ERCP

[Rileydmk]

I am a 32 year old female with a recurrent problem! I had my gallbladder removed in September.  10 days later, I was admitted into the hospital with severe pain that turned out to be acute pancreatitis from retained stones in the common bile duct.  While hospitalized, I had an ERCP to remove the stones, and was told "the stones are gone."  After going home, I continued to experience chronic pain in the upper right quadrant that was sometimes a mild ache, sometimes a sharp stabbing pain.  I returned to the doctor for treatment in November, had another ERCP in mid-December, followed by another attack of acute pancreatitis that I was hospitalized again for 3 days.  This time the doctor removed 5 stones from the cystic duct (he called them "hidden stones").  When I was released, the doctor said that any new stones that I form, or any that are still "hidden" should fall right out because I had a complete spincterotomy.  In the three weeks since I had the last ERCP, I have continued to have pain, severe belching throughout the day, and the inability to eat much (I have lost 10 pounds).  On New Year's eve I went to the ER with what I thought was a pancreatitis attack (it disapated after 15 minutes), and all the tests performed there were normal, including CT Scan, lipase and amylase, x-rays and urine tests.
I have either diarrhea or no bowel movements at all.  I'm desperate for an answer, and the doctors seem clueless, or unavailable.  I'm tempted to try natural remedies. Is there anyone out there that has been through a similar ordeal? I'm an alarmist and have concerns about having chronic pancreatitis, so am reluctant to have another ERCP unless absolutely necessary.

[cwwgirl]

Would love to know the place you refer to in the Midwest. Let me know, if you think about it. OK?

I love your spunk! Your comments made me smile....
Thanks!

[MaryRoe]

Hey there Ms. Southern gal too...lol   Bring that Fellow on.
I will meet him  anywhere.

I recently had an apology from a Fellow here at the heart center.  Yes, most  have BIG EGO's and think they know it all.  What they do not teach in  Med School is COMMON  SENSE!!!

I use to think doctor's were GOD and believed every single word they told me as Gospel truth.  Gads, I needed my head examined.  Now, they don't like me as I question every syllable out of their mouths.  And you need to also.  The most precious thing in  life is a Child.  She is Crystal and Gold and cannot be replaced. Remind them of this, often.  

I need to locate that place in  the midwest that specializes in bile ducts/gallbladder. etc. etc. and post it.  I am not endorsing it but heard a lot about the place and may be something you want to check out...

Good Luck to you.

[MaryRoe]

Hey there Ms. Southern gal too...lol   Bring that Fellow on.
I will meet him  anywhere.

I recently had an apology from a Fellow here at the heart center.  Yes, most  have BIG EGO's and think they know it all.  What they do not teach in  Med School is COMMON  SENSE!!!

I use to think doctor's were GOD and believed every single word they told me as Gospel truth.  Gads, I needed my head examined.  Now, they don't like me as I question every syllable out of their mouths.  And you need to also.  The most precious thing in  life is a Child.  She is Crystal and Gold and cannot be replaced. Remind them of this, often.  

I need to locate that place in  the midwest that specializes in bile ducts/gallbladder. etc. etc. and post it.  I am not endorsing it but heard a lot about the place and may be something you want to check out...

Good Luck to you.

[cwwgirl]

THank you, maryroe, for your support.

I think he is being stubborn and his ego is playing a role in this situation. I should clarify that those comments were not made by the 'top dog', but the dr. who is a "fellow" under him. He does not seem to like the fact that I am doing my homework in order to try and figure out what is wrong with my child. He, of course, does not have children - so therefore, he can not relate. Can you tell I am not happy with him?!!!

It would be fabulous if I could get you both to tell him a thing or two. Don't think he'd be denying the pain's exist then! :-)

BTW, I'm a Southern girl. We can be VERY determined when we need to be! LOL
I am not giving in, just because I don't have the same degrees as they do.

Thanks, again.

[cwwgirl]

Today we are going to try a Chriorpracter(?). A friend's Dr's just KNEW he had kidney stones for severe pain, and long story short... the Chriorp. realigned him and he has been FINE since then. It's worth a shot. Even if some of the pain disaptes.

Duke can't get her in until April, but we are trying several different places. So far, several Dr's don't want to 'disagree' with our famous Dr's findings. Hope to get some ideas soon. This is really weighing on all of us.

Thanks for your ideas you have given me, thus far. BTW, the GI Dr. told me yesterday that 'narcotic's were never proven to be a problem'. And, that those studies were 'outdated information'. HMMMM?! But, there are real folks I'm finding through this website and others that would disagree! :-)

[MaryRoe]

Hi there.

I think Paty in SCalifornia and this Texas Gal would Love to meet your GI doctor and tell him how the cow ate the cabbage.

Every single doctor I have met and discussed my situation knows that certain  drugs can cause a bile duct blockage and delayed empyting thus resulting in  severe pain.  

I wonder if your poor GI doctor is on the same page as all the other doctors...Hmmmmmm!!  Poor thing.