apologies from me for any negativity felt by readers...I was putting myself in the hypothetical shoes of someone recently tested positive..if reading the posts this person may have become anxious psychosomatic repercussions.Thank you all for your valuable informative posts. Xx
Hi, im 20, thalassemia minor, detected it only 2-3 years ago. the doctor told me that there wouldnt be a problem when im exercising so i've been taking part in sports competitively since i was 13. i too experience breathing difficulties and dizziness when im being pushed too hard in fitness and when i have insufficient rest time. my period's also always early and i always look pale recently. it seems to have gone so bad to the extent that im unable to sustain a run of more than 2k if my starting pace is too fast. im really puzzled if i should continue my training because i really love the sport but i dont seem to be able to last long enough during the game. :(
I am 44 years old, i suffered minor BT, already 6 months in the year I had a very severe anemia, fatigue, frequent infections in the body so that my white blood higher than red blood.
I struggled from childhood until this year to work hard and live life like a normal person, but I admit to 6 months, I almost gave up because I sometimes can not get out of tdur to do the right thing I could do, I need help from others, every week I need medicine to get back to work and within one month I am more in bed than my office to work.
until I found this post yesterday, only 2 days I read the testimony of friends - friends turned out a lot with me to struggle with the disease and live a normal life
thank you everyone who wrote in this post
God Bless our
I also recommend two books about Chinese dietary therapy: Healing with Whole Foods by Paul PItchford, and Longevity: The Tao of Eating by Aileen Yeoh. The Chinese approach is not a quick-fix but by changing your dietary, exercise, and thought habits over a long period of time you will build sustainable health support systems into your life and may even end up with better health than your non-thalassaemic friends who will have burned themselves out!
This is a very unhelpful post - as if everyone were the same. You are lucky that you are not adversely affected by symptoms, but many people are, you just don't have the empathetic ability to put yourself in their shoes. I am surprised as a pharmacist you have nothing more constructive to say, but then this approach from the mainstream medical profession is one of the reasons this forum exists.
I also went through similar problems at school with exercise - the level of ignorance among the teachers was shocking. As an adult I have devoted myself to finding forms of exercise that are appropriate and beneficial.
I recommend, in no particular order, walking, 5Rhythms dance, tai chi, yoga, salsa, cycling, swimming, light weight training and rowing, elliptical machines. I have also found much benefit in African healing dance and Indian classical dance. Enjoy the journey of healing!