I am posting on here so that my information may be of help to others. My DD 14 years old was recently diagnosed with EDS type 3. I have EDS and was diagnosed by my NS when I was being seen for pending chiari surgery. He diagnosed me by the beighton scale and my rheumatologist saw no reason to see a geneticist since we had ruled out vascular and they only treat symptoms anyways. I knew at time of diagnosis that my children have EDS as well as they both would pass the beighton scale criteria. I talked with the pediatrician and I found no reason to have them diagnosed unless intervention was needed. Well for my 14 year old playing soccer had gotten to where she had neck pain so bad she would be on the couch crying. Then I started thinking her episodes of basil reaction and migraines could be pots that was misdiagnosed. So off to her pediatrician and after a very long discussion and her researching on her medical reference she came back in and asked me why I thought EDS. So I had my daughter show her tricks. She said oh my goodness you are right and had a horrible look on her face. I said I know...so she referred us to children's hospital hearing, rheumatology who sent us to spine orthopedic dr, cardiology, and geneticist. I am now comfortable with my rhum not sending me to geneticist because with checking my daughter and I out and looking at our medical histories the geneticist diagnosed my daughter with EDS 3 and there is not "testing" for that. I was leaning that direction in my mind for me as well and that was confirmed by her geneticist. There was not a huge ah ha moment yet it was nice to talk to someone who knew as much and more than I did about EDS. I have a huge story to tell about my vision journey but I need a typing brake:) More to come tonight....love ya bendies!