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Gastroparesis

Hi
I'm a 40 year old who has just been diagnosed this year with idiopathic gastroparesis, after 5 years of gradually worsening GERD.  In Feb. this year I had a nissan fundalplication for the GERD. After that I had a bloating problem. The doctors finally diagnosed gastroparesis after several stomach emptying studies. The last one showed that after 4 hours I still had 42% of the meal in my stomach. I have tried propulsid, but it causes me to have too many arrhythmias.  I then tried erythromycin for 2 months but even in low doses it caused too much irritation and discomfort.  I am presently on reglan 5mg ac and hs. This seems to be working fine.  I still cannot burp since surgery, one Dr thought this is a problem the other says it isn't. I still have some problems with early satiety and bloating. My questions are:  will the gastroparesis get better or worse? and where can I find more information on the disease?  I have tried NORD and APHS.  Nord had a little info. Do you know when they will approve Domperidone?
Thanks  Sheila
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Avatar universal
I am 36 with Gastroparesis and have been on cisapride and now switching to Domperidone.  

In terms of natural alternatives, I have found some significant improvement with papaya enzymes,  as well as activated charcoal when an acute episode hits (this also seem to help with constipation and bloating). Ginger also helps with the nausea.

I also have esphogeal reflux which has been helped significantly by the prescription medication Losec.
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Avatar universal
This is in response to Mary's posting of 10/27/99.  I have recently begun to suffer from gastroparesis and believe my condition is directly linked to my hormones.  (Basically, I get sick about two days before my period and the last time landed me in the hospital for about a week.)  Please post any info. you have on the study you participated in or any other info. on the gastroparesis-hormone connection.  Any information would be greatly appreciated.
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Avatar universal
Have had GASTROPARESIS for over 5 years and am looking to converse with anyone who would trade information.  Have had
stomach pacemaker implanted,sub-total colectomy and still
have problems.  Have been reading horror stories on internet
and would like to let people know that there is a support
group and also can be started in your area.  ***@****
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Avatar universal
I was also just recently diagnosed with gastroparesis.  I was diagnosed with GERD five years ago and am only 22.  Four months ago I had my gallbladder removed because it too did not want to empty.  I am currently on 20 mg of Propulsid four times a day and 10 mg of Reglan at lunch time and Prevacid for the GERD.  I'm still having symptoms and like you Jan, have also gained weight. I wonder if it'll ever get better.  But it's nice to know I'm not the only one.
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Avatar universal
Hi.

My email address is ***@****
It's Qi-Gong treatment.  I think you can find some info in the internet.  There are great and very poor (or fake) qigong masters who perform it.  Well...I know many ppl are skeptical about it but it is working for me.  (much better than acupucture treament)

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Avatar universal
sue
Brandon What is your e-mail address. I'm interested in hearing how you are doing it and who your doctor is. Please e-mail me at ***@****.
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