Hi all... Haven't been on the site for a while, and I do apologize. WHen I was finally told that I was "cured," it seemed better to occasionally post on this, and other groups, whenever I had something to offer. Sorry, again. I will be more active here in the future.
Anyway, here's my story. I'll try to make it brief, and hope that you folks would kindly give me some opinions/advice regarding my situation:
I am a cirrrhotic (MELD 14) who has been SVR for over 2 years. Prior to this last battle, I tried all the interferon/riba treatments that were offered to me. THis all resulted in 3X treatment failure and a great deal of post tx issues that never resolved. The abbvie cocktail for twelve weeks cured me of HCV. I count my blesings evey day.
MY new problem is that I deveoped a portal vein thrombosis. The MRI indicated "chronic thrombosis of the main portal vein with canaverous transformation. SMV, IMV and splenic vein noted without evidence of thrombosis. PERIGASTRIC, PERIESOPHAGEAL, COLLATERALS ARE ALSO SEEN.'
My doc tried a 6 month course of injections of a blood thinner, but the clot remains! MY body seems to have formed collaterals that pick up the work of the cloged vein, and my liver doc says that this is good and that I can live with it for a long time.
Des anyone here have any similar experiences? Do you folks think that collateral veins can do the job? Is there something that I am doing or not doing that can help me improve things?
THank you very much! el