Hello,
My baby id 4.5 months and she is diagnosed that her heart is enlarged and functioning only 15%. She has been given Immunoglobulin 1.5 months back and under medications since then.
I would like to ask , how long it will take to cure her completely and can she play and behave as other normal babies when grow up.
Thanks
Hi,
How is your brother? It is important to have regular follow up appointments for periodic testing of the heart function as well as finding out the cause of the enlarged heart and treating it. An echocardiogram, may be done once in awhile to give an estimate of how well his heart is pumping blood with each stroke or beat.
Aside from the medications that are prescribed, limiting salt and sodium intake and avoiding smoking are also helpful. Enough rest, including after exercise, eating, or other activities is also recommended to allow the heart to rest as well. If there is swelling present, keep his feet elevated. It is also recommended to monitor his weight daily to see any weight gain that can be a sign that there is retained fluid and that the pump function of the heart is worsening.
Take care and keep us posted.
Your brother is probably having a respiratory problem due to the low cardiac output. When the heart is pumping out 17% of the blood received, the blood backs up into the lungs and fluids leak (edema) into the tissues causing breathing problems especially when inclined.
The next step is appropriate treatment that will remove or reduce fluids in the system. Medication to reduce the heart's workload by dilating vessels, diuretic, beta blocker will provide time for the heart to recover and reverse remodeling (if it is dilated due to stress and strain). I had the same problem several years ago, and at the time I had damaged heart cells, enlarged left ventricle with an EF 13-29%.. Currently, heart cells are functioning normally and EF is normal at 59%.
What does your brother's doctor say? What medications is he taking? Does he have an ICD?