Gastroparesis

[Jeannine]

Hi,I have posted here in the past and appreciate you service its
been a great help.I have had ideopathic gastroparesis for over
2 yrs now and have progressivly lost aprox 20lbs.My weight now
is 100-104 flux. Every time I get sick it drops and after some time it will get back to 104.I can not seem to progress beyond this status. I have been on disability since 11/99.
My doctor said if I dont see improvement in June,
when I was going to return to work,he will just continue the
disability.I feel weak most of the time and have been having
episodes of hypoglycemia due to what I eat or if Im not able
to eat enough.This is getting very upsetting for me.

*If I dont see any improvement do I just have to
"get by" like this?How long do I wait...........

*I am very concerned about the long term effect
of staying at my current weight and minimal activity level.
Is it harmfull to my body?

*Any suggestions as to what might be a "benificial next step"
would be greatly appreciated.I feel like I need to do something,
I cant stand watching my life go by..........

Thank you for your time!
Jeannine
(***@****)

[SusanKay]

My 17 year old daughter has been throwing up since Jan 2001.  She had week long episodes in Nov and Dec 2000.  At first we thought a stomach virus, then appendix and then gallbladder because of the pain.  Drs could find nothing wrong.  They said she had irritable bowl syndrome and an eating disorder.  We have changed drs several times.  Her gastric emptying test came back positive.  She throws up several hours after meals and whole food and medication comes up.  The drs are still saying eating disorder, but she fits gastroparesis to a T.  I did not know so many people had this problem.  Does anyone know of a dr who is familiar with this disease in TX?  I am willing to drive ANYWHERE.  I am so tired of fighting drs and trying to get them to listen to me.  Also--any ideas on food that she can eat will be helpful.  Thanks.  Please email me at ***@****

[Sheri]

Can anyone tell me if Gasoparesis is cureable.  My GI doctor seems to think this is what i have.  Did not due a test to confirm this.  Had scope for the throat and dr. found  bile in stomach and inflammation.  But had blood test for h-pylori which came back twice.    I have pain in stomach area, with belching and bloat.   Currently on Reglan 2x a day and nexium, 1x a day.  Would appreciate any feedback. Still do not feel that great.

[one of you....]

I have been suffering from a very bloated stomach for a couple of years. It all started with extrem burning sensation after an endosccopy it reavled I had ulcer and was presribed losec whioch I still take it has helped. I had tried every thing my doctor could write, cispride propulsid (WARNING this drug cause weight gain) A specialist presribed BENTYLOL it has helped a lot maybe thsi medication can help some of you guys.
CAN anyone tell me how to help in my problem of bloating it becomes so much tt at my times my clothesdont fit.

[stephanie]

Hi. I am writing on behalf of my father who has had Diabetes for the past 39yrs. He is 51yrs. old and right now is hospitalized with Gastroparesis. The Dr. informed him that his stomach is no longer working. He has been taking the medicine reglen which is not helping at the moment.They want to increase his dose to double the amount. We don't know where to turn right now as far as answers to the question Can his stomach regain the ability to work again or has the Diabetes shut his system down that there is no chance? If anyone has any information that could help our family PLEASE e-mail me at ***@****. I would love to hear from you. We need all the help we can find to try and make my dad feel as comfortable as possible and help him deal with this disease on a day to day basis.
                                      

                                   Thank You,
                                      Stephanie

[amy jones]

I think I may have just personally e-mailed you. However, I too feel like I have gastroparesis. I have a wide open LES valve as well. I understand and feel just as you described, dear. How sad. I will pray for you tonight. I would like to hear any explanation of gastroparesis due to the fact that I can't afford much medical treatment.

Amy Jones

[Sherry]

My problem sounds like those of Patty and Carissa.  I've been sick for over a month-started with severe nausa and green, stinky diarrhea.  I've taken so much medicine and nothing seems to work.  When I think I'm having a better time I get sick again.  It feels like most of my food stops in my throat and then I throw up.  Also, I have a pain in left side.  I try to eat but the only thing that has worked so far is oatmeal.