Autoimmune urticaria anyone?

[jbaum27]

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?

[lenrosen]

Hi Jess, Find an immunologist who is treating asthma patients with Xolair and see if you can get put on a plan for injections. Xolair seems to work in over 60% of chronic urticaria patients based on all the research I have done to date on behalf of my wife who has suffered from the condition for almost 6 years. The doctors have no explanation for why the immune system in response to stress (it can be an infection, a fracture, almost anything) suddenly starts attacking the body. Xolair is a biologic and very expensive. If New Zealand has national health insurance you may be able to get it subsidized. I know even with our national health system here in Canad, Xolair is not on the formulary for treating hives, just asthma. But it works. Cost to us about every two to three months is $750 Canadian per shot.

[Jess1723]

Hi my name is Jess and I first got Urticaria when I was 16 years old after my Nana died I have had it on and off for years I am now 34 and having an eposide after having nothing for 6 years and my docters are usless I am taking Cetirizine 10mg 1 twice a day and Ranitidine 150mg 1 twice a day and have just finished a course of Steriods but the urticaria has came straight back so I don't know what to do I have pain in my chest witch at times in unbearable Please anyone have you any help. I am in Auckland New Zealand

[niki190]

I have been suffering from chronic urticaria caused by delayed pressure, heat and cold for 5 years.  I, like most others, have been to countless numbers of doctors over this period with no explanation and no hope for relief.  Recently, I have become antihistamine resistant and literally cannot get away from the itching, swelling and uncomfortable feeling of hives from head to toe everyday.  

You mention a Dr. Clark.  Could you provide more information?  Where is this doctor located, what is their full name?

Thank you!

Niki

[Carolj61]

I was diagnosed with autoimmune disorder a couple weeks ago but no attempt by my allergist to figure out which one it is.  I have had hives for 3 months and 3 days.  I have been on prednisone since.  Every time I try to wean off, I get extreme fatigue and hives all over.  I also take zyrtec and zantac.  The weight gain is horrible.  I look in the mirror and don't recognize myself.  I will continue to work with my doctor and allergist.  But I truly feel hopeless about this. The extreme fatigue is as bad as the hives.  

[cmdbdesigns]

Hi everyone. Chronic urticaria and angiodema for almost six months now. Tried: benadryle, zyrtec, zantec, xyzal, hydroxyzine, prednisone and singulair. The prednisone works but I will now only take it if my face swells, the weight gain *****! I thought the singulair, my most recent try, was working. Couple of good weeks, then bam! this morning covered.

I've been tested for every allergy known to man, my thyroid, liver, hepatitus, mono, had my IUD removed, lupus...all normal.

I've seen my PCP numerous times, dermatologist, allergist, ER docs, gynocologist, dentist, endodontist and the eye doc. Nothing.

The immunologist said my biopsy shows signs of vascular something. We are shooting for autoimmune and I need another biopsy done but I just want a medicine that works!! :(

[Perry83]

I'm in adelaide and already seen 5 doctors this week (just to get something to stop me itch) I really don't want to scratch anymore nor gain weight on the 50mgs of prednisone... Who / where can I find this god send of a doctor?