Digestive Disorders / Gastroenterology Forum
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Avatar universal

Still no answers ?

I ahve been battling now for 2 years with on/off diahhrea and have had no solutions.
I have always really had a very sensitive stomach but it really started playing up on me when I picked up Chlamydia(very stupid) and I started experiencing alot of symptoms along with constant diahhrea.
The diahhrea comes and goes and for 2 years now I have had terrible fatigue, muscle pain, joint pain, nausea, pins/needles in hands and feet etc, as you can imagine, everyday for 2 years now, this is hell.
I have seen many doctors and have had numerous tests, these include lumber punch, colonoscopies, gastroscopies, many blood tests(lupus, hiv x 4, full std x 2 etc, etc) with no doc able to diagnose 100% certainty ?
I was first diagosed with Celiac(2nd Gastroentarologist) but a Gluten free diet never worked, I still try stick to it but with no luck.
They(Gastroentorologists) cant pin point it, but the constant diahhrea is real, and effects my life.
I have moved town and seen a Rhematologist who says it can be Fibromylgia and started me on Welbutrin, this I think has made me worse.
I also take imodiums every day for precaution.
Can you suggest anything?
Are the South African docs missing something?
Can it be other food intolerances, although I have tried taking enzymes with meals with no real benefit and tried cutting out many foods with no luck
Is there something specific that can help control Diahhrea and provide energy?
4 Responses
233190 tn?1278553401
You clearly have undergone a comprehensive evaluation, which would have ruled out many of the major disorders leading to your symptoms.

I agree with the colonoscopy as well as the tests to exclude celiac disease.

You can also consider malabsorption, which is a rare cause that can lead to your symptoms.  Sending off the stool to exclude fat malabsorption can be done.  I would also test the blood and image the abdomen to exclude chronic pancreatitis.

If the tests remain negative, irritable bowel disease can be considered, and treatment for this condition optimized.

Followup with your personal physician is essential.

This answer is not intended as and does not substitute for medical advice - the information presented is for patients education only. Please see your personal physician for further evaluation of your individual case.

Kevin, M.D.
Avatar universal
Thanks Doc.
I have had my Stools tested many times with no results.
Also, I think they checked for Pancreas problems, have had my abdomen scanned via Ultra Sound and CT scan, no results.

What do you suggest should I get treated for IBS ?
Nothing I have tried helps, so maybe there is someting you can suggest.

I know you are sick of getting so many questions, its just that all doctors are not taking any further action and Im battling on my own.
Can this also be food related, like intolerance to pork?
Avatar universal
To be diagnosed with Celiacs has to be pretty conclusive, and most doctors are pretty hesitant to even consider it.  Considering that you were diagnosed with it, I wouldn't give up on that.  Alot of people with Celiacs are thrown into junk categories of CFS, Fibromyalgia, IBS....  Those aren't causes they are symptoms/results.  

Note with Celiacs, you have to be completely gluten free; did you make sure it was completely eliminated and did you give it enough time?  Also if you have had Celiacs for a long time, you probably have developed much inflammation and intollerances/allergies to other foods and may have leaky gut.  This can all be healed; just eliminate many of the problem foods including the gluten (such as Dairy, wheat, corn) for a period of time and then slowly reintroduce them.  As your stomach heals you should be ok with these foods; except gluten, it will have to be removed forever.
Avatar universal
Thanks, I must say that I was on a strict Gluten Free Dietfor about 4 months with no real help.
I have soo many symptoms which is very strange for any disease, but they are damn real and terrible.
It knocks me sometimes that I have bad diahhrea and then am down for about an hour, then feel somewhat better.
So what you are also saying is that having celiacs can also cause me to have some other food intolerances? Can pork be one? Seem to battles with Pork.

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