What is sphincter of oddi dysfunction and the symptoms?

[Karen]

What is sphincter of oddi dysfunction and the symptoms?  My current condition:  for over a year now, have pain in urq radiating to mid-right back and right shoulder blade.  Constant pain.  Worse after eating.  After eating, feels like something tied around my back and chest real tight and won't let up.  Sometimes pain in back and shoulder is dull, sometimes sharp.  In october, went to dr because of running fever and vomiting.  Found blood in my urine and diagnosed me with kidney infection even though didn't have signs like burning sensation when urinating.  Have had all tests done:  barium enema, upper gi tests, hida-scan, other tests for gallbladder and liver.  All blood tests are normal.  While taking Cipro (antibiotic) for so-called kidney infection and a bad sore throat another time, this seemed to keep my pain down to a minimum, but as soon as I finished taking it, the pain would start at full speed again and get worse.  Could this be a case of sphincter of oddi dysfunction?  Should I go see a gastroenterologist?  Does anyone else have this type of symptoms?
Thank you, Karen

[Cyndie]

Hi. 4 yrs. ago I also was diagnosed with Sphincter of Oddi dysfunction. A sphincterotomy was performed and I was discharged 1 month later and went home with a central line and Hyperal.I have since had several dilatations of the common bile duct, frequent attacks of Pancreatitis and am still experiencing the same symptoms and pain as I originally had!I now suffer from Chronic Pancreatitis (and I mean suffer!) I take several narcotics for pain, Sandustatin inj. for Pancreatic spasms, and enzymes. However, I was told by my Specialist that there is nothing else that can be done.I am very frustrated! I do not intend to live the rest of my life like this!Please, if there's anyone out there that might have any ideas, I'd certainly welcome them! (And yes, I am taking an antidepressant!)Thanks.

[Deanna]

Hi -  I have dealt with Sphincter of Oddi disorder for many years.  I am 36 years old now and I had symptoms off and on for about ten years before the condition was correctly diagnosed.  About 8 years ago I underwent an ERCP where they cut the sphincter muscle and I haven't had any problems since.  Until about a week ago when my 10 year-old daughter experienced the same extreme pain and vomitting.  It took many trips to the ER and GI doctor before they diagnosed her with the same condition.  I couldn't believe it!  Have any of you heard of this condition being heriditary??  Her condition is improving now and her doctor is going to wait to perform the ERCP until she has another attack.  The doctor mentioned that there are increased risks to a child undergoing an ERCP.  Any information would be most helpful.  Thanks!

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