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306245 tn?1244388567

Optic Nerve Tumor Glioma)

I have a disease called Neurofibromatosis. Some people with this disease have Optic Nerve Tumors.(Optic Glioma).
I know that they can be removed without issues, but questions are 1) once you have had a tumor like this removed (I had some sort of eye surgery when I was 4, my parents story changes like you change your underwear about what type of surgery I had done to my eye.I do remember going in for surgery 33 years ago) when I go to an eye doctor, upon an exam , would they be able to tell me if I had an O.G. or not, if it has been removed. and for my second question is my 4 year old has a lengthy medical history as well as some signs of having this disease, can they tell at this age, if he has any on his eyes.
2 Responses
306245 tn?1244388567
So sorry something happened where I could finish.
I just want to thank you in advanced for any help anyone can be of
Michelle
233488 tn?1310696703
MEDICAL PROFESSIONAL
You are not well informed. Optic nerve gliomas are very difficult to remove and often it leaves damage to the eye. See a neuroophthalmologist yearly.

JCH MD
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