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Age 29; lactating with Breast Cancer

I've recently written due to my own Birads 4 concerns (- for cancer); and now my beautiful 29 year old daughter was just diagnosed with BC.
She is the mother of a 1 1/2 year old that she is nursing.  A rather large (feels size of quarter) tumor was recently felt in the right breast just above and off center of nipple.  Biopsy proved it to be BC.  She is having an MRI today and then removal by Friday.  This must be extremely rare for her age.  Surgeon who is head of the Breast Center said due to age this could be very aggressive and needs to be treated aggressively. My husbands sister was diagnosed at 33 and died at 38.  They want to due the gene test.
I know we won't know more specifics until after Friday, but is it more difficult to treat younger women?  How rare is this in someone her age. Thank you.
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127512 tn?1193742216
I am hoping you will see this and let us know how you and your daughter are doing.
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127512 tn?1193742216
kimberlie - She needs to be very agressive with her treatment. I am sorry to hear it was in the lymph nodes. I found Dr. Susan Love's breast cancer book and her Breast Cancer Book For Dummies informative reading. Your daughter is young and strong and will do well.
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Avatar universal
Wow!  Just saw that piece last night on 20/20 about Geralyn's story.  I will need to get that book.  What a fighting spirit she has!  
Also found several others on Amazon that reviews about were good.  'Nordies at Noon'; 'Just Get me through this'; Dr. Love's newest; and Chicken Soup for the Breast Cancer Survivor's
Soul'.
Hope is what we need and that wonderful fighting spirit!  
Thank you for the warm thoughts for my daughter, Melanie.
Take Care of yourself.
Kimberlie
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Avatar universal
Boninclyde- Thank you for the website.  It has been very informative.  We are in Maryland, so lots of good care here.
I will be spending more time with my daughter to help her with her toddler.  I know that must have been difficult for you not having family around.  I hope you have good friends and sounds like a wonderful husband!
I hope whatever you decide about your oncotype results is the right answer for you and brings you some sense of peace.  Thank you again for being there.  I wish you well.
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Avatar universal
I recommend 'Why I Wore Lipstick to My Mastectomy' by Geralyn Lucas. It's Geralyn's story of having breast cancer at 27. She includes the good, bad, the ugly...and the HOPE. She gave birth to a daughter a few years after having cancer and has since given birth to another baby girl. Her book has been made into a Lifetime movie which airs on Oct. 23rd.

I wish the very best for your daughter!
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Avatar universal
Sorry for delay.  Been with my daughter.  Biopsy on Friday; MRI on Monday; Lumpectomy on Thursday with Sentinal node involvment.
All we were told is that it probably started in the duct; is invasive and in the Sentinal node.  I don't understand all of this yet, but our next app. with surgeon is Tuesday afternoon. I hope we know the details that will determine her treatment.

Right now she is frightened.  She doesn't want to go through the chemo, but knows now it is needed due to the lymph involvement.  I don't know if she will have a mastectomy or not. She wants to have at least one more child, so that is also a factor in her decisions.  

The doctor lent her Dr. Joy's book which was helpful, but an earlier edition.  I will get her the newest book, but does anyone recommend another book that has a whole lot of HOPE in it?  At 29 we don't want something that is only talking 5 years or even 10 years.  I know everyone understands what I am saying.
This is heartbreaking.
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127512 tn?1193742216
When was her diagnosis? What were her pathology reports? What will her treatment be? Will it be chemo? What state do you live in? I live in Charlotte, North Carolina

The only thing I could think about was my children because we have no other family that could help take care of them. It is good she has you to help her through this. I thank God for my husband who has been my rock and my soft place to fall. I will be nine weeks out when I go to my next appointment and I was wondering the same thing to which I just posted that question on the other site I told you about. Lots of treatment info there also. And there are allot of ladies there who get pregnant after having cancer and treatments. Sorry to ignore that question while ago.

Just got the call. My Oncotype test was 20 1/2. Boarder line. At 25 they recommend chemo. Will know more when I met them Oct. 26th.
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Avatar universal
My heart was breaking for you as I read what you've been though.  You have a young family that needs you and am grateful that someone didn't ignore such a small, seemingly insignificant lump.  Actually, my sister in laws was about a pea size when she found it and the Dr. scolded her for her tears and told her it was nothing!  A year later it was a lima bean size and she demanded that he take it out.  Sadly by then it was invasive and in her lymph nodes.
Is it normal to wait so long to begin chemo after a masectomy?   I hope you get better news about the Oncotype.  My thoughts and prayers go out to you and your little family.

That is an interesting point you made about my microcals.  Honestly, with everything else going on it hasn't entered my mind.  I think I will get the path report and send it to the friend I mentioned.  Thank you for pointing that out.
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127512 tn?1193742216
kimberlie - not to scare you or anything but I went back and read over some of your other post and I would get a second opinion on your biopsy since your daughter has been diagnosed. Just seems strange you guys going through this together and they told you your was nothing. Sorry. Again I don't mean to give you more to worry about. It seems you have so much going on in your life right now.
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127512 tn?1193742216
Kimberlie - I found a small bee-bee size lump in my right breast just under the skin below and to the right of the nipple. Went to OBGYN and PCP. Both said it was nothing. Went for mamo they found an are of calcification with approx. 25-30 specks there. An area of concern. Went to radiologist they said they thought it was nothing during biopsy. 1st test, inconclusive. 2nd test, widespread DCIS, Grade 3,no invasion. My only option because of the widespread cals. was a masectomy. I had on August 25th. After masectomy, the report said they found a 0.09mm area of invasive cancer Grade 2 with multifocal calcification, er+, pr+ and Her2-, no lymph node involvement because it was caught early. So it was good I had to do the masectomy or they would not have found the invasion. Many, many times (not always) they find more cancer in the breast after it has been removed that they can't see by way of mamo, ultrasound, MRI or pick up with biopsies. I am waiting on results from a test called Oncotype to see the strength of the cancer, number of cells and the chance of reoccurance. That will let me know weather I will need chemo or a drug named tamoxifen because mine is hormone feed. Being er+, Pr+ and Her2 neg is the only thing during this you really want to be positive. I am 41, have 3 small children, with no family history of breast cancer.  This is a great site but also check out breastcancer.org. A wonderful website about different types of cancers and a place for questions and chat rooms. I am listed there as bonnienclyde. I am sorry to have to travel this road. It is long and hard but doable. Keep us posted. It is really good you have a nurse with her specialty as a friend.
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Avatar universal
Dear Kimberlee:  Breast cancer is uncommon in women in their 20's and 30's but it certainly is possible.  Breast cancers can have features that make them more aggressive in both young women and older women.  These features of the tumor will become more clear after more is known about the tumor.  Some of the features that will be evaluated will include the grade of the tumor, the estrogen and progesterone receptor status, the HER2 neu receptor status and others.  This information will help to determine how aggressive the tumor is and to guide the types of treatment.  Certainly, when a person this young is diagnosed, there is more concern about a hereditary component, especially when there are family members who have had breast cancer very young.  
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Avatar universal
Boninclyde, Thanks for sharing and I am sorry that you've had to go through this. Yes, that is what we've read.  A Breast Center Oncology nurse that is a friend said it is going to be a difficult road due to all of the above mentioned things.  Did you find the treatment difficult?  May I ask your age?  Stage?  How are you doing now?

Moneu, I am so sorry to hear about what you've had to go through.  I pray it will give you a long and full life with no recurrance.  I am frightened for my daughter.  She too is so young to have to face such possibilities.  She wants to get though this, but really wants more children.  I have been doing some research and found a group called, 'furtilehope.org' that I need to find out more about.  I know this may seem odd to focus on her desire to have more children in the middle of a terrible diagnosis.  But, she needs to be able to look ahead with hope.  I wrote your email address down for her.  Maybe she will need to talk.  Thank You.

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127512 tn?1193742216
Breast cancer attacks women of all ages even teenagers. My doctor told me mine was very agressive but is easier to treat than none egressive cancers. He said they respond better to drus.
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Avatar universal
I'm sorry your daughter has to go through this. The percentages seem low for someone her age, but at age 35 my own diagnosis put me in the realization that there are many young women being diagnosed. I was stage IIa and yes it was aggressive. I had no family history. Please check out www.youngsurvival.org where women under 40 meet to discuss their treatments, and support each other. I have gone through a mastectomy, chemo, prophylactic mastectomy, reconstruction and ovarian suppression. If you need any other assistance feel free to email me at maureen.***@**** anytime

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