Johanna
I did see my GI. He did a urine analysis and it isn't a UTI. I asked what could be causing the problem. He kinda just blew it off...as long as there is no air coming out when I go. So I am just living with the urgency and discomfort. He is more concerned with my fistule. He has me seeing a surgeon this Thursday....just to meet him and get to know him in the event that I need him. I will mention the peeing thing to this doctor to see what he has to say. The GI had upped my Remicade to the highest dose and said that it should close up the fistule. It didn't. Now he wants me to go from every 8 weeks to every 4 weeks. He claims that within the first 3 treatments it should close up. I'm hoping! Now I am just stressing about seeing the surgeon. He is going to do an exam. Hello....my exit ramp has become a full fledged expressway since I was diagnosed. Can't they see the flashing "one way" signs. Really though, I don't mind the colonoscopies because I am put out for them....but these in office exams....they just hurt! I'd rather have pins stuck in my eyes or pencils jammed under my fingernails.
Anything you can share about your fistule experience will help me. I have no clue what to expect. How long did it take yours to heal? What procedure did you have done?
Thank You so Much!
I too suffer form uncontrolled sarcasm and sometimes it's worse than the uncontrolled diarrhrea! Sorry, I couldn't help myself... By now you've seen the doc and hopefully you have your answer, I hope.I'm curious if it had anything to do with the Crohn's.
I too was always a big girl.When I was diagnosed I was 15 and was around 145-150. It's interesting because back then 1975, I was considered too fat or not thin enough to be sick. If I was truly sick and going to the bathroom up to 25 times a day then I should be a rail. Well, the thinnest I ever got was down to about 125. That was after my first son was born and because of a bad episiotomy I was incontinent with an external anal-vaginal fistula.
I can tell you that after 32 years of Crohn's and an Ileostomy in 2001, I am doing really well. But, I still have pain in my hips and some other places as well. Yoga is good and so are those elliptical machines. I really like going on those.I really feel a difference in my hips compared to using a regular ? I can't remember what the f****** thing is called !
Oh my god, it's the long term steriods.I've lost my mind.I'm serious though. I really can't remember what that thing is called. All I can think of is an escalator and I know that's completely wrong.Oh well...It's okay, I'll remember it at 3 in the morning. That will be very helpful.
Well, good luck and if I can ever answer anything for you...
Good luck,
Johanna