motility disorders

[Deborah LeMoine]

Hi, I am a 36 year old Canadian.  I have had problems with constipation/slow bowel for at least 10 years.  Three years ago I was diagnosed with motility disorder.  This causes acid reflux, sore esophogus, swollen throat, and weight loss (3 years ago 15 pounds).  I had a "scope" done with no findings.  I was placed on Domperidone which helped.  For the past several months the exact symptoms have developed again.  This caused me to have to leave work and go straight to my GP on two occasions three weeks ago.  The GI specialist confirms the motility disorder again and has placed me on Cisapride, 20mg twice a day.  This has helped the constipation and thereby alleviates the reflux.  A visit to my GP three weeks ago resulted in a plane abdominal Xray confirming my bowel was completely full and an enema was performed.  Last week I had a barium enema.  I have been unable to work for the past two weeks (I am a court clerk but do not feel any work related stress).  The Cisapride seems to be working, slowly.  A simple walk to the store can cause reflux and nausea, even the motion of the car when I drive.  I am wondering if the medication, Cisapride, will be long term for me and the possibility of recurrence or if this will be a one time deal.

[Sue (comment to Deborah]

I have the same problem both you ladies have. Very frustrating
I can't even go out with friends for a meal. I can eat very little
at a meal. I would like to find out more about what you are
going through. I'm on Propulsid 10MG 4 times a day. I tried
the 20 MG but it made me real dizzy. I have lost 7 pounds
since I've been on it(7 days). The last couple days I am
very Ill after I eat. I can't lie down or sit down after meals.
I'm only comfortable if I am standing or I go for a walk.
I only eat about 900 calories a day. I eat very small meals
at a time. only 3 meals a day I feel brtter if I don't eat at all. The propulsid makes me feel better and I am constipated
since I started taken it. But the last couple days I belch alot
more and I feel like the food is stick in my throat. I have
had this for 11 years. It started out vomiting after meals.
I had GI series done and food was still in my stomach for
14 hours after I ate my last meal. Some people think it's
in my head and that makes me mad, but I can't help it If
I can"t eat much at a time. I still vomot after meals most
of the time. My E-mail Address is JMinkie@ Juno.com. Thankyou
for any advice you can give me. If anyone else has any advice
for me or can help me please E-mail me. Thanks for your time.