I have a history of what seems to be pancreatic/bilary pain, boring through the epigastric area and radiating to the back since 2003. Has been thought to be pancreatitis but never showed up in the tests. Have had some liver function test abnormalities but these vary between slightly raised and normal. Have a small liver cyst on ultrasound. Symptoms infrequent at first, now increasing in frequency and accompanied by additional symptoms (a general tendency for increased blood sugars, accompanied by sudden lows and very fast drops), intermittent spikes in bp and sinus tachycardia, intermittent diaorrhea. Last scans (MRI) in 2006 were clear. Chromogranin-A now come back at 199.
Significant history is cholecystectomy (no stones), coeliac disease diagnosed by gene testing because on steroid therapy, history of ulcers while on omeprazole (currently taking 80mg) day and last endoscopy was clear, small sliding hiatus hernia, past investigation for pheo (2003), MIBG revealed two minor spots which were considered not important.
The plan now is for an endoscopy and then an octreotide scan. I have concerns about the endoscopy because, while I have had many, I did have airway collapse in one (although I've had these procedures since), I am steroid dependent and I am having such odd symptoms.
I'm wondering if there are other steps that should be done ahead of these procedures? Are there other questions I need to ask? Note I was taking omeprazole when tested for chromogranin-A.
Any advice appreciated.