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Sphinter Of Oddi Dysfunction
Has anyone been been told that they have Sphincter of Oddi dysfuntion? I am waiting to go to a specialist to see if this is what I have. I was just wondering if anyone has this and what thay are doing to treat this gastro problem.
A related discussion, My experience with SOD was started.
There are two excellent resources folks concerned about sphincter of oddi dysfunction should know about:
1) http://hopkins-gi.org/pages/latin/templates/?pg=disease5&organ=3&disease=12&lang_id=1
A terrific web site at John's Hopkins (you'll need for the URL not to split lines when you paste it in your browser)
2) An extremely informative article in the Journal of the Pancreas on line (the citation is JOP. J Pancreas (Online) 2001; 2(6):382-400. but the link is below
http://www.joplink.net/prev/200111/04.html
My advice is that if you have recurrent pain after your gall bladder is removed, and they have done the routine GI tests(including checking to be sure stones didn't remain in the bile duct), then you should mention SOD to your GI specialist.
I went to two of them, including one listed in the NY Magazine "Best Doctor's" list, and neither even mentioned it to me, in spite of the fact that the pain began the day after my gall bladder removal and all the standard tests were normal and I had no relief from two PPIs and an H2 blocker. I had to figure it out myself by searching the medical literature on the net.
Mysteriously and thankfully, I can make my pain go away with a full glass of water or more food. (I know, sounds like ulcer pain, but a negative EGD and no relief from the acid medicines ruled this out).
Good luck to those of you that suffer from this.
1) http://hopkins-gi.org/pages/latin/templates/?pg=disease5&organ=3&disease=12&lang_id=1
A terrific web site at John's Hopkins (you'll need for the URL not to split lines when you paste it in your browser)
2) An extremely informative article in the Journal of the Pancreas on line (the citation is JOP. J Pancreas (Online) 2001; 2(6):382-400. but the link is below
http://www.joplink.net/prev/200111/04.html
My advice is that if you have recurrent pain after your gall bladder is removed, and they have done the routine GI tests(including checking to be sure stones didn't remain in the bile duct), then you should mention SOD to your GI specialist.
I went to two of them, including one listed in the NY Magazine "Best Doctor's" list, and neither even mentioned it to me, in spite of the fact that the pain began the day after my gall bladder removal and all the standard tests were normal and I had no relief from two PPIs and an H2 blocker. I had to figure it out myself by searching the medical literature on the net.
Mysteriously and thankfully, I can make my pain go away with a full glass of water or more food. (I know, sounds like ulcer pain, but a negative EGD and no relief from the acid medicines ruled this out).
Good luck to those of you that suffer from this.
I had the gastric emptying test done on 1/3 and it was "abnormal". Normal was 40-90 and I emptied at 120. The doctor has started me on erythromycin four times a day to see if this helps. Right now is he is just taking it one step at a time and trying to confirm each diagnosis with treatment as I go along. I just started the erythromycin today and I have to call in 1-2 weeks and let them know how it is working. If it doesn't seem to be doing the trick they will change the dosage. There are four different dosages, so it looks like this may be a long road. After the final dosage change, if the symptoms still have not resolved he will admit me and do the small bowel motility test.
He wants to hold off on any pancreatic enzymes at this point until he gets and handle on the motility problem.
It feels wonderful to finally have some "abnormal" test results, but unfortunately it sounds like it may still be a while before I really have a solid "here's what's wrong with you" diagnosis.
I can tell you that after two dosages of erythromycin my tummy is not happy!!!!!!!!!!
I understand about feeling like your to young to have all these problems. I'm 31 and I never imagined when these "attacks" started in March 2002 that I would still be dealing with them. I was overweight, but otherwise healthy. I had occassional migraine headaches, but have had those since I was 14.
My brother, sister-in-law, best friend, grandmother, supervisor at work and numerous other people I know have had their gallbladder removed with no subsequent problems. I just took it for granted that I would be like them. I never expected this!
I have to take FiberCon 4 times a day (2 pills at a time) and as my little sister put it - isn't that for old people! I could have throttled her - she's only 22 and is applying to medical schools. I told her to just wait!!!!!!!!!!!!!
I'll let you know what else I find out and keep me posted on what you find out. My e-mail is ***@**** if you would rather post there.
Talk to you later.
5fan
He wants to hold off on any pancreatic enzymes at this point until he gets and handle on the motility problem.
It feels wonderful to finally have some "abnormal" test results, but unfortunately it sounds like it may still be a while before I really have a solid "here's what's wrong with you" diagnosis.
I can tell you that after two dosages of erythromycin my tummy is not happy!!!!!!!!!!
I understand about feeling like your to young to have all these problems. I'm 31 and I never imagined when these "attacks" started in March 2002 that I would still be dealing with them. I was overweight, but otherwise healthy. I had occassional migraine headaches, but have had those since I was 14.
My brother, sister-in-law, best friend, grandmother, supervisor at work and numerous other people I know have had their gallbladder removed with no subsequent problems. I just took it for granted that I would be like them. I never expected this!
I have to take FiberCon 4 times a day (2 pills at a time) and as my little sister put it - isn't that for old people! I could have throttled her - she's only 22 and is applying to medical schools. I told her to just wait!!!!!!!!!!!!!
I'll let you know what else I find out and keep me posted on what you find out. My e-mail is ***@**** if you would rather post there.
Talk to you later.
5fan
I was so pleased to hear that you are finally getting somewhere.
Please do keep me informed, I will waiting to hear from you. If you ever want to email me directly, my email address is ***@****. I would like to keep an ongoing progress report with you, I was also wondering, how old you are to be having these problems. I am 39 and feel I am very young for all the problems that I seem to be having. I am still waiting to go to Kansas City, KS to the KU Med Center for my consultation appointment to see what they think needs to be done for my possible SOD problem, I will also keep you informed. I hope that all goes well for you. Janey
Please do keep me informed, I will waiting to hear from you. If you ever want to email me directly, my email address is ***@****. I would like to keep an ongoing progress report with you, I was also wondering, how old you are to be having these problems. I am 39 and feel I am very young for all the problems that I seem to be having. I am still waiting to go to Kansas City, KS to the KU Med Center for my consultation appointment to see what they think needs to be done for my possible SOD problem, I will also keep you informed. I hope that all goes well for you. Janey
I go for the gastric emptying test tomorrow, but wanted to let you know what I found out today.
All my blood work was normal except for my Trypsin level which revealed that I have pancreatic insufficiency!
The doctor is out of the office until Monday, but the nurse practitioner said that she would make sure he had my gastric emptying results and my blood work on Monday and will have him review them and contact me so that they can start me on enzymes.
Even thought the specialist feels I may have more than one condition, I can't tell you how happy I was to hear this news. FINALLY, the beginning of a diagnosis!!!!!!!!!!!!!!!!
I'll be in touch once I get more info.
HAPPY NEW YEAR!!!
5FAN
All my blood work was normal except for my Trypsin level which revealed that I have pancreatic insufficiency!
The doctor is out of the office until Monday, but the nurse practitioner said that she would make sure he had my gastric emptying results and my blood work on Monday and will have him review them and contact me so that they can start me on enzymes.
Even thought the specialist feels I may have more than one condition, I can't tell you how happy I was to hear this news. FINALLY, the beginning of a diagnosis!!!!!!!!!!!!!!!!
I'll be in touch once I get more info.
HAPPY NEW YEAR!!!
5FAN
I'm a 39/f who had pancreatitis 3x this yr. since June, had my gallbladder removed during my 1st hosp. stay. The a week later had to go back in for an ERCP to have sludge removed from my bile duct. The night after that procedure i had a blood clot form and burst. Dr said i was the 2nd case of that in 17 yrs. Well with continuing pain, My GI DR. sent me to Charleston SC to see DR. Cotton who performmed a manometry pressure test, and found my sphinter of Oddi, completly closed off. They cut it open, cleaned it out and put in a permanent stent in, which they took out 3 weeks ago. Was doing great until 1 week ago. Pain now back right below my sternum where i always had pain. It's no where near as bad as it used to be. No nausea, well a little never any vomiting, even b4 my procedure. My enzymes all came back normal sat. when i went to an after hours clinic. Pain has gotten worse over the past few days though. I am also having alot of burping without any pain releif. Could i be gettin pancreatitis again though? If so, i guess in about another 2 weeks if i'm still hurting that i will be in the hosp. for about 3-4 days on strict IV fluids. That helped the last time i was in for pain, but no elevated enzymes which was about a month b4 my procedure.Anyway, my question is.. does this sound like chronic pancreatitis? I haven't called my GI DR yet. I don't wnat to bother him...Dawn...***@****
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