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Help with Eustation Tube Dysfunction
Hello. My fiance has been suffering with eustation tube dysfunction for a little over 6mths. now. We have tried numerous decongestants and nasal sprays as well as a round of steroids. His ENT did allergy testing on him, however, he did not have any significant allergies. Our last resort was to have PE tubes placed. This only made his symptoms worse and they took them out after a couple of weeks. Suprisingly after they took the tubes out and his ears were healing, he was symptom free. When the holes closed up he began with the same symptoms all over again. He has constant pressure in both ears, a fluid-like feeling (though the doctors say there is no fluid), and a stuffy nose. He is completely miserable and losing all hope of getting better. We are at a loss. He has thought about having the PE tubes put back in and giving it a little longer this time to see if they will help. We are both scared and upset and have no idea what to do at this point. Any suggestions would be greatly appreciated. Is there any other treatment at all for this disorder??
Thank you so much,
Amy
Thank you so much,
Amy
I googled "the musician who heard too much", and found it very interesting but SSCD is not related to my problem personally but I am sure your info will help a lot of people.
Well, I am not sure. Here is something I googled.
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what conditions resemble SSCD?
Many patients with SCDS have often been treated for a number of otologic conditions before the correct diagnosis is made by a specialist.
SCDS can resemble these more common conditions:
otosclerosis
Eustachian tube dysfunction
patulous Eustachian tube
BPPV (benign paroxysmal positional vertigo)
Meniere's disease
Vestibular neuronitis / neuritis
Labyrinthitis
Well, I am not sure. Here is something I googled.
---------------------------------------------------------------------------------------
what conditions resemble SSCD?
Many patients with SCDS have often been treated for a number of otologic conditions before the correct diagnosis is made by a specialist.
SCDS can resemble these more common conditions:
otosclerosis
Eustachian tube dysfunction
patulous Eustachian tube
BPPV (benign paroxysmal positional vertigo)
Meniere's disease
Vestibular neuronitis / neuritis
Labyrinthitis
i am f**king stolked that everyone spams this with saying that they have the same problem. There are pretty much no solutions here. F**K my life. F**k my career as a sound engineer.
hi my name is Luis im 26 i started hearing a humming sound in my ear about a month and 2 weeks ago. right ear first now left, sometimes both. I'm suffering so much right now with soo much ear aches and clogged up tubes. I need to go see a specialist I have to wait till monday to be reffered by my doctor today is saturday night or sunday morning 2:56am and I'm having such a bad night. I hope and pray i get the help I need. I just need this to go away! i get scared easily tho i know i shouldnt but i dont wanna die and leave my family, and this is draining me, God i need help fast. I hope all turns well cant seem to see past my sickness right now. hopefully itll all go away.
Last week I stumbled on the cause of my vertigo and Eustachian Tube Dis-function (ETD).
It is called Bruxism or “grinding of the teeth”. The powerful jaw muscles pull on the surrounding area and prevent the Eustachian tubes from opening and in time the ears fill up with the fluid that should have drained out. It might have taken a few days or years or even a few decades for enough fluid build up to effect my balance. I recall some 40 years ago that I propped my jaw on my hand so much that it made a bruise.
I learned about the “Jaw clinching” from a closed 2007 posted thread. They got side tracked for months trying to find just the right drug to cure the problem. I googled for jaw relaxation and found lots of advice given by singers and public speakers. Also trigger points on the jaw. I keep a mental montior on my jaw to make sure my teeth are separate and I don't prop my head or jaw on my hand. Also when I do my “ear drain” exercise, I keep my teeth apart.
It has been a week since I started this new regimen and I got better daily until today when I was able to work in the yard all morning and still be able to function the rest of the day. I still do the Neil med for my sinuses.
The tinnitus is so low I can barely hear it.
During the day I check that I can pinch my nose and swallow to make my ears click. Sometimes the right ear doesn't click right away but with another swallow or two it will click.
I think I may have my life back. I hopes this helps at least one other person.
One last dig at the doctors, why didn't they find this? I hope that comment doesn't jinx my cure.
It is called Bruxism or “grinding of the teeth”. The powerful jaw muscles pull on the surrounding area and prevent the Eustachian tubes from opening and in time the ears fill up with the fluid that should have drained out. It might have taken a few days or years or even a few decades for enough fluid build up to effect my balance. I recall some 40 years ago that I propped my jaw on my hand so much that it made a bruise.
I learned about the “Jaw clinching” from a closed 2007 posted thread. They got side tracked for months trying to find just the right drug to cure the problem. I googled for jaw relaxation and found lots of advice given by singers and public speakers. Also trigger points on the jaw. I keep a mental montior on my jaw to make sure my teeth are separate and I don't prop my head or jaw on my hand. Also when I do my “ear drain” exercise, I keep my teeth apart.
It has been a week since I started this new regimen and I got better daily until today when I was able to work in the yard all morning and still be able to function the rest of the day. I still do the Neil med for my sinuses.
The tinnitus is so low I can barely hear it.
During the day I check that I can pinch my nose and swallow to make my ears click. Sometimes the right ear doesn't click right away but with another swallow or two it will click.
I think I may have my life back. I hopes this helps at least one other person.
One last dig at the doctors, why didn't they find this? I hope that comment doesn't jinx my cure.
I can easily understand the depression! I don't know enough about EDT to know if the symptoms get worse over time or not but with SCD It does and with your description of your symptoms, you have it easy. And worse, I have it easy compare to others with SCD but know how bad it will get. I do have an out by way of brain surgery but I'm not willing to take that kind of a risk yet.
I too have lost a job because of my ear problem and am about to start a new job but don't think I'll survive that one either. It is currently extremely heard to live without help and the help I do have don't have a clue. An example; My Dad scuffles his feet and with slippers on linoleum this sets up a vibration in my skull (One symptom). He doesn't do this to be mean, he just can't grasp the concept of what I'm going through. He thinks it's all in my head, which it is, just not the way he thinks.
In other words, your EDT is bad to live with but others have ear problems far worse than you have it. And worse, many are still misdiagnosed as having either EDT or PET and never get relief. Although you may have used the Gun statement as nothing more than an expression it still raises some flags.
I too have lost a job because of my ear problem and am about to start a new job but don't think I'll survive that one either. It is currently extremely heard to live without help and the help I do have don't have a clue. An example; My Dad scuffles his feet and with slippers on linoleum this sets up a vibration in my skull (One symptom). He doesn't do this to be mean, he just can't grasp the concept of what I'm going through. He thinks it's all in my head, which it is, just not the way he thinks.
In other words, your EDT is bad to live with but others have ear problems far worse than you have it. And worse, many are still misdiagnosed as having either EDT or PET and never get relief. Although you may have used the Gun statement as nothing more than an expression it still raises some flags.
I too have SCD syndrome. I came here to this MedHelp site because of a heart attack in April 2009 and have been a member of the heart disease forum. However, since I was out of work and on a medical web site I tried looking through all the ENT posts to see if I could self diagnose my "ear problem". First thought was P.E.T. and figured that was that. However, things got worse and ended up going to an ENT Dr. to see what can be done. After a CT scan I was diagnosed with SCD. Ever since being diagnosed in February 2010 and learning about it's rarity and it's misdiagnosis I've been poking back in the forum to see if I may be of help to others. So far there hasn't been any posts suggesting anybody has SCD, though symptoms of SCD are slightly different with each individual suggesting I could be mis-interpreting things.
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