SPHINCTER OF ODDI DYSKINESIA

[KRISTI TALLONE]

MY SISTER WAS RECENTLY DIAGNOSED WITH THE ABOVE DISEASE AND HAD A PROCEDURE DONE TO CORRECT IT.  I AM NOW EXPERIENCING SOME OF THE SYMPTOMS SHE HAD.  I AM UNABLE TO FIND ANY INFORMATION CONCERNING THE DISEASE, IT'S SYMPTOMS, IF IT IS HEREDITARY, OR WHAT CAUSES IT.

ANY INFORMATION YOU COULD PROVIDE WOULD BE GREAT.  I WOULD LIKE TO BE MORE PREPARED BEFORE I GO THE DOCTOR.

[Joe]

I had my gallbladder out early March. I continued to have gallbladder like pain in Right Upper Quad. This pain is somewhat of a burning and radiates to back and up into shoulder. I had bile duct stint put inplace and this work but when removed back to same old pain. The y did sphinterotomy when the took the stint out. I get the feeling that my GI doc thinks I am lying. I went to primary care doc (GI sent me thee when I complained of back spasms releated to RUQ pain he said I have a skeletal-muscular problem) and he agrres with me. He put me on amytriptaline (a muscle relaxer used for GI system) and I have been taking Ultram for a couple of months.

[David Bugbee]

My wife had her gall bladder out in January of 1999, after a month of severe pain in the right upper quadrant area.  One year later, this pain came back and after two months of tests, she finally had an ERCP and they cut the Sphincter of Oddi.  Three months later the pain came back and she had another ERCP where they again cut the Sphincter of Oddi and put a stent in.  After each of these procedures, she suffered from pancretitis.  Approximately two weeks after the second ERCP, the pain has come back and the doctors are now recommending Pain Management to as the only alternative.  This has been a very frustrating experience and I was wondering if anyone else has gone through this and had any recommendations.  The pain gets so bad that she cannot work, take care of kids, etc. Any help would be greatly appreciated.....

[Lynn]

To Kathy from Tuesday in Dec. 28, 1999.  What is going on with you sounds very much like myself.  Although, I had a pulmonary embolism in Oct. of 1999 and of course I always thing that all my symptoms relate to that.  But now I am beginning to rethink how I have had my gall bladder out and still have all this discomfort with the back pain that you mentioned along with the belching and pain in my abdomen.  I feel bad that anyone has to go through all of this pain but on the other hand it is good to know that I'm not the only one to feel like this.

[scarlet]

Re Lisa M,     I to underwent an ERCP.  last year and was diagnosed with SOD.  Next Jan. I will be going for a Manometry for Achalasia..I have been on a Low Fat diet with med. and I find it help a lot.  I also carry my Nitro everywhere but so far haven't had to use it.  Hope this info can be of some help.

[Lisa Moylan]

Ruth,
When I read your comment I thought WOW - this woman has been through the same thing I have been through.  I also had a diagnosis of Sphincter of Oddi Dysfunction through ERCP.  The procedure was done on Jan. 12 and they also placed a stent in the pancreatic duct.  They removed the stent last week and my pain has come back ten-fold.  If you find any answers please write back.  I am desperately researching trying to find out more about this problem.  Thanks.  Lisa

[Lisa Moylan]

Ruth,  Please let me know if you find out any further information on your condition.  I am in the exact same situation as you.  I recently underwent ERCP and was diagnosed with SOD.  They also placed a stent in the pancreatic duct.  They removed the stent a couple of weeks and pain is back stronger than ever.  Please stay in touch.  I am researching like crazy trying to learn more. I follow-up with my doctor tomorrow.  Lisa