weight loss, nausea vomiting bile after gallbladder removal

[mother of four]

hi, i am a 42 old female, i experienced gallbladder attacks in oct.2004, was extremely sick, vomiting, lethargy, the ultrasound showed i had alot of gallstones,(30-40) had it removed by laparscopy, had no problems for 2 weeks, then i experienced nausea 24/7,and then intermittent diarrhea, had a colonoscopy, which was normal, then i had an endoscopy which showed a copius amount of bile in my stomach, was put on welchol and nexium (had some ulcers) did okay for a couple of months, then in june of 2005 i lost 32 lbs in a 3-4 week period, i had no appetite whatsover,severe lethargy,intermittent diarrhea, a feeling of fullness. I  had a cat scan which showed a mass in some fluid down by my rectum. I also had a vaginal ultrasound which showed some debri in my cervix. So the gi doctor told me it was female so i went to a gyn and she wanted to do a total hysterectomy because she thought i had ovarian cancer, the ca125 was neg. my insurance did not cover her so i went to a cancer center and they did a uterine biopsy and she told me my female organs were totally normal. so now i went back to the gi doctor, he did a test that i had to have electrodes on my stomach and i carried a camera on my side,( i cannot remember the test name) came back normal, had a lower gi, normal, was tested for celiac disease, normal, lupus,normal every test that i have had is totally normal, i went to another doctor, she repeated the cat scan, the mass is gone but the radiologist saw another mass in my uterus and he assumed it was a tampon, 100 percent cannot be a tampon because i never wear tampons because they bother me too much! i understand that you are not a gyn but i thought you needed to know everything. i have lost a total of 46 lbs to date , extremely nauseous, which i take phenegran for and it does help, there are days that i have an okay day but 80 percent of my days are terrible, i cannot function, very nauseous and i just want to lay down, i feel better if i lay down, when i vomit its always bile, and lots of it, and it is a wicked wretching, not like a normal puking, and i get very sick, almost disoriented, i feel malaise, i feel like i have the flu 10 x over, i sleep for hours and then this syndrome? goes away and then i can funtion again, i have been so sick for 5 months now, i was fine until i had my gallbladder removed, some stomach pain, but nothing that would double me over , the pain is all over my stomach , sometimes in upper right quadrant, sometimes left side, i want the docter to do a ercp but he said that is not necesary, i was told that sometimes your cystic duct closes and thats when i get sick , feel terrible and then when it reopens i feel better. i sometimes feel bloated, have gas and belching . i went back to the surgeon who removed my gallbladder and he said he found nothing wrong, 3 doctors want to put me on an ani-depressant! please steer me in the right direction, you are my last hope, do i stop looking and give up? thankyou so much

[JANIEL]

I just want you all to know that I am happy and sad at the same time that there are people out there with the same problem. I am sorry you are going through this.  It lets me know that I am not crazy. I feel bad for my husband for dealing with me, but it is so hard to talk to someone who doesn't understand. He keeps telling me to go on an anti-depressant to help me deal with this.  I am scared to, but I know I need to do something. How do they make you feel?  Does it help any? I cry all of the time about this and have no one to pick me up when I am down. Kind of on your mind all of the time, huh?  If any of you would like someone to talk to my email address is nellie_1032***@****
Hope it is not too bad for you today.  Keep your chin up.

[oatmealEATR]

I can relate to not having a gallbladder or gallstones (removed April 05) but still experiencing gut-wrenching pain.

All was fine for six months from April 05-Oct 11. While at work Oct 12,I had excrutiating pain just below my sternum that felt like when they discovered I had gallstones (a bunch of 'em). Two days later, at work, another attack where I ended up going to ER. They didn't know what was causing it after having an ultrasound, blood/urine tests, so they gave me pain meds, a prescrip for Protonix and sent me home. I called my GI and asked to see him. He had no idea, but I told him I was not leaving until he scheduled an MRI. He said it 'wasn't necessary' but I was insistant. Well, I convinced him to schedule it two wks later. Had the appointment on Oct 19. The next morning (again while at work..hmmm) I had an attack. I went to my car in the parking lot and waited it out. But I thankfully took my cell phone and hydrocone (pain) pill with me. I called my GI's office while having the attack and screamsed/insisted he call me back with my results of the MRCP since I was in the midst of having another attack! The nurse finally calls me back 1.5 hr later and they say they couldn't find anything!! No stones in my bile duct, nothing. They said if I hadn't taken the protonix to start and come in for followup appt (which is in 2wks). So far, 2 wks and counting, I haven't had an attack. I have had any probs since Oct 20. Thank God!

[sl8twins]

My name is Stephanie and I had my gall bladder out in Aug. and I was told this was going to make me feel better. No one told me the problems that you could have after having Gall bladder surgery. I was never sick, or really in pain and definitely did not have dumping spells before the surgery.. Now, I am nauseated and this started about 3 weeks after surgery. I also had an endoscope and they found extra Bile in my stomach and I am also relfuxing it up.. Never had reflux either....before this. Now I am on Questran for the Bile as well as dumping spells and they said that sometimes people get better with time.. But there is nothing that they can do about the bile. I also had a Gastric Emptying done and I was a little backed up which had to be from the surgery. So I am right there with you about being frustrated and not knowing this was what we signed up for. See, I still question why I had my gall bladder out???? I did not have gall stones just had a Ct-Scan to say that I had Gall bladder disease.. Anyway,  I am praying to God to Heal me because I am not getting anywhere with the dr.s I loved my GI dr. until he made a comment to me the other day. He told me that I was SPECIAL to why I was having BIle in my stomach because that is not where it is supposed to be. and I said well am I am going to be nasueated for life and he said I  hope not. SO now I am seeing another GI dr. who  I will not be able to see until Dec. 22. SO please know that You are not a lone and I pray we will be healed. I have twin boys who are 3.5 and it makes me cry to know that I cannot do a lot with them......

PLease let me know what helps you all. You can email me as well. ***@****

Steph

[Deb G1]

My son and I both have had our gallbladders removed and had several ERCP's & stents. I am managing and my son is having complications. He is experiencing upper right pain and burning, with sharp pain& nausea, he has a hard time eating. We have been in Washington state where he spent a month in the hospital with no results, we are currently at the Mayo Clinic boy are they slow at getting anything done. As I write this we are back in Washington doing more tests all negative. If anyone has any ideas or a better place to go for medical help please e-mail me at ***@****. We are exhausted and frustrated and almost giving up. We get the run around when it comes to managing his pain NO doctors will give him pain medicine they all keep sending us to other doctors and pain clinics.They are afraid of loosing their lright to pratice medicine if they treat him. Any idea where we can seek relief from pain till the doctors maybe some day find the problem???

[mj21]

Hi Debbie-
I am in Washington State too! Wondering what doctors you have seen here? I had my gallbladder removed in 1997 as I had gallstones and a I also had my spleen removed as I had a tumor on it. I don't have pain, but I have severe acid reflux and a myriad of other problems. I was told last week that it might be the bile coming up. I would love to compare notes on the docs you've been to here. I haven't had much luck with any of the GI's here yet. My e-mail is ***@****.

[jaci321]

hello everyone, this has been a most enlighting read that I have found so far.  let me just start by saying that I am really glad that I was able to find somewhere where i can find out some info.  I came to this site for my dad who has fatty liver and does not know how that outcome is going to be, but then I happened on this one and found it really interesting.  I had my gb removed a week ago.  the first few days of course I felt really bad could not eat then slowly I was able to eat a little on thanksgiving but everytime I do eat I feel sick to my stomach and then I think I dont want to eat no more but then its like now thats all I want to do is eat I have not said any of this to my dr. because I did not think that it was that important, but for anyone out there is this normal after the surgery?  I just hope that everything will go back to normal soon.