Please, have had surgery but still weak, and in pain.

[brcatherine]

Hello, originally posted in neuro, I will try to keep it as short as can. I had an acdf c5-6 in sept and am still in horrid pain. Mri before surgery: reversal of normal lordosis, c2-3 mild uncal hypertrophy with mild mod neural foraminal (nf) stenosis bilat. c3-4 same but no stenosis, c4-5  moderate rt paracentral disc protrus. abutting the cord, with mod (nf) narrowing bilat. c5-6 large left paracentral disc protrus. with mass effect on cord, and bilat (nf) narrowing.
Before surgery had pain between shoulders and in shoulders and down arms, extreme arm weakness difficult to do hair there at end because of weakness, and numbness in arms. Urinary freq, then retention, then it would get so full that urinating became painful and I had started to have incontinence. At time did not really put this together with my neck issues, but after surgery this improved. I had twitches and jerking, had become very stiff and my walk was jerky and stiff. This next part may make me sound crazy but im not. My skin is so sensitive I cannot bear to have it touched it is not what i would call painful but I can not stand to have it rubbed or touched. I also can not tell where my arms and legs are when eyes closed(not crazy). They could be up, down crossed I can't tell, once I open my eyes I know what and where they are. I'm not crazy.
Ok since surgery, numbness in arms gone, still weak especially the left one. Urinary issues were better, now starting to feel like it did before. Pain in arms better, but worse between shoulders and to top of rt shoulder. My left hand is excruiating especially fingers. Left hip and leg(down the back excruiating buning) buttocks area seems to be numb. My feet burn so bad. Still twitch and jerk and am still very very stiff and jerky walking and my legs feel weak.
I know this may all sound crazy and I feel like I'm losing my mind. I am 40 yrs old, 5'3" and 110 lbs. I am still doing my exercises and making myself walk, but it is getting harder and harder due to pain and just being clumsy. I just don't know if it is normal to have increased symptoms after surgery or have I done something wrong to hurt myself. Is there anything  I can do to make it better.
Please help and thank you

[brcatherine]

hello thanks for responding. I know it has been almost five years and I am so exhausted. I haven't had all the symptoms for that long but it just keeps on coming. Don't get me wrong I have had some relief. I think I'm afraid the ones we didn't fix maybe should of been fixed. When he did 5-6 he said it was a mess and I had quite an area of "softening". At this point I'm still not back to work he won't release me, won't even talk about it. I am not great at discussing "my own problems" at the dr. (5 yrs of being told to live with it, nothing wrong, etc etc. Kinda hoping it will improve. Do you have any idea how long it may take once the spinal cord is "quite involved".  And yes i will keep you updated. thanks again.

[squirtatious]

Wow!!!! That's a lot to have going on, I would discuss ur symptoms with ur surgeon, keep me posted