Chronic back pain/ hypermobility syndrome

[Poohead7373]

Hi there, I am 19 years of age with chronic back pain since July 2014. I have been diagnosed with hypermobility syndrome (meaning my ligaments are more flexible than most people's ligaments which allows my bones to move in weird ways). In July I lay down on my couch which is nothing new and I couldn't get back up. Every day since then I have been on at least a 6 out of 10 on a pain scale and done days I am unable to walk and am on 10 out of 10 scale. I have been on various different pain relief medications such as Valium, lyrica, pain patches, kodeine based drugs, injections and since august 2014 I've been on opiates daily. I have been for MRI scans and to consultants and to physio and acupuncture. I was advised to avoid chiropractic treatment by my GP as it would make me more unstable. I don't know what to do anymore as I am still very bad and I am wondering does anyone have any ideas? I would really appreciate any help I am so lost!!

Thanks x

[philnoir]

That's the spirit. Finding a solution to your particular problem requires your participation. Learn, talk, and never give up. The way to successful pain management is through courage, confidence, and perseverance.

[Poohead7373]

Thanks a million for advice I use heat a lot and have tried lots of practitioners but I'll keep researching and trying. Thanks again!!

[philnoir]

Good posture is very important at all times for those who live with hms. This means strengthing the core musculature around the spine. But don't do situps or exercises you find on the internet. See a specialist who can teach you how to strengthen slowly and correctly, w/o injury.

Second -- warm water is a great healer. It removes the burden of gravity from connective tissue. Swimming can be an easy way to build muscle and endurance w/o risking muscle tears.

When you find the right therapist, perhaps a physiatrist, you'll learn skills to manage this disease on your own. There are many therapists and some have nothing to offer. Seek out one that really helps.


Best wishes.