Thank you for your reply. We are very frustrated and the fact that they are not starting dialysis and is actually causing harm to his heart, We are facing the fact that it might just be the end of the life of his heart transplant (very sad) but dealing with it. Just wish doctors would be more honest about what really happens or could happen to bodies with transplants. I don't think they are forthcoming with facts or statistics as they could be.
I wish you all the best with your health and I hope you have a long and happy life. God Bless.
Julie
What percentage are his kidneys working at? Unless he is at end stage renal failure, they will not put him on dialysis, as a rule.
I believe the kidney specialists are thinking that dialysis might throw him into a full fledged heart attack, and therefore, are a bit hesitant to take the chance.
One of the warnings you recieve when you go in to start dialysis is that you may have a heart attack, among several other problems.
I started dialysis July 6th, 2010, and had major heart problems that were made worse from starting the dialysis. Since that time I have had a pacemaker/defib installed and I'm doing a lot better, even though I have dialysis 6 days a week.
I am a bit surprised that your husband is on the kidney transplant list, as he has a heart transplant, and usually if you need both, you get neither. I've been turned down for transplants for that reason alone....I need both.
In any event, if your husband is put on dialysis, you need to know that it may be the undoing of his new heart, and I believe that is the reason it seems that the kidney specialists are not willing to help his situation. They don't want to be the ones who cause him unthinkable problems.
I hope I have answered some of your questions...
I hope the best for both of you.