My newborn was recently diagnosed with Congenital Ectropion Uveae. I noticed just hours after birth that her pupils looked like inkblots rather than circles like yours and mine. I asked all 4 nurses they each claimed her eyes would further develop... I asked the discharge pediatrician who also claimed her eyes were normal... Since I was NOT satisfied with their claims I took my daughter to a pediatric opthamalogist who diagnosed her with CEU... However she didn't have much if any information or a prognosis. Just that my baby needs to be seen monthly until something develops. I would like any information possible, I want to know what it is and what caused it and what to do and not to do for my baby. Like any parent would be we are concerned and hopeful but curious.
Please help
They usually stop browing in size or location. If not and it is a problem a glaucoma specialist can do a "bleb revision" operation.
JCH MD
I was born with ectropion uvea and I have had 3 surgeries for it, my bleb that I have continues to keep growing, will it ever quit growing? because of the bleb growing it is scratching the front of my eye, and they say that i more then likely will loose my eye. what other procedures are out there to make it any better?
Steroids and especially trabeculectomy can cause rapid or slow changes in the glasses prescription.
JCH III MD
My son has ectropion uvea and open angled glaucoma because his mesh work was covered by the iris when it "drooped or flipped". He had a Trabeculectomy in 11/2006 and seem to be doing well however his rx has changed and is changing again...i think. We are following up with his Dr. Is it normal to have such a change after surgery...he's only on streiod drops and his pressure is 8-9 in the eye he had surgery in and 15-17 in his "normal" eye.
Ectropion uvea is when the back layer of the iris spills over through the pupil and droops onto the front surface of the iris. It is usually benign but can be present with some types of tumors and unusal forms of glaucoma and in some rare diseases like neurofibromatosis.
JCH III MD
PS you can use Google Images and seach the term and you'll see pictures of it.