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Meniere's disease and headaches
Hi, I'm a 32 year old female and I've recently been diagnosed as having Meniere's disease. I have a roaring sound with lots of pressure in my ear while I'm sleeping, fullness and pressure in my ears, vertigo attacks (not sever enough to make me vomit just nausia). My question is I also have been getting more headaches, sometimes they are stabbing pain, is this normal to those who have meniere's? I've been getting headaches in the front of my head, but stabbing headaches towards the back. thanks Julie
Has anybody thought of tmj or allergy to metal in teeth, joint replacement....all of these things can affect you head, fullness dizziness ringing in ears, and eyes and pain in joints. The most common allergy is nickel, but also can allergic the stainless steel and titanium....think about what were you doing and what changed the day before the attack. Gluten can be the issue or Candida. If you are a grinder at time or day, and it is usually under control then needed to figure out what changed to intensify it. You can have an allergy to metal but something happen to compromise your immune system and there you are....you can no longer handle the toxicity in your body....ginkp had helped me control ringing in left ear. But I am no doctor but I refused to be labelled. Please look at the threads on this web site and it might help you find your answers!
I've had 3 doctors say it appears I have Meniere's Disease. But my ENT looked at my results and said no I didn't. Well, he should try walking in my shoes, because I'm always swaying. I've had vertigo attacks, one so bad that my eyes shook, fullness of the ear (always), and tinnitus. Mine started as funny little dizzy spells that lasted for about 5 seconds. My left ear has always felt full, even as a teenager.
It's hard, because I've always been active and a real goal achiever. Now, I feel slightly disabled and always tired. I'm 47 years old. Some people in my life understand, but there are those who don't and think I'm a hypochondriac, and that really saddens me.
It's hard, because I've always been active and a real goal achiever. Now, I feel slightly disabled and always tired. I'm 47 years old. Some people in my life understand, but there are those who don't and think I'm a hypochondriac, and that really saddens me.
There are various levels of Meniere's. You OBVIOUSLY have had the MILD side of Meniere's the last 30 years. OTHERWISE, you would have LOST YOUR HEARING BY NOW IN AT LEAST ONE EAR AND HAD SHUNT SURGERY, NERVE REMOVAL SURGERY, OR HAD YOUR INNER EAR REMOVED BY NOW--SO BE GRATEFUL!!!
By the way, this is my 1st comment on this board. I do have the disease. I have had two of the surgeries & suffered 70% hearing loss in one ear. I have massive pressure in my head on a DAILY basis. We ALL suffer from this disease differently. You need to respect EVERYONE on this board and what we're going thru. Be glad and grateful you have it mildly. Before my nerve surgery, I couldn't lay down on my bed without having vertigo start. After it kept occurring while sleeping at a 45 degree angle in a recliner I said, "I can't live like this anymore. I have a wife and four kids that need me to be able to function on a daily basis. I need help." I got the surgery and had my nerve removed. I returned to work three months later.
I've had to learn how to walk again twice from my surgeries. I haven't taken a sick day in a year and a half. I don't complain much about my disease. I just figure that everyone gets something eventually in life--and this is what I got. By the way, my wife had a reconstruction surgery after breast cancer this year too. We're making it. She's been bugging me to have my inner ear removed this summer. She sees my suffering. I just don't know if I want my 4 kids to go through any more trauma right now.
If you suffer from EAR PAIN (PIERCING--OR LIKE A TERRIBLE EAR ACHE) or suffer from PRESSURE (like a tightening from the throat area to the top of your head or a a squeezing like a vice) the best thing is an old-school medicine hardly used anymore called Meperidine HCL 100MG. The pharmacist won't be able to find 100mg tablets so they will give you 50mg tabs. That's all you will need to use, so you get twice as many for the price. Use that in combination with Promethazine 25mg. Meperidine (Demerol) is ranked 4th on a scale of 1-10 for pain, but works wonders on ear pain. The promethazine used to be given in combination with demerol in the same capsule, but they made them start selling them separately about two years ago.
The only reason I know all of this is because my doctor is in his 70's and has helped 1,000's of patients over the years.
For dizziness you need Diphenidol--25mg. It used to be called Vontrol when it was FDA approved in the 70's & 80's. It was taken off the market when not enough people were using it. Diphenidol is the same drug. You can buy it through the mail. I used to buy it in Utah from a pharmacy called Wasatch Pharmacy. Dr. William Owens 801-399-5014 if you live in Utah this man can help you dizziness. Good luck.
PS As for the original post--Headaches--I was having migraines 5-6 days per week before I found Topamax (a preventative medicine). I take 100mg in the morning and 100mg at night. I had numbness in my back and extremities with this medicine 'till I found fish oil (1000 mg in the morning and 1000 mg at night). I still get migraines that find their way through the medicine about 4-6 times a month, but imitrex usually stops them dead in their tracks.
I am a healthy 42 year-old male. I have a resting heart rate of 58. I have exercised all my life and still do. I have never smoked, drank, and have only taken prescribed drugs.
Once again, good luck to whatever ails you. Sorry for jumping your case Skeetersmom06--I've had pressure in my head for almost a month straight now and I am not looking forward to having my head cut open again.
By the way, this is my 1st comment on this board. I do have the disease. I have had two of the surgeries & suffered 70% hearing loss in one ear. I have massive pressure in my head on a DAILY basis. We ALL suffer from this disease differently. You need to respect EVERYONE on this board and what we're going thru. Be glad and grateful you have it mildly. Before my nerve surgery, I couldn't lay down on my bed without having vertigo start. After it kept occurring while sleeping at a 45 degree angle in a recliner I said, "I can't live like this anymore. I have a wife and four kids that need me to be able to function on a daily basis. I need help." I got the surgery and had my nerve removed. I returned to work three months later.
I've had to learn how to walk again twice from my surgeries. I haven't taken a sick day in a year and a half. I don't complain much about my disease. I just figure that everyone gets something eventually in life--and this is what I got. By the way, my wife had a reconstruction surgery after breast cancer this year too. We're making it. She's been bugging me to have my inner ear removed this summer. She sees my suffering. I just don't know if I want my 4 kids to go through any more trauma right now.
If you suffer from EAR PAIN (PIERCING--OR LIKE A TERRIBLE EAR ACHE) or suffer from PRESSURE (like a tightening from the throat area to the top of your head or a a squeezing like a vice) the best thing is an old-school medicine hardly used anymore called Meperidine HCL 100MG. The pharmacist won't be able to find 100mg tablets so they will give you 50mg tabs. That's all you will need to use, so you get twice as many for the price. Use that in combination with Promethazine 25mg. Meperidine (Demerol) is ranked 4th on a scale of 1-10 for pain, but works wonders on ear pain. The promethazine used to be given in combination with demerol in the same capsule, but they made them start selling them separately about two years ago.
The only reason I know all of this is because my doctor is in his 70's and has helped 1,000's of patients over the years.
For dizziness you need Diphenidol--25mg. It used to be called Vontrol when it was FDA approved in the 70's & 80's. It was taken off the market when not enough people were using it. Diphenidol is the same drug. You can buy it through the mail. I used to buy it in Utah from a pharmacy called Wasatch Pharmacy. Dr. William Owens 801-399-5014 if you live in Utah this man can help you dizziness. Good luck.
PS As for the original post--Headaches--I was having migraines 5-6 days per week before I found Topamax (a preventative medicine). I take 100mg in the morning and 100mg at night. I had numbness in my back and extremities with this medicine 'till I found fish oil (1000 mg in the morning and 1000 mg at night). I still get migraines that find their way through the medicine about 4-6 times a month, but imitrex usually stops them dead in their tracks.
I am a healthy 42 year-old male. I have a resting heart rate of 58. I have exercised all my life and still do. I have never smoked, drank, and have only taken prescribed drugs.
Once again, good luck to whatever ails you. Sorry for jumping your case Skeetersmom06--I've had pressure in my head for almost a month straight now and I am not looking forward to having my head cut open again.
This thread was started many years ago ( notice the hourglass symbol?)
None of us ever really reads posts that have these hourglasses symbols because of this.
For more results/replies you should always start a new post of your own...your chances of getting answers are multiplied that way.
And yes...what you are describing is what I get...and I was diagnosed many years ago with Meniere's.
Not all of us have the same symptoms.
I also have troubles with my eyes "seeing movements". The stove will suddenly move...of course it isn't, but it looks that way.
I also get what they call the drops. I will suddenly fall to the floor...very little warning.
Some of the symptoms mimic MS...so sometimes it takes forever for them to figure out what is going on.
None of us ever really reads posts that have these hourglasses symbols because of this.
For more results/replies you should always start a new post of your own...your chances of getting answers are multiplied that way.
And yes...what you are describing is what I get...and I was diagnosed many years ago with Meniere's.
Not all of us have the same symptoms.
I also have troubles with my eyes "seeing movements". The stove will suddenly move...of course it isn't, but it looks that way.
I also get what they call the drops. I will suddenly fall to the floor...very little warning.
Some of the symptoms mimic MS...so sometimes it takes forever for them to figure out what is going on.
Yes!! Have the pressure in my Sinuses too! Feel as though I can't shake my head etc....! Horrible feeling.
I have some of the symptoms here but also some different ones. I am a 33 year old Mother of 4 children. Have ringing in my ears, have had a tender left ear off and on, but not continually. Pressure in my head when I bend down - particularly to clean under seats etc. Also have had strange pressure which comes and goes briefly in my sinus area.
I went to the Docs a few days ago, and he was indesicive but suggested Meniere's or a virus then prescribed me with tabs for Meniere's (Betahistine) which I've been taking for 4 days now - not a lot of difference particularly in the ear ringing or head pressure, though I feel not as dizzy as I was.
I need to know do any of you have the head pressure or pressure in Sinus area too? I definitely don't feel nauseous, but hate the dizziness and head pressure and ear pressure. Feeling very scared it could be something worse....Have watched my son go through a year of treatment for Leukaemia.......
Best regards,
Naomi
I went to the Docs a few days ago, and he was indesicive but suggested Meniere's or a virus then prescribed me with tabs for Meniere's (Betahistine) which I've been taking for 4 days now - not a lot of difference particularly in the ear ringing or head pressure, though I feel not as dizzy as I was.
I need to know do any of you have the head pressure or pressure in Sinus area too? I definitely don't feel nauseous, but hate the dizziness and head pressure and ear pressure. Feeling very scared it could be something worse....Have watched my son go through a year of treatment for Leukaemia.......
Best regards,
Naomi
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