the pain is due to something other than muscle raise your legs ever so slightly to tense the abdominals. If the spot is still sore that indicates a positive Carnett's sign. Then you know the problem is in the abdominal muscle and due to nerve impingement and/or an active trigger point.
If you can't find a sore spot have someone else apply the pressure - preferably someone skilled in palpating muscles.
Good luck and please make every effort possible and focus on the abdominal muscles. I'm sure that's the source of your problem as the abdominals are often overlooked as a source of back pain.
Pain across your lower back is indicative of active trigger points in the lower rectus abdominis muscle. I'm going to suggest that you start here because you describe pain in relationship to your posture. You wrote " I cannot sit, stand or even lay down for more than 10 minutes without the pain sending me thru the roof."
Lay on your back (supine) and bend your knees. Using your fingers press into your lower rectus abdominis muscle. Keep moving around until you find a sore spot. Most lower trigger points are located on the outside border of this muscle and where it attaches to the pubic bone. Apply pressure. If you hit on the right spot you will reproduce the pain in your lower back. If this is the source of your problem the rest will take care of itself.
If you're unsure whether the pain is due to something other than muscle raise your legs ever so slightly to tense the abdominals. If the spot is still sore that indicates a positive Carnett's sign. Then you know the problem is in the abdominal muscle and due to nerve impingement and/or an active trigger point.
If you can't find a sore spot have someone else apply the pressure - preferably someone skilled in palpating muscles.
Good luck and please make every effort possible and focus on the abdominal muscles. I'm sure that's the source of your problem as the abdominals are often overlooked as a source of back pain.
Wow! Such kind and gentle words!!!! How many people do you think you are going to help with that type of attitude? I am surprised you are not suffering with the rest of us. Oh! Wait - I think you are suffering but in a different way.
I was having a lot of pain today so I decided to go on line to see what I could find about my pain issues and I came across your conversation with these nice people and you seem to have lots of healing in your kind and gentle words. Therefore, I thought I would jump into the conversation if you don’t mind.
I am a 45 year woman who has suffered these same type of symptoms for the last 10 years and I have the same story as these good folks have. It seems I have tried all Western and Alternative Med treatments you can think of. It makes me so sad that other folks are suffering as I with this. It is a slow torture and torment throughout one’s day, week, month and year. I would not wish this on anyone.
My symptoms are like everyone elses except my burning is in my left faucet joint area down into my buttocks and wraps around to the front of my Quad. All across my low, low back hurts. I cannot sit, stand or even lay down for more than 10 minutes without the pain sending me thru the roof. I take Ambien just to get me through the night. My pain is increasingly getting worse and worse and like some folks the doctors have no idea what is wrong with me. I am not able to take anything orally for the pain because all the anti-inflammatory drugs I have taken over the last 10 years have messed up my system and my body does not tolerate any of the painkillers. Boy! How I wish I could take a pill and make it all go away. One gal said she is using Trameel – I haven’t heard of that. I will try to find that.
What I am currently doing is: Yoga - I workout at the gym - I lay down on the ground with my buttocks, legs and feet up the wall (sometimes I ice while I am in this position) I do the Static Wall. This is where you get in a sitting position with your low back against the wall and hold for a minute or so. I am on gluten, caffeine, and sugar free diet (just started this diet again) I ice - I heat (but I didn’t know about icing then heating then gentle exercises - like you advised that lady to do) I will try that. I do my spine exercises and stretches – I use Bio Freeze and Asper Cream, but the last couple of weeks nothing seems to help much. Resting and moving is just not helping but what else is there???? Oh! I am praying too. My worst times are during weather changes. Why is that?
I am a 45 year woman who has suffered these same type of symptoms for the last 10 years and I have the same story as these good folks have. It seems I have tried all Western and Alternative Med treatments you can think of. It makes me so sad that other folks are suffering as I with this. It is a slow torture and torment throughout one’s day, week, month and year. I would not wish this on anyone.
My symptoms are like everyone elses except my burning is in my left faucet joint area down into my buttocks and wraps around to the front of my Quad. All across my low, low back hurts. I cannot sit, stand or even lay down for more than 10 minutes without the pain sending me thru the roof. I take Ambien just to get me through the night. My pain is increasingly getting worse and worse and like some folks the doctors have no idea what is wrong with me. I am not able to take anything orally for the pain because all the anti-inflammatory drugs I have taken over the last 10 years have messed up my system and my body does not tolerate any of the painkillers. Boy! How I wish I could take a pill and make it all go away. One gal said she is using Trameel – I haven’t heard of that. I will try to find that.
What I am currently doing is: Yoga - I workout at the gym - I lay down on the ground with my buttocks, legs and feet up the wall (sometimes I ice while I am in this position) I do the Static Wall. This is where you get in a sitting position with your low back against the wall and hold for a minute or so. I am on gluten, caffeine, and sugar free diet (just started this diet again) I ice - I heat (but I didn’t know about icing then heating then gentle exercises - like you advised that lady to do) I will try that. I do my spine exercises and stretches – I use Bio Freeze and Asper Cream, but the last couple of weeks nothing seems to help much. Resting and moving is just not helping but what else is there???? Oh! I am praying too. My worst times are during weather changes. Why is that?
Thank you agpb. I appreciate the compliment and the words of encouragement. I'm sorry I didn't get back to you sooner but I was away.
It's interesting that you wrote because I have been thinking about you ever since and I wanted to tell you that your burning sensations may be due to bulging discs, nerve entrapment and/or activated trigger points.
I'm not sure what you mean when you describe your back as deteriorating. If you're referring to your bulging discs they will heal in time but if you suffer from osteoporosis yes, the ADT treatment may be responsible.
There is only one way to know for sure if a facet joint injection will help you. Please let us know if you decide to take that route and what the results are.
As far as your knees are concerned I would need to make an assessment based on your history. The 70 year old client I have been working with used to be a runner. He ran competitively and he was the best.
I'm left wondering if your chiropractor and masseuse/masseur knew that you suffered from bulging discs when they treated you and where the other herniations are.
I'm always impressed when people push through their pain - what's more inspiring than that!
It's interesting that you wrote because I have been thinking about you ever since and I wanted to tell you that your burning sensations may be due to bulging discs, nerve entrapment and/or activated trigger points.
I'm not sure what you mean when you describe your back as deteriorating. If you're referring to your bulging discs they will heal in time but if you suffer from osteoporosis yes, the ADT treatment may be responsible.
There is only one way to know for sure if a facet joint injection will help you. Please let us know if you decide to take that route and what the results are.
As far as your knees are concerned I would need to make an assessment based on your history. The 70 year old client I have been working with used to be a runner. He ran competitively and he was the best.
I'm left wondering if your chiropractor and masseuse/masseur knew that you suffered from bulging discs when they treated you and where the other herniations are.
I'm always impressed when people push through their pain - what's more inspiring than that!
You really are a special person PPNH. You are an inspiration to those who post their stories of desperation and have been largely written off by various sectors of the medical community.
I last posted on. Feb 27 2011 and appreciated your reply. I have tried to keep up stretching and exercising as much as possible but strong massage and any chiropractic manipulation results in my burns returning in Spades.
Since my last communication I have had an MRI on my lower back and I have 3 bulging discs, the worst being at L3/L4. Do you think this could have anything to do with my burns?
I am 71 and had a radical Prostatectomy 14 yeasts ago and have been on Androgen Deprivation Therapy ever since, as the cancer was outside the capsule. Another question; do you think that the ADT treatment could have led to the deterioration in my back and possibly my knees?
Do you think it might help my burns as well as my back pain by having a facet joint injection?
I live in Western Australia and keep active with property development, chairing an IT company and being a part time art consultant. Sometimes I have to push myself if I have bad pain and burning but at least it takes my mind off my problems.
Keep up the good work and many thanks.
I last posted on. Feb 27 2011 and appreciated your reply. I have tried to keep up stretching and exercising as much as possible but strong massage and any chiropractic manipulation results in my burns returning in Spades.
Since my last communication I have had an MRI on my lower back and I have 3 bulging discs, the worst being at L3/L4. Do you think this could have anything to do with my burns?
I am 71 and had a radical Prostatectomy 14 yeasts ago and have been on Androgen Deprivation Therapy ever since, as the cancer was outside the capsule. Another question; do you think that the ADT treatment could have led to the deterioration in my back and possibly my knees?
Do you think it might help my burns as well as my back pain by having a facet joint injection?
I live in Western Australia and keep active with property development, chairing an IT company and being a part time art consultant. Sometimes I have to push myself if I have bad pain and burning but at least it takes my mind off my problems.
Keep up the good work and many thanks.
Cold is first - followed by heat - then active range of motion. That is the order.
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