crohns-methotrexate

[jasbola]

Anyone had methotrexate to treat their crohns?  My sister has had crohns 20 plus years-2 bowel resection, multiple relapses and failed infliximab treatment her docs are now discussing methotrexate any experience/information with this treatment welcome.

[tammysnursey]

my daughter is 24.  She has had crohn's since the 10th grade.  we have tried everything.  The methtrexate is her last hope. Her colon has been removed and the crohn's is now in her small intestent.  As her mother I feel she does not take care of herself .  Her life is full of drama and stress which she tends to bring on herself.  She is very afraid of this drug. Any advise please.  She is tried of my voice I feel like I am just talking to a wall.  In fact I have stopped talking.  I am scared for her.  She has a hard time working and her confedence and selfesteem is so low.  What can I do to help

Tammy

[ajmc]

Thanks, It was only late 2007 i was diagnosed. The methotrexate or azothirprine didnt work for me, but the infliximab alone seems to be doing the trick!.. As for advise, for the crohn's? I found that keeping hydrated helps a lot, and smoking is bad for it!.. As for going through puberty? Well, i was a pretty late developer, it aint easy when all your mates are developing quicker than you, but he wont be far behind them!..

[jopm]

Hope you are feelin a bit better now. My 14year old son is waiting for the call to start weekly methtxte injections. He's on infliximab infusions 4weekly but doc says these should last 6-8weeks. will stop taking aziathorprine which he has been on for 3 years. He was diagnosed when he was 9- just gets on with it but now he is reaching puberty (or at least his mates are) and it is getting really annoying and making him feel different. How old were you when you were diagnoesd and do you have any advice?  Many  thanks

[ajmc]

Been on methotrexate for 5 week now. (after being on steriods for a year and now off them)  25mg injections weekly with a folic acid tablet to take 3 days after injection.. Not feeling great with it tbh, go to the toilet 10 times a day to pass a little blood every time, and maybe twice in that 10 actually make a bowel movement. Somethimes feel sick too. Always tired too. I want to try infliximab next as 6mp and azothirprine i had reactions to and it seems the only thing left. I still manage to go to work and i play football 4 times a week, but always need to rush to the loo whatever or wherever i am doing which is terribly annoying as i am a single 28 yr old male. I have lost a lot of confidence and dont really go out to socialise because of not feeling well and the toilet issues.

[rocco9]

I started Methotrexate 4 weeks ago and feel so much better.And yes working was no problem.Are you a stressed person if I may ask?For me that always make it flair. a lite workout helps me also.It makes you feel like you can get back into regular life,which you can.counceling is helping me also its amazing how some of this can be linked together.Getting back to a workout putting blood back in the colon helps it heal.When stressed the colon is the first thing to react.Anyway chin up will get through this stupid thing we have.,,,,,,,,Rocco from MA........

[rocco9]

Hi, I've just started methotrexate 3 doses so far which I think is to soon to tell.My cousin isa nurse at U-mass med. center. Her friend has been on this for awhile and its helped alot.I 've heard good things about this. It does make me tired I will say.Time will tell to see it effects.Which I hope is a + for myself and your sister.I know what she and the rest of us go through.I find helping with my stress does alot!.....Well good luck and be well!......Will get through this thing and that how we have to think......Rocco9