what is going on?im getting bad mood swings and feeling really weak.

[brainpain]

my crainotomy was 3 years ago. my mri was all clear no signs of recurance. im having alot of problems with my moods. my body is so tired and weak i feel like i have ran 10 miles in my sleep. my mood swings are getting worse. i stay moody/angery almost every day from the time i wake till i go to sleep.i am having dizzy spells i have passed out when i came to i was covered in sweat.im starting to have some memory loss. i have heart palps and wore a monitor my heart would race up to 180 per min. my doc wasent worried about the palps. i dont know how to explaine it but its like im froze i can hear and see but i cant talk this last about a min. my hypolamus was damanged from the pressur of my tumor. i have been gaining 10pnds and losing it in 3 days,sometimes overnight. i look like im 7mnts preg. im not on any meds except for dialintin for seizures. i realy want to know why im feeling this way. i havent had bloodwork done in a while. all my labs was lower than before except prolactin was higher. any idea whats going on? please help im sick of feeling like this.

[rumpled]

I have gone to the "best" and found out later that they were not.. sadly... the lines are weird - I would look on the internet - maybe vitamin or something?
Do you need salt or calcium - why the dizzy?
You need testing and treatment - find another doctor.

[brainpain]

i have gotten so dizzy and sweaty my son had to help me get to my couch. rumpled this has happened alot lately. when i get dizzy and sick it happens in seconds without warning. my endo is a neuro "pit " specialist. he is on the pituitary network list of endos.i have left his office confused and and hurt so many times. when i try to see another endo they say hes the best and no test ,treatments no nothing. i dont know whay it is but ive got thick lines on my finger nails,any ideas? i dont know where to turn i cant get diagnosed or any help even for my migraines.i feel like im gona have to almost die before i get the help i need.

[rumpled]

Find another endo - you need thyroid and probably growth hormone meds - the doc is not treating you correctly.  On some (many) hormones, my endo keeps my in the high, not the low end! Plus you may need vitamin D, calcium and some other things too - you need to see another endo.

[brainpain]

i am not on any meds except dialintin for my epilepsy.i havent had any testing like that.the only test i have had is just leave his office and get bloodwork. the endo i see is my surgons partner. the endo tells me im fine and as long as i am on the low end and not below. my endo tells me im fat and need to lose weight and exercise. he is a pit endo but deals with diabetes mostly. Rumpled how sick would i get if my labs drop under the low end?  i cant imagin feeling worse than i do now. any symptoms i need to watch for? thaks for your help.

[rumpled]

Sounds like you are going hypopit or maybe panhypopit.
Are you taking thyroid?
I don't know what your igf-1 scale is, but that seems to be on the low end.
The stim test is where they inject you with insulin, make you feel sick and draw IGF-1 tests on a 30min intervals. It is grueling, but the insurance companies will not let you have the meds without it.
Anyway, it sounds like you need an upping and adding of meds...

[brainpain]

i have had my growth hormones checked. it was just a bloodtest aafter my neuro visit.is there a different way to test? i have only had all my bloodwork after each neuro visit.i do have some of my labwork.
acth-16 now 6
tsh- 0.80  0.56  now 0.47
prolactin- 6.4 now 11.1

hgh - 1.15 - 0.12 now 0.1  (0.0-6.0)
igf1 140
any ideas on bloodwork? i dont understand any of the labwork. what is a stim test? i never know im having bloodwork done till i leave the office. thanks for your help rumpled.

[rumpled]

You may need growth hormone. Have you been tested (a stim test) for that? It happens after pit surgery that it goes down, and the symptoms are very close to Cushing's.