Autoimmune urticaria anyone?

[jbaum27]

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?

[itchyaussie123]

I have now had 7 Xolair injections, the first few 4 weeks apart and more recently we have been stretching this out to 6 or 7 weeks. I still find that a month after the injections the urticarial begins to come back, particularly on the wrists and hands where it is quite itchy.  However, I have reduced my other meds considerably.  Am now on 300mg ranitidine daily, 2mg prednisone daily, 180mg telfast daily, 25mg doxepin daily, 10mg singulair each second day. I have just returned from a holiday to Cambodia and Vietnam where it was very hot and humid and I had no problem at all, except one day when I forgot my morning pills. I timed the Xolair injection to get the best outcome while overseas.
My Dr says he finds mild urticarial resolves after 1 or 2 Xolair injections, moderate urticaria after 4 or 5 and severe after 9 or 10. It looks like I am at the severe end of the spectrum, but am hopeful it will soon go away completely.  It has been expensive paying for the Xolair injections but worth every cent.  I am completely symptom free for 2 or 3 weeks after each injection (takes about a week to kick in I find) and my quality of life is so much better.

[Msroo]

Any new updates?

[wdbreezy]

I'd love to hear an update. I had two rounds of Xolair (insurance covered all but $200.00 of the 300mg and I found a foundation that sponsored me for the remainder).  My first dose seemed to help for about two weeks.  The second dose (I was full of hives again by this time) didn't do a thing for me.  They want me to try a third, but the pain and fatigue don't seem worth it if the Xolair isn't helpful.  The only thing that seems to help me is Prednisone, but after three rounds they want me off it and on something with less side effects. I'm not responsive to any combination of anti-histamines tried thus far. Next up is an auto-immune suppressant.  I've always been a social person,  but lately I'm a hermit.  I itch constantly, am covered in huge red welts and ache all over.  Just hoping to find some relief!!

[ItchyLizi]

Hi
How is your wife doing? Is she still getting the shots? How are the side effects? Im considering trying this any information will be helpful
Thanks
Lizi

[ItchyLizi]

Hi! I would love to know how about the turmeric, did it cure u??
And did u ever try to do the juice fast from the film?
  

[jel3sons]

I feel for all of you! Diagnosed with CAU in Sep 2010 (although symptoms started late 2009) and have been on almost every drug out there: Doxepin, Loratadine, Dapsone, Colchicine, Tacrolimus, Azathioprine, Zyrtec, Prednisone, Singulair, the list goes on. Am currently taking 20mg of Xyzal, 360mg Allegra, 300mg Ranitidine, 25-100mg Hydroxyzine as needed, and am getting IVIG infusions monthly (about to increase to every other or third week). The IVIG treatments have been my saving grace. Mine is cause by anti-FcE Receptor autoantibodies (numbers on the blood test were off the chart).

I've had dermatographia all my life, but the CAU didn't actually start until later in life. Unfortunately, now, I also react to almost everything: heat, cold, pressure, you name it I'll probably react to it. Oddly enough, I have almost NO "true" allergies, only wasps/hornets/yellow jackets, a couple of trees, grasses, and molds???